Hi Lynn, sending you a big hug! It is a truly sad event. I am sat in the car park at the hospital, had my isotope injection, urgh, canula took half a dozen times and lots of poking! Waiting now to have MRI and bone scan after. Beverley, hope it goes ok today. Sorry, your blood draw was an ordeal, too! Not worried about bone scan result, I really don’t think my back pain is bone mets but MRI result is making me sick with nerves. So many lobular ladies had bc in their other side, I don’t want to think about it… Hugs to all. Lynn, thinking of you, hope you get through the day ok! X
Hi all - sorry life is being so trying… Hope the car is sorted Pam - glad you got the right level of action from the surgeon. I also have found onc’s (espcially junior type ones) to be hopeless. Commiserations Lynn - a horrid anniversary. Hope it’s all gone OK Tina & you have emerged intact!! I’ve never had/been offered an MRI but imagine it must feel wierd. Sorry you’ve got so little blood left Beverley! It’s funny how the phblebotomists (?) always put the blame on the person having the blood test. Hope you are managing with your broken arm Wendy - is it 6 weeks in plaster? Hope you are not in too much pain. Good luck Paula with this week - thinking of you. Cheers to Marguerite, Cat, and all you other lovely ladies!
Maggyxx
Hi. Tina hope things are going as smoothly as possible for you. How long will you have to wait for results? Thinking of you.
Lynn I know what you been about the overwhelming deep sadness. I felt just the same. As I posted at the time it is strange because it is so overwhelming for you - you are even thinking if the exact time of hearing those fateful words, but others around you don’t realise the enormity of it. I think it is something you have to have been through to understand.
Had RAC out to get my car started this morning. Took it out for a spin and fingers crossed it doesn’t cause more problems.
Wendy thinking of you and how you are coping with your lack of arm movement.
Beverley I had to have blood taken from my wrist for pre chemo bloods as after first one the veins were really difficult.
I’m not expecting any treatment for the lymphphoedema. It doesn’t cause me many problems except by the end of the day it feels tight and tender. The surgeon said it was only mild. Px
Tina, thinking of you today. Petal, what a start to 2011! but glad to hear the car is fixed and the scans were all clear. Paula, good to see you online, do you know if you can join us in March? Wendy, hope the arm is healing. Beverley, was the problem getting blood a result of chemo? Lynn, thinking of you today, I hope that the sadness lessens. Maggy, hope you are well and getting some down time after the grandchildren. Cat, Leah, Anne, Claire, Elaine…and all, sending you lots of best wishes.
I am back at work, ready for a holiday already! I have decided to have my mirena coil removed and have a doctors appointment tomorrow. Its playing on my mind, my Onc has said its not a problem, but I have read that others say to get it removed. I hope that there is an alternative contraception. In the two years prior to my dx, we tried for one more child… 4 miscarriages later we woke up to the fact that it wasn’t going to happen. My Onc said that it probably contributed to my BC… any advice welcomed re alternative contraception. Either way, I am getting it out as was 100% ER and PR +
Marguerite
Tina, hope it went ok today. Lynn I felt exactly the same, it’s amazing though really what you have been through in the last year and what your body has been put through. I still have days where I think “oh that was before I was diagnosed”.
M - yes should think I will be there to meet all you lovely ladies in March!
xx
Hi, thank you all for your wishes! Got back home at 4.30, luckily my friend had arranged to pick the boys up from school. After the bone isotope scan was done (took about 25mins) the radiologist came and asked if I had any X-rays done on my lumbar spine, I said no and she said she would fill in the request form for me to have that done after the MRI. Went to MRI and the canula seem to have given up and it took a lot of saline to get it going for the contrast, then face down into the scanner after about 10mins got the contrast and then another 15 mins or so and when it was done I cried, no idea why, just got too much. Then off to X-rays. Wish I knew why she sent me! Have emailed BCN to find out. Results on the 12th. Beverley, thinking of you today, hope all went well today. Pam, glad car is back on the road. Wendy, hope you can manage with your arm! Lynn, hope you got through the day, it’s so hard when it’s all floating in your head… Paula, fingers double crossed for tomorrow! Marguerite, the utter misery of miscarriages, I have been there a number of times too. We decided it was OH’s turn to take care of things and off he went to the clinic… Sat on the sofa now, feeling a bit fragile. My hand is swollen & sore. Early night! Thanks again for all your kind wishes! It’s so good to know I am not alone in this! X
So glad that it is over with Tina, and so sorry that it was upsetting
Glad you are safely home Tina. x
Hi everyone,
Happy belated new year.Hope you all enjoyed Christmas.Just read all the updates since i was last on-loads.Feels weird to be one year on.Last new years eve I found my lump,so this year,me and hubbie stayed up till the early hours watching Jools Holland ,chatting and drinking-lush.
Next week I officially start back at work,yikes.
Tina it sounds like you had a real ordeal,hope everything is okay.
Hope you all have a fab time when you meet up-I’m sure you will.
