Jude51 thanks - the appointment went well and I am all set to start at 2pm tomorrow. Our night out was excellent. Faces sore from laughing so just what we needed to take our minds off everything. Also decided to have the Valentine’s meal tonight just in case I don’t feel like it tomorrow night. Great way to relax before the treatment starts. Feeling positive.
I was diagnosed with grade 2 invasive ductal Breast cancer on 13th December and had my first chemo on 1st February …second due on the 22nd Feb. I am considering myself very lucky as so far the only side effects I have had is extreme tiredness. I’m scheduled for 6 sessions of chemo followed by surgery then 3 weeks radiotherapy. It’s good to be able to speak to others in the same position
Hi Katie - you are on same journey as me -good luck and hope you stay well with few side effects.
Hi all, 1 down only 5 to go! Feeling a bit ropey today but had a reasonable night. Just taking things easy. Macneech I hope things go well today. I opted for the cold cap. Found it was okay. Looked like something out of Dr. Who! Hope everyone is doing okay x
Hi Katiebash looks like you have a lot ahead. I know exactly what you mean about the waiting. It was good just to get started and know it’s under way.
Hello ladies lovely reading your posts. I haven’t been too good since my 1st Fec on Monday was very sick Monday and Tuesday yuk not so nauseated today so far but just really tired and lost appetite. Keep getting back ache . Hope you are all ok and doing well got 2nd cycle on 5th March if bloods are ok but not looking forward to it x
Katie - i know what you mean. Although it wasnt plain sailing the first week after chemo i too am looking forward to my 2nd chemo 23rd feb.
Chrissy - sound like you’ve had a rough week,hope things settle soon. Have they adjusted your meds or have you just stuck to what they’ve given you ? I had a big dip on day 5-6 and felt rubbish, think it was a combination of finishing steroids and the injections - guessing thats whats causing your back ache ??
Macneesh - hope you get sorted too and things settle soon.
Take care all xx
Hello jude51 thank you for your post.
I was given emend on Monday before having FEC and then a reduced dose tue and wed.
I also had dexamethasone for 3 days and finished the last one at 4 pm today.
So I am only taking domperidome 10mg as needed.
Today I haven’t had nausea thank goodness but have lethargy feel like a 90 yr old and no appetite. Never felt like it before so drained. I am not having any injections ( what would that be for?).
I have been having back ache for the past 6 weeks. I had a bone scan just over a week ago but no results as yet.
I hope everyone else starts to feel a bit better soon thinking of you all.
chrissy xx
Evening all
Macneech - hope your nausea passes soon - just try to rest as much as you can and take as many antisickness meds as you are allowed - don’t suffer.
Chrissy - gscf injections for 7 days are often given to help your bone marrow produce more white blood cells and a side effect can be bone ache. Apparently Epsom Salt baths are good for bone ache in case that helps.
Katie - I know what you mean about being more chilled now treatment had started- I feel the same. I like your thinking - after next one will be a third through it ?
Hope you all have a good nights sleep and feel better tomorrow x
Morning all - hows everyone feeling today ?
My main issue is the lovely taste i have in my mouth !
Your poor things, those of you being sick 
Did you get any anti-sickness meds at all? I was given steroids before, then metoclopramide while being given the chemo, plus a box to take home with me and instructions to have them for 3-4 days.
Jude, I stocked up on herbal tea as normal tea tasted weird for about a week, plus M&S sugar free sweets. The inside of my nose was sore and bleeding too, but that seems to be healing up now. I had a cut on my arm and last week that was weeping and wouldn’t heal. A clear sign of low platelets I think. But it’s healed up now. I’ve been back at work this week and despite going to bed earlier than usual, feel pretty much fine.
Hello everyone, I shall be keeping an eye on this thread. Im starting EC on the 20th for 4 sessions then 4 of Herceptim plus the P one for HER+
Am very frightened of the SEs but as the days are getting closer to the first transfusion Im feeling a wee bit better. I’ll be at the Royal Free London.
Many thanks to you all for being here,
Cuddles, (which I will need plenty of!)
Hi there Cuddles, the waiting is the worst part. Once it gets going you will feel that progress is being made. I have had my first session of FEC which wasn’t pleasant but could have been worse. I have been fairly lucky so far as the anti sickness drugs have been working pretty well. Just feeling pretty wiped out. Fresh air seems to help. I am just listening to my body when deciding what to eat and trying not to worry about it too much. At the moment juicy things are most appealing e.g. oranges, blueberries, grapes, salads and black olives.
