dumbing down bc

I was diagnosed with tnbc in august last year. Like the rest of you, I feel as though it is just a waiting game in terms of it returning as there appears to be little out there for tnbc.

Apart from this, has anybody noticed the low profile pink October has had this year compared to last year or any other year come to that. I don’t agree with the Tickeled Pink thing as I think this is in poor taste, but even our local asda has given bc awareness month very little space this year. I even noticed this in Marks & Spencer where I used to buy Teashirts with the bc logo etc., Again a very low profile. There is also a lot more appearing in the press regarding women being incorrectly diagnosed and had their breast removed uncessarily. I am also reading more about women having ‘slow growing breast cancers’ which may never have caused them any harm. I think that professor can’t think of his name, but he is also back peddaling on the mammogrammes and is scepticle about their use. Does anbody out there have any views on this.

I haven’t noticed it being particularly low profile this year, but it is hard to tell as I am, of course, a lot more aware this year as a result of my wife’s diagnosis. To be honest, although I was always aware of breast cancer as an issue and of the various ongoing campaigns (much more aware than for prostate cancer for example), I had never heard specifically of “Pink October” until this year.

The point you raise about misdiagnosis and possible unnecessary treatments is an interesting one. I think a lot is due to the gradually increasing scientific knowledge about BC and cancer in general. I think the definition of “cancer” is a lot more fuzzy than people think. I have seen DCIS and LCIS, for example, referred to as “pre-cancerous”, because the cells haven’t yet started breaking ranks and spreading about.

I also did see some research from the USA, where screening currently starts much earlier than here, regarding the number of false positives from mammograms. One of the factors that was mentioned was that it is much harder to interpret mammograms that are done prior to menopause. (I’ll try to find that paper again if I can.)

I think when the knowledge is not well-developed, there is a tendency to treat everything as if it were the worst case. There was probably a time not so long ago when full radical mastectomy was the norm (i.e. taking the pectoral muscles away as well as the breast). As knowledge has improved, this has become rare and the choice of treatments has become much more refined. It is only very recently (maybe even within the last 5 years) that sentinel node biopsies have been widely used to prevent unnecessary lymph node clearances being performed. It may be true that some cancers are “slow growing” and not dangerous, but until there is a way to identify which ones they are, it doesn’t really help much.

It is not just BC where increased knowledge is having an impact on treatment. I remember reading quite some time ago (before I had to find out about these forums) that many men were being given unnecessary, radical treatment for prostate cancers, when their particular form of cancer would probably not affect them within their normal lifetime.

I think the dream, that is perhaps starting to become within reach, is that cancer will one day be treatable to the extent that it is seen as no worse than, say TB, which was practically a death sentence until about 60 years ago, but is perfectly treatable now (if you have access to the treatments).

It is important, though, that people are aware that we aren’t there yet with cancers. I have heard of people saying “oh breast cancer, that’s curable now isn’t it” and most people I talk to don’t even realise that BC is not just one disease, but a whole family of them! We need to make sure that these misunderstandings are stamped out quickly.

(I am not an expert, so these are just my opinions. Sorry for the long ramble by the way.)

Thankyou so much for a considered response, I do hope my remarks did not come accross as a rant. As you say it is important that people are well informed of this disease and that the right information is out there. I understand that the NHS are in the process of reprinting the information on breast screaning. It will be interesting to see what comes out of this. Hope your wife is well and responding to treatment. Take care.

No problem with your remarks. I think there are issues with perfectly good research being misunderstood by the public (and by the press) due to overly simplistic interpretations.

My wife is doing well, thanks. We’re a bit scared of the Tax, which is next, but that’s another thread.

I hope that you continue to be well.

yellow

Professor Mike Baum? He,and many others, believe that women are being unnecessarily turned into cancer patients when DCIS is found. There is a whole topic out there on this and against the screening program in its present form. The literature that is sent to women luring them to screening is being revised but to what extent I wonder. It is currently lacking in truth and doesn’t even mention DCIS and its treatment and it makes out that everyone treated will be successfully treated and does not give mortality figures or warn women of the consequences of screening i.e. dangers from mammography, false negatives, possible mutiliation and so forth. Still, I expect targets have to be met …

Hi all

Just to add my twopence worth they also do not tell you that your mammogram may not pick up your cancer. I found a lump 6 months after a routine mammogram failed to pick it up. Without warning women it could lull them into a false sense of security and they may fail to make their usual checks.

All the best for your wife’s tax I was very lucky and found it not to bad at all.

Anne xx