Hair is not growing fast enough.Have abandoned wig,but it is very short.Everyone keeps saying-'oh you must be so happy to have so much hair.'Hmm I think not.Lynne I too have Katie Wassel hair(yuck).
I’m thinking about a revision of my recon,as it is not the same size as other breast and feels very firm.Kept hoping it would drop,but doesn’t look like it will.Also thinking about having ovaries removed and hysterectomy.Just want everything removed that I can live without,but at same time would like normal time ,without being prodded around.
Had lovely christmas,went to centre parcs the week before,very relaxing.
Hope 2011 is a good year for all of us,speak soon
Claire
Hi Lynn, sending you a big hug. Hope today wasn’t toooooooo awful and you’re enjoying some treats at home tonight!
The sadness accompanies us for some time… especially when triggered by anniversaries. I’m sure the tears are not far away at these times…
Hi Tina, your day sounded such a long one!
Hope you too are enjoying your evening at home but obviously the wait will be agonising for you. All so difficult to manage but I’m sure your boys will distract you as much as possible.
Good luck Beverley for tomorrow.
Marguerite, I hope your decision about coil is successful for you.
So sorry to hear about past miscarriages and Tina’s too.
We all experience our BC against such varied contexts.
Paula, I think you have an appointment tomorrow too.
Do hope it goes well…
I’m seeing medics about lymphoedema and osteporosis tomorrow.
My break has triggered quite alot of anxiety in these areas!
Coping,but it’s so tricky on your own… Today, an old pal came over and changed my bed and am just so grateful. Trying to cope with just left arm but main pain is from my coccyx, where I landed on the ice.
Living on painkillers and very little sleep is making me very edgy and I swear even more now…
Wishing you all a peaceful night and hoping tomorrow is bearable for us all.
Lol Wx
Hi Claire - good to hear from you again. Tina - sounds rubbish, everything crossed for you for the 12th, likewise Paula for tommorrow. Like Tina i’ve found myself crying also - thought i was getting through the day albeit quite down and sad but got worse when i got home from work - no mention of the anniversary from anyone at home, (obviously i’ve done a grand job of being “fine” ) i was quite glad the kids hadn’t remembered, that’s how i would have wanted it but upset that OH hadn’t remembered it was today. It all served to remind me that at the end of the day you go through this on your own. Yes with lots of support and love and care but there’s no escaping the fact that its you it happens to no one else. My M.I.L arrived later with flowers and a lovely card - cried a lot then, think it had been trapped inside until then. Anyway - all tears gone now, off to bed and will no doubt look terrible tomorrow.
Lynn
x.
Our posts crossed, Lynn.
Really sad to read your post. It was a tough day for you but I’m glad you had the recognition from your m-i-l.
Extra hugs winging their way north for you. Take care now!
Wx
Tina - relieved to hear you got through yesterday but what an ordeal, no wonder you were upset, fingers crossed for great results on the 12th. Do you get all the results on that day?
Paula - good luck for today.
Lynn - sorry you too had an upsetting day, not got to the actual anniversay of dx, that’s the 18th, but already I’m thinking of how I was feeling this time last year, waiting for the initial appointment on the 11th. I think a few people I know seem to have forgotten about the BC, like you say we must show the world that we are coping even if inside we are not.
Wendy - hope the arm is ok and things go well with your appointments.
M - yes the reason they had a problem getting blood is as a result of chemo but I always end up feeling it’s my fault when they are having to get 3 different people to try to get the blood. Good luck with your doctor’s appointment.
Pam - hope the car is ok now.
Claire - good to hear from you.
Well first day back at work under my belt, have mixed feelings and will have to see how it goes next week. Had my return to work interview and had asked for no “front of house” duties and not to answer the phone for the first couple of days. They said they would accommodate this, unfortunately didn’t quite work out as planned as there wasn’t a room free for me so had to work in reception for 4 hours. I ignored the phone when it rang but found that very hard to do and felt quite stressed by the end of the day. I spent most of the time going through 374 emails from last year!! On a positive note everyone was very nice and pleased to have me back. Felt quite tired last night but didn’t sleep well when I got to bed.
Love to all
Beverley xx
Paula hope all goes well for you today.
Sorry to hear of your sadness yesterday Tina and Lynn but both very understandable. But that is behind you now, you have taken another step forward and got through it. I’m sure that your busy life will help you with the agonising wait for results Tina.
Glad that you are getting some help Wendy. Hope that the coccyx pain ceases soon. Do you think you may have cracked that as well?
Well done Beverley on your return to work.
Good to see everyone posting again. It is good to hear from you all. Px
Hiya, just popping on to let you know all was fine today thank goodness! So it was a much better trip to the breast clinic than my 1st time!
xxxx
Paula! Hurray! Good news! So very very relieved for you! X
Wonderful news Paula. Great relief. x
Fabby Paula.
x
Wonderful news Paula x
Great news Paula
love
Maggyx