Hello everyone. Well today I went back for my results. Thankfully they got clear margins of 7mm, after my lumpectomy, but unfortunatly the one lymph node they removed came back positive 
I am quite shocked by this, as my lump was small, only 12mm upon removal. Anyway, I will now need full node clearance, which i’m having next Tuesday (6th Dec). In the meantime they are doing an Oncotype test, to see if chemo is recommended, or not. I was also told that my cancer is a rare one, apparently only 4% of BC’s are this, its called a Cribriform, which is an invasive type, but mine is grade 1, where previously they thought it was grade 2. Apparently the good news is the outcome for my type of cancer is generally better than many other types of invasive BC. I was wondering if anyone on here also has Cribriform cancer? I have searched the word on the forum, and nothing comes up!
Many thanks, Lisa 
Hi Lisa, I’ve found some info on line and posted a link that explains about Cribriform BC, I’d not heard of it before , I had Tubular which is another rare one and when diagnosed last year I only found 1 lady here who had the same , a few more have come along since so you may come across someone with the same as you Xx
Hello Msidenmummy, before I was diagnosed with BC I thought there’re was only one type. It has been a real eye opener to find out about all the different types. I admit I haven’t heard of your cribriform cancer but hope whatever treatment is used gets rid of it for you. I am just out of hospital having had a full lymph node clearance and lumpectomy and go for my results on Monday to see if I need chemo. I already had a lumpectomy and sentinel nodes removed. All went well but they found cancer in one lymph nodes - not from the tumour they removed but from lobular (hidden - didn’t show in mammograms or ultrasound). That’s why needed other lumpectomy and lymph nodes cleared.
Best of luck for 6th Dec x
Hi Lisa, there is no doubt about it lymph node clearance is a bigger op. I was supposed to be in for 3 days but it turned into a 6 day stay as I was still producing fluid - each morning the doc said to me ‘one more night’. I was glad I was able to stay in - I was offered to go home on the day before I got home but would have had to check the amount of fluid drained and phoned in. A bit of a hassle. I did tug the drain while in hospital and it did hurt but was glad I could get it checked right away.
Each day I feel better than the last but my arm is much stiffer than last time and my underarm is numb but tingly sore (if that makes sense). Strangely I don’t have any pain in the lumpectomy area.
I find out what is in the lymph nodes on Monday (fingers crossed for no chemo).
Good luck for Tuesday and remember when you get your lymph nodes removed anything in there will be removed too so can’t be a problem again. You will heal and get back full strength again. Sending love. Vicki x
I am shocked at the difference in care. I am in Edinburgh - where are you? I got out the same day for the sentinel node removal but was on morphine tablets for two days after full clearance I was told it would be three days but was kept in for 6. Can’t believe they are sending you home the same day
I have a strange thing I am going to ask about tomorrow when I see the consultant. From my hip to my knee (on the same side as the lymph node clearance) is very numb and tingly. It feels cold. I was told that your body is clever and will deal with the lack of lymph nodes by re-routing but find it amazing if it can do it to your leg. Might be some odd coincidence.
Thanks Ladybowler. I will let you both know how tomorrow goes
I am in Grantham, Lincolnshire, but i am being treated at the Breast Institute at Nottingham City Hospital, which is roughly an hrs drive from my house. I’ve decided to speak to my BC Nurse tomorrow, to tell her my fears, i really am so worried about going home the same day
That does sound strange about the feelings in your leg, but it probably will be to do with your body finding a new route. I will definitely be interested to hear what your consultant has to say about it!
I don’t mind telling you I was really scared today. I didn’t realise how scared I was about getting chemotherapy. As the other surgeon told me last time ‘the lobular cancer is a little traveler’. I got it in my head that I would need chemo.
I got the strips holding my wounds together off today and Dr Roa (my surgeon) is very pleased. He said I am a good healer ?. He is very pleased there isn’t any swelling either.
I was told he removed 20 lymph nodes (usually it’s 10 - 15). I couldn’t believe what he told me next ‘there is NO cancer in any of my lymph nodes’. He said out if 22 nodes the only cancer was from the hidden cancer that was found last time. He is amazed too.
No need for chemotherapy (I did get him to repeat it a few times) ?
I have to start the Tamoxifen again today. I also have to get radiotherapy. I go to see about thatt next Thursday.
I also have my appointment to see Dr Roa again on Thursday 7th Dec 2017 ?
Dr Roa says I have compression of my nerve - I have been sleeping in the same position. It will go away but might take about a month.
I hope all goes well with you tomorrow- thinking about you. Let me know how it goes.
Vicki x
Hi Helena. It’s great that you will get started with your radiotherapy soon - it means it will finish sooner too.
I don’t know what the oncologist will tell me on Thursday- I will let you know ??
Vicki x
How fabulous you have the date of your last radiotherapy marked on your calendar. Good idea about taking a week off. One thing I have learned through all of this is to be kind to yourself. I don’t know about you but I always just get on with it. If I have a cold I taken medication and then just carry on. No more - health and looking after yourself must come first. Let me know how you get on. Vicki x
Hello ladies.
Well today was results day, and i’m very happy to report my nodes were clear of any cancer, all 25 of them!
I was also told my Oncotype test result is 20, meaning my risk of recurrence is intermediate, which makes the decision about whether to have chemo or not slightly more difficult. I will be seeing my oncologist within the next few weeks to discuss this, but in my mind I have already decided that I will have chemo, as I want to make sure I have given myself the best possible chance.
In the meantime I am 2 wks post clearance, and getting better each day. I did develop a small seroma 5 days after having my drain removed, which meant another trip back to the hospital to have it drained, which was a massive relief, as it was causing me a lot of discomfort, and made my excercises very painful. I also have slight cording in my armpit, meaning my arm is tighter than it should be, but that should improve. I saw a Physiotherapist whilst at the hospital, and she was very pleased with how much movement I already have in my arm, which is great!
So for now, I am going to relax and enjoy Christmas, and try to forget about the C word if possible! 
Lisa xx