Hi all
I am shattered but feeling accomplished as I have done over 10k steps, been at work for a few hours today and been to see Suggs (from Madness). Not feeling like a cancer patient today despite shedding hair everywhere I go! On the plus side I don’t need to wax my legs or anything else for thay matter so I can save money ??
Love n Hugs to you all
T
xx
Suggs - jealous! What a wonderful pick-me-up. And great you’re feeling so well.
I’m hoping my legs start shedding soon although it’s been really useful having that extra layer of fur during all the cold weather ?
Hi Wee Burd
Sorry your still having issues with veins and stuff xxx. Oh I laughed and laughed so much I sound horse but omg I needed it. Laughter is definitely the best medicine. Whole heartedly recommend seeing him. Leg hair is being stubborn but definitely less than it should be after 6 weeks since my last wax. The intimate hair started going at the weekend like my head hair. Must be more delicate ? xx
You look great! It isn’t what we’d choose, but it suits you! My bristles are still coming out each day but I might get hubby to shave the last bit a bit shorter now.
Thank you Moijan and Macneech
Macneech I don’t have any type of life insurance anymore but it’s not a problem as I have no dependants. However, I did claim on a critical illness policy 15 years ago and it seemed quite easy to do from what I remember. It paid of the mortgage I had at the time. Shame I have no cover now.
T
X
I’m taking Kefir and have started making my own. I haven’t checked with the oncology team, to be honest, but I have only read good things about it. I haven’t had any constipation on this chemo round so far, although I am also taking some Sennokot just to be sure!
Gave myself my GCSF injection yesterday, so a bit still and aching today. But so far, things are OK on the abraxane. Early days.
MissGreen. Took a leaf out of your book today and went for the shave. After trying to wash it yesterday and ending up with more hair on my hands I gave in. Don’t look as good as you but I feel better now it’s done.
Another plus is my bloods are back up . From being 0.2 on Monday they are up to 2 today so chemo number 2 due on Monday.
Wee Burd any news on a date for the Hickman line? It will good to know you can get your treatment without the fight for a vein.
Have a good weekend everyone xx
Miss Green - you look great - well done!
Macneech - what a shame about your cruise - but great you got money back and you can look forward to rebooking. I have claimed on a critical illness policy - was paid within a couple of weeks - with Legal and General.
Flora hope the aches with the injections are not too bad - have you done them yourself? I have to get hubby to do mine - just can’t make myself do it.
Juju- good luck on Monday hope it goes well for you.
i’ve been feeling really well this week but think I have overdone it a bit, walking and cleaning and I’m really tired and achy tonight- planning a v lazy day tomorrow.
Have a good weekend everyone xxxx
Re Paclitaxel …doany of you get sore, aching muscles at all’? I find under my bra straps and along under my bra at the back is very tender.
also I get a reddish arm on the 3rd day which I thought could be cellulitis, but don’t think so now as it goes away…but my arm muscles hurt if I do too much.
be greateful to hear if others had the same?
thank you
Moijanx
hi everyone, sorry I’ve been quiet but it got to my 3RD week post 1st EC chemo and I felt so well that I overdid it, I ran around, cleared out my dad’s garage and had some gin and tonics and boy am I suffering now. I’m very annoyed with myself. I just feel lncredibly tired and sick and my portacath hurts like mad.
And the hair is falling out slightly. Scalp hurts too. I’m wondering if there is any point trying cold cap on second chemo, the nurse was rather negative on it’s general effectiveness…
Had the haircut, poor hairdresser was more sad than i…doubt the cut will last…
Hi everyone
The hair thing is a real issue isn’t it? Such s huge part of us. IWould rather another round of surgery than lose my hair. I completely admire everyone who has shaved their heads. Miss Green you look great not sure i would suit it. I am Day 5 2nd TC and am using cold cap (used both times) have lost handfuls and handfuls of hair have a sort of thin bald spot on crown of head ( now in competition with hubby!?) But am still desperate for cold cap to work. My hair is so thin now but still have quite a bit so with an attractive comb over option am going to stick with it until more bald patches either arrive or it all completely falls out. Am sure I ll know wether worked by day 19! So I would still advocate the cold cap and think for me at mo it sort of working.
