I don’t think compression is a bad idea if you’re comfortable with it, neuropathy is still a potential side effect of EC just not as common as on Paclitaxel/Docetaxel. I’m lucky my hospital said they can provide the ice gloves, but I have read a lot that compression is just as good. Neither have been especially tested.
I’m sure you’ll be fine, all the waiting doesn’t help though, so be prepared with lots of things to distract you… I’ve been here for 2.5 hours and haven’t even started yet!
x
I would definitely listen to the experiences of others rather than whoever is telling you you don’t need them. Loved experiences cannot be doubted. I’m on EC and for a few days during the cycles have had a bit of numbness/tingling in my fingertips.
Oh no and there’s me thinking I will be done and dusted in 3hrs tomorrow🤣
@moonandstars1 @diepgoat no way. My oncologist said it would be just a few hours. Mine is at 8.45am. Picc line already in so no messing I hope xx
Thats good to know. I know I need them for Docetaxel. Im sure they will go through in pre assessment Monday xx
I don’t feel so bad now trying to finish laying laminate flooring the night before 1st chemo - definitely took my mind off it! ![]()
Ive been a bit out for the count today so only just catching up.
Hi to all you new ladies ![]()
I still find it crazy how everyones been told different again this time regarding the ice gloves and socks, this was one thing I really questioned as the sport i do requires grip strength and i was told they would make no difference and that my oncologist had even wrote a paper on it
I have only got 4 cycles of docetaxel and cyclophosphamide so whether its because of that as i know some of you ladies have a lot more cycles.
I’m having 12 weekly infusions of Paclitaxel and nothing has been said to me about cold gloves, socks or compression. I know neuropathy is a risk but no one has suggested to me it can be avoided. First one is tomorrow so I’ll see if it’s mentioned…..or if I remember I’ll ask!
On a different note has anyone else read that we shouldn’t be eating grapefruit on chemo? I love it (and the juice) but the internet definitely says don’t have it. The oncologist and BCNs said the only thing I had to avoid eating was takeaways cos of hygiene issues.
It says about grapefruit in the paperwork I was given! I was doing myself some egg noodles and beansprouts and just seen i cant have beansprouts ![]()
It was a particularly busy day there, and there were other reasons I was kept waiting so long, so hopefully you’ll be in and out nice and smoothly!
x
It was an unusual sequence of events that meant mine took so long, so I hope yours goes much more smoothly!
x
So, no chemo tomorrow. My blood results not back in in time. Moved to Wednesday. Not Happy!!!
This is what sent me into a panic most before I actually started chemo. All the different do’s and don’ts you see posted. It seems everyone gets told something slightly different by their team, and everyone’s personal experiences are different too.
I was terrified trying to remember about oiling my nails, salt mouth rinses, no grapefruit juice, keeping moisturised, avoiding SOME supplements but not OTHERS… As soon as my first cycle started I gave up and pared it all back.
Between the list of things I need to be paranoid about to prevent lymphodema, to prevent or deal with side effects in chemo and to look after my SMX scar for radiotherapy I just can’t - and I have the ability to worry about a lot of things!!
I’ve sort decided to just stick with what I’ve been directly told by the very matter-of-fact senior chemo nurse to avoid, and ignore a lot of the rest or go with what feels right to me. Eg: she said normal multivitamins are fine, just no weird Chinese herbs or anything like St Johns Wort. I’ve been oiling my nails to help keep them healthy through my own choice after research. And I’ve been eating 1-2 takeaways every week for the last 10 years, I’m not stopping.
This turned into more of a rant than I expected, but it’s just so confusing with all the mixed messages. It made a lot more sense once I started chemo and I knew what side effects I was dealing with.
Oh no @vizsla_mum bet your gutted, im sorry thats happened to you xxx
They said I could go ahead with it but would need to do it without the cold cap.as it would be an afternoon session, and there wouldn’t be enough time for the cap. Think you need to add on time either side. Disappointed and a bit angry. And a little sad!! Just want to get on with things x
@vizsla_mum im so sorry. You must be very frustrated.
Bless you, I can imagine your feeling all sorts of emotions. Have something nice for your tea and make the most of the extra time. My highlight of the week food wise has been Jacobs Cream Crackers and i love food! Go eat nice things girl and things always happen for a reason, sending lots of love xxx
@vizsla_mum why would they let you go ahead if bloods arent back!!
Does that mean you will have to go through all the bloods again ![]()
I am having bloods saturday for chemo on Tuesday
that is the plan after reading your frustrating delay ![]()
Hi Ruby I have the same, I was told it’s to check how you are doing after the 1st round