First diagnosis of b/c- June 2009, triple negative, had chemo. rads and WLE. March 2011-brca1 daignosis.
Feb 2012, bilateral mastectomies.
Lots of post op complications, blood transfusion, intesnive car, then infection (just unlucky). Feeling very ill and sorry for myself and told an occult cancer found in untreated breast. I can find positives-its gone, its early, but every day (usually afternoon) fall into a great hole of despair. KNow treatment is do-able, but its hard. Just dont know how I will find the strength and courage to do all this again.
Watched david Walliams swiming the Thames on TV. Thought I need Greg(the coach) who gave David pep talks and support as well as being touch with him.
I haven’t been on for ages, just checking in as 4 years since my dx. You are telling yourself all the right things, it’s early and it’s gone, and you have a treatment plan.
Don’t have any words of wisdom, just wanted to give you a hug and some encouragement - go for it girl!
All the best with your continuing treatment.
Kinden
x
There is another tn girl on here darlojo. She is tn and has just had a mx for recurrence 10 months after treatment for her first cancer. I will post the link to her thread. She doesn’t come on here as much as she did. But she starts chemo again next Monday. Wishing you strength.
If I can say all the right things, and believe them-why does it feel so pants? Looking back, I feel I coped quite well with my previous treament, physically and emotionally. The last few weeks has been simply horrible and I am now terrified. Putting on a brave face for family and friends and crying privately.
Would be interested to hear from anyone with a new triple negative as well as cyber-hugs.
hi ladies,
just to say i have three reccurrances in a year and a half from my oringinal dx in 2010 sept, i had nautralpenia, infection transfusion, but this time i am on taxol weekly and herception and so far i feel fine so you will get through again.
Hi rattles, I just posted under triple negative thread - we sound quite similar. I had a tn recurrence just 4 months after finishing treatment (wle, chemo, rads) for first primary (I was 29 at the time, now 32). I am also brca1 but they didn’t test me for that until my treatment for the first primary was over. I had a mastectomy second time round but it was sadly too late and a month later I was diagnosed with secondaries to both lungs. That was in September 2010. 3 weeks ago they found a brain tumour, which was removed last week.
This all sounds awful, and yes it’s not been a walk in the park - I’ve been on various types of chemo with varying degrees of success BUT I’m still here and I’m still really well. I’ve never had any probs breathing, I cycle a lot, still work, and apart from the massive load of staples in the back of my head from surgery last week, you’d never know to look at me (i lost my hair for the second time just before christmas but invested a small fortune in a custom-made, real hair ‘wig’ that’s glued on permanently so I only ever see my bald head for about 15 mins every 5 weeks when they reglue it, best money i ever spent!).
Sadly, I think ‘statstically’ tnbc is more aggressive but stats are just a rough guide and I try not to pay much attention to them. Similarly, scan results are only useful for my onc in terms of treatment planning. I’ve had lots of appts where they’ve given me ‘bad’ news but I kind of think that as long as I feel ok that has to be the main thing.
Sending you lots and lots of cyber hugs - I can imagine hw frightened you must be, I remember it well, but my best advice to you would be make sure you have confidence and faith in your onc and medical team and let them worry about it. Things are moving on all the time, especially in the field of tn. It’s actually quite fascinating.
you’re quite right, we just have to keep going. I hope I haven’t frightened you more, I’ve just been a bit unlucky in that my first oncologist wasn’t great and (I believe) was a bit slow off the mark and didn’t really seem to take on board the aggressive nature of tnbc. It’s mainly been through my own research that i got more of an understanding about tn/BRCA - however I saw my wonderful oncologist (who I’ve had for over a year now) yesterday and in her words, she wasn’t “overly worried” about the brain mets as she says they’re often easier to treat than you think. I may never have this problem again, touch wood, and even if they do pop up again there are lots of treatment options still available. so all def not lost.
Get all the support you can - from breast cancer care, Macmillan, anyone who’s offering it - there really are some fantastic organisations out there. Stay calm, let the docs do their job, you just never know what’s round the corner. Good luck, keep us posted xx