Hi @pat thats amazing 
not only did she come through the other side of this but she went on to have 2 more babies. Hugs to you and your family! Thank you for sharing xx
Hi @niya44
Hmm, that is not a very helpful comment at all. That would have sent me into a spiral too. Can you ask your breast care nurse to ask oncology for clarification of these comments asap? Your breast care nurse should be able to advocate for you with your team, I think?
You could get some quotes to go private, so you know where you stand, however, you still want oncology and the fertility clinic to work together so you still may end with a block there? You get free egg collection and 10 years free storage on the NHS so really you shouldn’t be paying anything.
Yes, keep advocating for yourself!
It might be worth searching for a local breast care support group if you haven’t already and tapping into other ladies’ experience and knowledge in your local area.
Warmest wishes xx
Hi @emmeline1 I have researched private options and I’ve fired out a few emails.
1 month before my diagnosis, coincidentally enough, I had gone to initial consultations for egg preservation with a private group and they did scans and tests so hopefully they can help. However, as you rightfully said, the challenge is the block from the oncology team who have prevented that being done with the NHS before scan results. I will clarify tomorrow and hopefully will get the go ahead to proceed privately as I haven’t seen any research that could impact my overall health cancer wise. Thank you for talking this out with me & I hope you are doing well yourself! Xx
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i have intramammary lymph nodes and I don’t know if I had any axillary ones as they disappeared after my first diagnosis in 2003 - I thought they were going to sample them and heard nothing after except that my tumour was grade 1, and 0.9 cm and it had an intramammary lymph node near it which was negative. I had the lump out, then a further operation as the margins weren’t clear and I had some focal DCIS too - this is abnormal cancer looking cells that haven’t spread so technically aren’t cancer. They like to remove them though as they could turn to cancer later.
after this I had fifteen sessions of radiotherapy over three weeks Mon-Fri with weekends off. I think they do five now one a day Mon - Fri probably.
That was it but then 19 years went by and I then got another breast cancer in the same left breast, this time another intramammary node was full of breast cancer, I had a bigger tumour next to it and I read up on intramammary nodes and worried my socks off as there are hardly any women who have them and the tendency these researchers have is to be very doom laden in their conclusions about the future of women aith breast cancer who have them. Iam now 68, 69 this Saturday and I may surprise all the researchers by living to 90 and beyond. My mum’s 97 and when I saw her yesterday at her nursing home she looked quite good for someone on end of life care. If breast cancer doesn’t get you, something else will. If I were you I would have the children you want. I was put off the idea but I would go ahead. I went for 19 years without cancer and I wanted children but was put off. I now feel robbed of having children, I could have children at university now if I had gone ahead. Seagulls
Thank you for your response @Seagulls I’m so glad you got out on the other side! Thank you for the info, that’s exactly what I am fearful of, I can’t seem to find much info on intra mammillary node spread so I’m concerned about prognosis as it does not seem to be as common. Hoping for the best, best wishes to you! Xx
The people who write these papers are always doom laden and the number of people with these rare kind of nodes is small.
Since they rarely get data on people who have intramammary lymph nodes who develop breast cancer, these researchers do not have enough data to reach definite conclusions .
So they err on the side of caution. Unfortunately we all want certainty.
There is none. Hope for the best prepare for the worst and expect nothing.
I know if I beat breast cancer something else will get me probably heart disease, dementia or old age or a combination of all three.
it’s being so happy keeps me going!
Seagulls the prophet of doooom
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I am sorry that you are going through this. I am sorry that the information you are getting is so negative. I was diagnosed with DCIS level 3 E and P positive back in February, had a lumpectomy, they found some invasive cancer and was scheduled for a node removal. In the meantime I was diagnosed with BRCA2 mutation, so ended up having ovaries and node removal together. No cancer in either. Now I am waiting for my double mastectomy. My situation is, as you can see, a bit different from yours, but what I found really helpful was to understand for myself what was happening to my body. There are a lot of resources out there, but one that I found very helpful is https://www.breastcancercourse.org You can search and find info on your specific conditions. I hope it’s helpful, hang in there, science is changing every day. Also, this might be a really stupid recommendation, but I watched the “Happy” Documentary several years ago and remembered someone talking about their cancer experience and comedy. Anyway, long story short, when I was diagnosed I made a point of watching comedy every day. Somehow it seemed to help. It seemed absurd at the start, but laughing at something and not thinking about the cancer was comforting. Hang in there. Huge virtual hug.
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You do have hope cuz there is always hope.
Welcome !
You certainly do have hope.
I was diagnosed 2013. Stage 3c. Grade 3. Lymph nodes x 18. Some growths beyond the nodes. Strong oestrogen positive / HR2 neg.
Im still taking Letrozole but no evidence of desease
Live life for today xxxx
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