Hi, I have just signed up. My mum is starting ebrulin next week as her her2+ metastatic breast cancer is getting out of hand. Her onc said she can’t have cold cap with this one as it takes up treatment time for someone else & there’s no proof cold cap works with eribulin… how is this so??? I’m so upset because through everything she’s been through so far she’s cold capped & kept her hair but now as things deteriorate they are not allowing her this ‘luxury’ so for the first time in 2.5 years of treatment & surgery she has to loose her hair too
I said I’d seen that people have had the choice weather to use cold cap & she said each hospital is different! Surly it’s the patients choice?!!
Hi
It has been suggested that I will switch to Eribulin, I popped along to the medical unit that do the IV and got them to check my veins, they said it’s a 10 min treatment, give them a call and ask if mum can cold cap, it means a longer appt but if it’s important to her and the same hospital where she cold capped before then there is a chance
There is an eribulin chain on here you might want to ask on there
Good luck to Mum