Just to note, i’m on day 17 of taxotere & cyclophosphamide, and hair loss is starting. A few strands landing on my shoulders the last couple of days, and today my crown is tender and 5-10 strands coming out when i gently comb fingers through my hair. I haven’t used the cold cap. Here we go!
Think it’s starting for me too - day 16 but my thinning seems to be from the lower regions…that was a bit of a shock !!
Morning everyone and welcome Cuddles - the waiting to start is the hardest bit I think - hopefully you will feel better once you get going. The side effects really do very for everyone- I have been very lucky and had few side effects and since after the first 5 days have felt fine.
I haven’t noticed any hair loss from head yet so hopefully cold cap is working ?
I did go and buy some products in preparation for losing eyebrows - need to practice how to draw them on now - a little mother daughter bonding time with make up coming up I think.
Keeping active with walking and yoga but find I get tired more easily than normal - plus side of that is I quite enjoy a little afternoon nap or box set whilst on sofa ?I find I still don’t fancy citrus fruits but eating lots of veg and homemade soups to get my vitamins. Think I would struggle with fasting - have tried it in past but I have decided just to try to eat healthily. I wanted to eat a lot the first week after having steroids and developed a bit of a cake craving - think I will be more prepared next time and have a box of veg sticks, nuts, hummus, boiled eggs to snack on - I have read that protein snacks help to curve hunger cravings and I’m vegetarian so those are my go to snacks.
Have a good day everyone x
Hi ladies sorry I’ve not been in touch have had a horrible week but the nausea lasted 3 and half days just sooo exhausted now I know what it must be like to feel 90,
ive got no appetite everything smells yuk mouth like leather back ache and so lethargic. My head has started getting a bit itchy too. Sorry for moaning ,
hospital rang ant me Friday they want to repeat bone scan in 3 months not sure if that’s good or bad. So roll on the sun I’m going to try to go out tomorrow if it’s nice as I’m like a hermit.
hope everyone else is getting on ok I’ll be day 7 tomorrow following 1st FEC but it still seems all surreal dispite the side effects.
Hi all, hope you dont mind me joining in.
Have my first session of TC chemo tomorrow after being disgnosed with inflamatory BC last month, not looking forward to it, think its cause I know what to expect, 2nd time round for me, although I had FEC-T in 2016 but still similar side effects I think. I have a PICC line this time so at least I dont have to worry about them not being able to get the cannula in.
I found this forum really helpful last time, it feels less lonely knowing others are going through the similar and understand.
Hope everyone is doing Ok with their treatments.
Julie
Oh, Chrissy, the first week is very much the hardest part, but you should hopefully start to feel better from here on. My second/middle week has been good - i’ve mostly felt completely normal - but I have planned no commitments now for the first week after the next treatment as last time I couldn’t get comfortable due to the bone aches and couldn’t focus properly.
Glad you’ve had a good week Bibi. Long may it continue!
And welcome Julie. So sorry you’re back here so soon. Me too, also on TC, but mine is invasive ductal and 8 years ago, rather than inflammatory. Fingers crossed it goes OK tomorrow. I’ve found the bone aches hardest and worse this time, but I wasn’t sick before, and haven’t been this time either. I think you’re either prone to that or you’re not.
Hugs to everyone xxx
Am feeling very fortunate that I don’t seem to be suffering the same degree of sickness as others. The drugs seem to be working so far but I hope it doesn’t all go downhill when I finish them. I have found that fresh air helps and my husband took me for a walk at the beach today. Just perfect. Hoping for a good sleep tonight. I have found it quite variable.
Flora, that wig looks great. It’s reassuring to see how natural it is. I have chosen one of a similar style but still to collect it and don’t know how I will actually feel about wearing it. At the moment my hair is quite long but I want to get it cut soon before the chemo really goes for it.I have changed to a paraben free shampoo and conditioner on the advice of the nurses because of the cold cap but I really don’t like how it has left my hair! It might as well be short if it’s going to be minging!
Main worry now is that I haven’t had a poo since Friday despite all the fruit and am eyeing up the senokot in the medicine cabinet…