ER+ Ladies

 

Hi Ladies,

 

As a newbie here I’ve been reading various threads which referred to avoiding/supplementing certain things if hormone +. I rem reading an article once when first diagnosed about parabens etc but it wasn’t clear at the time which type of BC it was referring to. In the end, while going through investigations and treatments I simply forgot about it and my BC team never mentioned anthing about it since then!

 

As a highly sensitive ER+ lady (8/8) and on Letrozole, what should I doing/avoiding etc? Any good links, info would be very much appreciated! (Will be discontinuing Letro while on chemo beginning March 6th)

 

Many thanks,

 

Helzie

Hi Helzie

 

Regarding parabens -they have been found in some breast cancers. However there are long and short chain parabens and I don’t know which sort have been found in tumours so I discontinued all products with any parabens in them at all. Apparently they are widely used as preservatives in cosmetics.

 

Regarding diet perhaps we should be avoiding phytoestrogens such as soya, flax etc, but again this seems something the medics don’t go into - perhaps because letrozole neutralises the effects? I have avoided these two but not oats. 

 

I think the main thing is to look after your bones and get lots of calcium because both letrozole and chemo can affect them. Have you had a baseline Dexa scan?

 

I would have another chat with your team.

 

All the best for your coming chemo.

 

 

 

 

 

 

 

Regarding parabens -they have been found in some breast cancers. However there are long and short chain parabens and I don’t know which sort have been found in tumours so I discontinued all products with any parabens in them at all. Apparently they are widely used (as preservatives?) in cosmetics.

Regarding diet perhaps we should be avoiding phytoestrogens such as soya, flax etc, but again this seems something the medics don’t go into - perhaps because letrozole neutralises the effects? I have avoided these two but not oats. 

I think the main thing is to look after your bones and get lots of calcium because both letrozole and chemo can affect them. Have you had a baseline Dexa scan?

I would have another chat with your team.

All the best for your coming chemo.

Hi,

I am, too, and 8/8 ER+ and on Letrozole. I finished my active treatment on 26th October 2016.

Having also completed a Moving Forward course, which is offered by Breastcancer Care in many areas, I hope my ramblings may be of help.

The key to much is a healthy balanced diet and to try and have a healthy BMI.

Dairy - many of us wonder whether we should stop it, as there has been concern voiced about hormones in milk. No, we should not avoid - quite the opposite. The intake of natural calcium is far better for our bodies than supplements. Although with the amount we need being on Letrozole we still need that supplement, especially as it also is combined with vitamin D. However we should switch to skimmed or semi skimmed milk and take it easy on full fat yogurts, cheese, etc. 

This link is an excerpt of a european study re dairy, information which was given to us on our course, when asking about it.

ncbi.nlm.nih.gov/pubmed/23492346

Phytoestrogens - on this one the jury is out. And it has to be said that Letrozole does not minimise a possible effect, as Tamixifen might do. Letrazole stops an enzyme, which makes estrogen from our bodyfat and is hence different from the way Tamoxifen works.

Phytoestrogens mimic estrogen. The way to try and describe it - both have the same way of attaching to a cell - so if you imagine estrogen/phytoestrogen as puzzle piece with the bit sticking out. Our cells are the other puzzle piece with the hole, where the phytoestrogen/estrogen bit fits in. Estrogen would fit into this hole and would from there penetrate into the cell. Phytoestrogen also fits into this hole, but the scientists have, as yet, not found out whether it penetrates into the cell or not. If it would, that is not good news.

Research on BC and soya is out there, however it is based on an asian population with completely different diet. Soya having been a staple in their diet since time began, the asian popuation is likely to deal with soya differently to a european population. I have, as yet, not found any research on european population.

Phytoestrogens are in many foods, especially fruit and vegetables, which are very good for us.

However, I avoid foods which are high in phytoestrogens and also avoid any supplements such as Black Cohosh, Sage, Red Clover, etc. i.e. those supplements, which are supposed to help with menopausal symptoms.

I stay away from foods  with over 1,000 …per 100g and take it easy with foods with over 500…per 100g 

Phyto 3.JPG

But, of course, it is always a very individual choice.

Parabens - there are many names for parabens - so it might be worth looking out for them on the back of shampoo, bubble bath, cosmetics, etc.

Methylparaben, is a member of the paraben family. Personal care ingredients that include: “ethyl,” “butyl,” “methyl,” and “propyl” are from the paraben family even if the word “paraben” isn’t in the name.

However parabens may be relevant for all of us, rather than being ER+. I personally will still by hair shampoo or soaps with paraben, as it is only used fleetingly and does not penetrate the skin. However , I do avoid them with all of my cosmetics.

Marks and Spencer does a good line in paraben free cosmetics and the Boots website is a good way to check whether a product you use/ or intend to buy contains them. Just search for your product, as if you would wish to purchase and then check the ingredients.

Phew - hope it helps

Hugs

Sue xx