Extra lump found

I have had a mastectomy and after the op was told I had a lobular cancer hiding behind my original ductal one. Not Hr2 + waiting to see if I need chemo after oncotype results.
I am now worried that I could have cancer in my other breast as I know this is a sneaky cancer. The original cancer didn’t show up on mammogram scan or biopsy before op. Maybe it could be there and I wouldn’t know as in my first breast. Advice would be amazing as I am now worried and still not got results from my first op.
Thank you

Hi clobo1

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1 Like

Hello clobo1

Thank you for your post.

Mammograms are the best way to screen or assess the breast tissue for breast cancer. However, as you say, lobular breast cancer can be more difficult to see on a mammogram than other types of breast cancer.

As your lobular cancer was not seen on mammogram or ultrasound, it is understandable that you are concerned about how effective the mammogram was in detecting any changes in your other breast. You should ask your treatment team about this when you see them at your results appointment and how they plan to follow-up your other breast.

Follow-up after breast cancer is usually with mammogram on the other breast. You may be concerned that follow-up mammograms will not be effective in detecting changes, but it is still a useful tool in picking up early changes.

It’s not currently standard practice to have a follow-up breast MRI scan for breast cancer. However, you can talk to your treatment team about this, as an MRI may sometimes be considered on a case-by-case basis.

Talking to someone who has had a similar experience can often be helpful. Our Someone Like Me service can match you with a trained volunteer who’s had a similar experience to you. You can be in touch with your volunteer by phone or email and they can share their personal experiences to answer your questions, offer support or simply listen to how you are feeling.

You can ring the Someone Like Me team on 0114 263 6490 or email them at someone.likeme@breastcancernow.org, so they can then match you to your volunteer.

We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).

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Best wishes

Rosey

Breast Care Nurse

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As we are unable to monitor for further replies, this thread will now be closed. If you have any additional questions or would like to provide feedback, please start a new thread, call our helpline, email us or request a call back.