Has anyone recently started to take Extemersane? It is the only one that doesn’t contain lactose . I know everyone reacts differently, but just wondered what reactions, if any, anyone has had.
Thanks
Diane x
Hi Diane (again!)
It’s noticeable how few comments and threads there are about Exmestane on this site, compared to letrazole, anastrazole and tamoxifen, which I’m sure is an indication it is much better indicated than the other drugs. I have been taking it for a couple of months now, with far less side effects than when I was on anastrazole (or anastyzole as Rubycat calls it!). I do get fatigued still but my mobility is far less impaired - although I guess that could still happen, as early days!
Good luck with it and maybe compare notes as the months roll on?x
Hi there
I started taking Extemersane yesterday. I was started on Letrozole in February but the consultant swapped me because of joint pain and carpal tunnel syndrome. I too would be Interested in finding out more about reactions.
Kath
I’m interested to know if it causes thinning hair…I see it’s listed as a high risk.I haven’t had this with anastroxole and dont think I could cope with that too!
The first couple of weeks I noticed a dip in mood and insomnia, but this has now passed. Flushes are at a minimum too, although I noticed at work today anxiety kick starts sadly. My hair is very dry and I have lots of it. I was looking forward to the hair loss and loss of appetite listed as a side effect! Nothing yet though, so Treeze hopefull
Oops hopefully your hair will stay put! X
Although I have only been taking Extemersane for a few days I’m now really concerned about hair loss side effect. It was hair thinning with Letrozole and that seemed bad enough but I too couldn’t cope with losing what little hair has actually grown back after chemo! Am going to ring consultant about this as I can live with the joint pain and carpal tunnel syndrome.
Kath
Kath hopefully I can reassure. Absolutely no hair loss and I’m 2 months in - to the point I’m having to pay to have it thinned tomorrow!
I think those rads have a lot to answer for. However, I had crushing fatigue with Anastrazole and much less with Exmestane. The first couple of weeks with Exmestane I had nausea, insomnia and a real drop in mood. However, they did pass in a couple of weeks. Go kindly with yourself. I’m now 8 months post rads. My BC nurse warned me my head would catch up once active treatment finished and she was very right. Definitely much more me again, but I do wish I’d paced myself more immediately post rads x
My oncologist suggested taking at night time, which I did until the nausea passed. She said I’d sleep through it. I hope you have a fun shop planned! X
Thanks Janey. You’ve made me feel better. I also rang BCN today and she was reassuring too. X
Kath
That’s good Kath. The whole thing is very confusing - if anyone does lose their appetite …
I bet the heat doesn’t help. I was lucky and had only minor soreness on the skin, which I put down to the use of MooGoo moisturiser (thankful always to Charys for recommending) and aloe Vera from the plant - always lovely and cooling x
I think it was more like IBS but that and nausea lasted about 6 weeks I think. X