Yes,. Itsfunny but im feeling quite lonely, wheras before they joined me i was finel
?
Moijanxx
Hi moijan you hold the fort on the eribulin its working well for you
Still recovering nurses out every day to give blood thinning jabs I cant bring myself to do it yet and my husband hates needles too…they tried to drain this thing today but nothing came out
wondering if there none there .she used a bag next time she will try bottle as its got suction
.oh well all gross.but the bit outside is not very obvious.love Sharon x
Hi Sharon, lovely to hear from you. Yes, it is odd nothing came out when she tried…I think bottles have really good suction, a. Bit like the blood bottles…they too apparently have suction and I never realised…just thought the blood ran out…silly me.!
Havent read the other thread, but did they get a lot out in the hosp when you had this drain put in? Was thinking maybe the fluid has slowed down a bit in production.?
Are you now feeling a bit more peckish? I do hope so. Anyway not too much salt if you can manage that. Also, still good to drink load of water as that will flush out the kidneys and help with the blood situ.
Re the injections, I always thought id hate to have to inject myself, but now im much happier to have control of the needle! Once the district nurse has helped you to manage, you will have a little more freedom…I go away with my syringes, in fact I want to be able to go to Oz one day taking the syringes obviously, which I couldnt do if I depended on other people. My partner hasnt been shown how, but he did help when I broke my wrist…I needed him to hold the syringe whilst I pushed the fluid in as couldnt use my left hand!
do keep in touch, you are always in my thoughtsxx
Moijanxx
Hi Helen
thank you for your post too. Yes it is very strange…because I was the only one on Erib until you both joined me… But I got used to chatting about it with you both. i see and chat to lots of lovely ladies when I go for my treatment, but none on Erib…actually many of them are on much nastier drugs, or are there for several hours. Yesterday there were a few men in there too.
yes, both of you have a peaceful weekend. Im meeting a sister of a very dear friend who died recently…tomorrow, she wants to keep in touch as we both miss her.
Everybody…have a nice weekendxx
hugs, Moijanxx
Hello eribulin ladies
Daily mail page 25 …Confirms now available to all ladies in UK ( including scotland) that have had two failed chemos.
Says its the first new drug in a decade made freely available to about 1500 more women.
Fingers crossed more drugs will be available soon.
Xxx
Ooh! Thanks for that Carolyn. Need Some company on here. Had my share again today. Feeling good so far
Moijan???
Hello there Ladies, hope you are still using this thread. I’m starting Eribulin on 30th November.
Andrea xxx
Hi everyone, looking for any tips about Erubilin, starting it in a couple of weeks, Capecitabine has given up on me after 8 months, previously had Fec and Docetaxol, Fec never worked and found Docetaxol really hard as had allergic reactions to it. Wondering how people are coping on Erubilin.
.
hi there Andrea and Gadsby, welcome to this thread. And to Eribulin. How lovely to have some more new chemo buddies!
Gadsby, am sorry to hear about your previous failure on Cape, I went through the same.
i have honestly found Eribulin to be a very easy chemo to be on. .
Some ladies have tried the cold cap…you have to start it at the beginning…and some hospitals dont offer it as they say its 50/50 wether you do lose your hair, so you could enquire if that is possible, if you wanted to. I had it a couple of times, but stopped as it more than trebled my time in the unit…
looking forward to hearing how you all get on with it
Hugs, Moijanxx
???
Thank for your reply, was wondering whether to try the cold cap didnt when on Fec-t and lost all my hair, found that very hard! Just scared after how awful i felt on Docetaxol, Cape was ok just usual side effects, bad stomach etc but prefer that to the constipation i had on the others. Been told Erublin is like cape, you can stop on it till it stops working, do you get breaks in it like in cape? Thanks Linda x
Moijan isnt Eribulin now available on the nhs, thought it was passed last week x
Sorry also posted as a new topic post, just getting used to the site ?
Hi Gadsby, i dont think so…i was told this last week, that drug fund rules apply. Its very expensive.
i think up until recenly, it needed three failed chemos…now you only need two before you can have it on the drugs fund.
Moijanxx
Hi Moijan, you are right, it says its set to be approved so we will see.
Gadsby…I see what you mean about the other new thread…you can go in and delete the title…if you wanted to…I think this thread has been going for a while.I i started one re needing a chemo buddy and find its very confusing going back and forth, too.
see how you feel about it.
Moijanx
Hi Marnster!
lovely to hear from you! Hope you enjoyed your holiday…an inspiration to me. Where did you go?
yes , my hair did that too…but its stopped now…havent shaved, just have a very thin layer left! All hidden under wigs.
glad the s/e are not too bad…havent had to take any antisickness drugs lately
hugs,
Moijanxx
Gadsby,
Regards your earlier post on this…i have been reading the earlier press and it looks as though Eribuln HAS beeen passed for general use on the NHS, wonder why my onc said that a break of 6 weeks means you cant ever go back on it…due to the rules? Perhaps its filtering hrough slowly?
anyway…its all good news. Hope you are doing ok?
hugs, Moijan???
Hi Moijan, that is good news! Start my treatment on the 1st so will see how it goes.
All the best Linda x
Or good luck on Thursday even Linda…
A xx
Hi lovely Cemo Buddies!
Just finished my eighth cycle…I think.
My onc said that I will be on it as long as it continues to work for me!
over the past three years I have had 4 drugs. In all, looking back over my tumour markers, They have been better on Eribulin than any of the others, and …still dropping miraculously, so take heart ladiesxx
My side effects have been: Baldness in patches, feeling angry at times…but Im convinced its wearing my wigs that makes me a bit stressed…slightly altered sensation in the skin covering my lower legs, less toilet visits, unless I keep my fluids up, the first cycle, I had a few sore bits in my mouth, but gargled with very dilute sodium bicarb and that went away( 1teasp in a glass of water in 24/24, kept that in a bottle and used it when neccessary)
i dont have any antisickness meds before the drip as found it made me very panicky…I do inject with neupogen/filgrastim to boost the white cells.
love and very best wishes for an easy ride and great resultsxx
Moijanxx ???