Good luck Chocdrops with tomorrow’s appointment,I hope all goes well.
I have still not heard anything but still a,bit early for me. Anyone suffering from night sweats mine are horrendous since I was taken off HRT, 5 times last night I was woken up my hubby said I was so hot I woke him.It is making me so tired as I have not had a unbroken nights sleep since my ops.Any suggestions gratefully received.
Minx50
Hi Minx
I was also taken off HRT on diagnosis. So as well as coping with the BC, i have the hot flashes and all the stuff, forgetfulness, anxiety, broken sleep, I had before I went on HRT.
I have found it helpful to cut out coffee and now only drink Roobios tea (Tetley do Red Bush or Tick Tock) Have also changed to rice milk.
Of an evening, one minute I am like a furnace and the next I am shivering. Our central heating thermostat is up and down like a fiddlers elbow!
Hi pesteringpixie, Thanks for suggestions.
I forgot about the forgetfulness now I know why I am talking gibberish, called my hubby daddy the other night instead of grandad, start a sentence then don’t know what I am talking about.!!!
At least I am giving my family and friends a laugh.I don’t drink tea and limit myself to 2 cups of coffee a day.I drink water or squash and a daily tipple of wine.I have decided to take a visit to my Dr’s on Friday see if he can advise anything.I am not to bad in the day its nights that are just so bad,I am just sooo tired.
Hi ladies
You are, wonderfully, making me laugh. Just keep going …, please 
I’ve been on Tamoxifen almost 2 wks now and, fortunately, have to say I haven’t noticed any difference re hot flushes, sleepless nights, forgetfulness etc yet. However, I’ve had these issues for the last 16 yrs, due to other medications, so am really hoping they don’t get worse as a result of Tamoxifen.
Yes, I’m often wide awake all night, sometimes for a few nights on the trot. So, yes, get very tired. Even sleeping tabs have limited effect so I just have to ‘manage’ it sometimes. Not always easy and I’m fortunate in that, because this is because of other reasons, I can still get through the day. However, I can appreciate it must be so difficult when you feel so exhausted during the day because of a broken night. All I can suggest, from my experience and advice given, is to rest if you are ‘restful’ but get up if you are ‘restless’. A cuppa does wonders. Get on a do some of the things instead of doing them during the forthcoming day - though not always easy.
I was advised to hide my clock - horrendous idea!! I was then worse than ever, wondering what the time was and was morning ‘soon’! At least I don’t have to get up to work, or have family/hubby to cater for!
As for hot flushes, I have had a ceiling fan for a number of years and have a cord from it to the back of my bed so that I can switch it on/off by just raising my arm! Brilliant system and I would recommend it.
As for the forgetfulness, stopping mid-sentence wondering what I was meaning to say, forgetting names etc, well, my friends are well used to it but it is so frustrating to me. For me, I don’t think this will improve but do sympathise with those who are also finding this.
Take care, all of you
Hi there everyone. I have been reading about all your lack of sleep at night. Is this since you’ve been on tamoxifen/other hormone treatment or since the surgery? At the moment I am so lucky because I sleep really well each night, only waking if I need to turn over which can be sore, but then going back to sleep. Does this mean that when I go on the hormones I won’t sleep well?
My moan now is that since having the Mirena coil removed last tuesday I have had a period which shows no sign of stopping at the moment. Maybe I should go back to the GP?
Anyway, all the best for tomorrow Chocdrop. Remember, your journey is moving forward and will have a good outcome at the end. Let me know what happens, as I don’t go until Tuesday. xx
Oops! Apologies MrsGlock. I’ve only just seen your post! Very remiss of me, isn’t it?
My lack of sleep is due to an antidepressant I take, and have taken for the past 16 yrs and it’s certainly a side effect of that so please don’t think of Tamoxifen being the cause. I envy anyone who sleeps well!!! I’m lucky if I can get 2 hours, which is rare. It must be the tablets that keep me going.
However, I have to admit to having absolutely no energy these days but I think that’s to do with my thyroid levels. I suspect (for reasons I won’t go into here) that my levels have changed over the years and, more laterly, more again and maybe with the surgery and all, it has taken it’s toll. I’m seeing GP tomorrow to put my ‘theory’ to her and hopefully she will agree to increase my thryoxine dose significantly.
Anyway, regarding last Thursday, yes, all went ok. The consultant explained things, answered some questions and then introduced me to the Support Radiologist who then spent time chatting about things.
Planning session is on 5 April and to start Rads in a couple of weeks time after that.
Did you go for your planning session yesterday? How did it go? Are you joining the April Rad thread?
Sorry to hear about your coil and stuff. I do hope that settles soon. You could be doing without that. I’m wondering if you went to see your GP yet? Sounds like it could be a good idea if it hasn’t stopped by now.
Be good to hear how you are getting on.
Hope all are doing ok
Cheers
Hi all I hope I find you well.
I have just recieved my apointment with the Oncologist for 25th April,seems like I have been at a standstill for a while.I finally gave in and went to the dr’s on friday as I am so tired, hot flushes still horrid.I was prescibed a tablet called Clonidine not sure they are agreeing with me. Has anyone else heard of these tablets?
Hi
Mrsglock - why did you have the mirena removed? I have a mirena - fitted 3 years ago becasue I had polyps in my womb and constantly bled. So had the mirena and went on HRT. Felt fantastic until the BC diagnosis.
Took me off the oestrogen HRT imediately but onc said the mirena is so low dose and localised, it can stay there.
So as well as the emotional effects of dealing with BC, I have awful HRT withdrawal and would do anything for an unbroken nights sleep. last night, managed about 6 hours in total but very broken, the hot flashes wake me constantly, i throw of the duvet and 5 minutes later, i am freezing cold. My poor husband has de-camped to the spare room.
Oh the joy of being a woman 
Hello Chocdrop and Pesteringpixie, thanks for your replies x.
I went to see a lovely lady oncology registrar in Tuesday. She explained the treatment - 3 weeks of rads, although I have to wait up to 3 weeks for the planning appointment. They have also prescribed Tamoxifen because even at 55 I am still not postmenopausal. The bleeding finally stopped after 11 days! Not heavy, but it just kept going. I hate periods - such a bind. I have taken the Tam. for 2 days now and no probs.
Chocdrop - sorry to hear about your lack of sleep. It is so difficult to ‘perform’ well during the day when you have had poor sleep. Hope the doctor can help your problem so that you can sleep well. x
I think I will eventually get my rads in April, so if so will join the April thread when I know. Glad you now know when yours will be. We can compare notes lol!
Pestering pixie - my surgeon and the oncologist agreed that I should have it removed, partly I think to be able to ascertain what my menopausal state is. I was not having HRT with the coil, just the coil itself. Periods were much better with it so we will see whether it goes back to what it was before.
This weather has been amazing and has made me want to get out and potter in the garden. However I did too much over the weekend and it hit me on Tuesday afternoon and Wednesday. Need to listen to my body more.
Well, take care girls - wishing us all good sleep and restful days. xx