Take care everyone xx
Aawww Cuddles. Hope you feel ok soon. Take some pain killers if you need to. Don’t fight it. They say listen to your body but sometimes it doesn’t tell you until it’s to late.
I understand about the coldcap. I did it 2 years ago when i had chemo and by the 3rd session I had to wear a paper hat as I had lost so much hair. And it’s uncomfortable and adds so much time to the session. So i stopped. Havent dine it this time. Had to shave my hair friday as it was coming out so fast. Only issue is i dont like my wigs anymore, tried them on yesterday and hated ghem. Ive lost 3 stone sincd last time so ghink my facd has changed that much they look awful. Trying with scarves this time. Wouldn’t go out last time without my wig. Head still a bit sore at the minute so scarves are definitely better.
Kitty75. I had a friend that cold capped and it worked for her. Although she did stop after the 3rd session as she didnt liks it. But a woman that my husband works with has just finishec 6 sessions and cold capoed and still has a decent amount of hair so I would definitely say to anyone to try it if they want to. Everyone is different.
Hope everyone has had a good weekend. Good luck to everyone having treatment this week.
Take care xx
Feeling a bit down today. I was expecting to have a letter from the hospital about getting the line in tomorrow but all I got was a letter giving me another oncology appointment in 2 weeks. Have phoned to find out what’s happening and waiting for a phone call from the breast care nurses. Feeling as if I just have to hang about and wait instead of getting on with my day.
It doesn’t help that my hair is now coming out. No actual bald patches yet but it feels much thinner than usual.
Moijan I had sensitive skin around my jaw line and across my shoulders during week 1/2 of my first FEC but I don’t think paclitaxel is one of those drugs.
Keep well everyone. Be good to yourselves.
Hi all just checking in. Hope you’re all as well as you can be.
Sorry you’ve not had your PICC line yet WeeBurd. I can honestly say I am so pleased I had it done.
I had an apt with the Oncologist before round 2 today because of the side effects. I found out I am already on a reduced dosage of Docetaxel of 75% and therefore it can’t be reduced again. I didn’t know i was on reduced. Onc thinks it’s this that caused the dizzy/disorientation and not the chemo tablets. He asked if I had been on it before and I think I have but it was so long ago … FEC-T ( i believe the T is taxotere which is Doxetaxel). At least I know what to expect now. Have an apt to see him again on 28th before cycle 3 to see how I am doing. Got extra steriods and tablets for oral thrush… shake me and I will rattle ?
Love n hugs to you all
Teresa
X
Hi all
I know what you mean Teresa about rattling with all this medication, never taken so many pills! And these awful injections I HATE them!!
Hope you feel better second time around.
Macneech am on same day/cycle as you although on TC not FEC and I too can only manage 5 mins upright before having to lay back down. So tedious can’t believe I used to run 3x 5 km a week a few months ago can barely get up stairs at the mo…
I am having loads of headaches too not sure if SE of cold cap or treatment?? Think I need to drink more but just don’t seem to be able to.
Weeburd I do hope your BCN rang you back with plan re PIC. Must be so frustrating for you.
Jujubee thanks for hair advice. Appreciate it.
And cuddles hope your having a better day today and that you ve managed to rest.
Take care everyone xx
Hi All, hope you’re all well today. My spirits are being lifted by some sunshine and blue skies although still feeling scunnered (as we say in Scotland). I can’t get the line in this week so round 2 has been postponed again until next week when I should get the line in and get the chemo on Wednesday. In some ways the waiting is worse than the treatment! Still, it means I should be able to catch up with a couple of friends before the next round starts although we will now have to cancel a short hotel break that we had booked on impulse thinking that it would be in my “good” week. Hey ho - I suppose these are the ups and downs of cancer treatment.
Keep well everyone. Big hugs all round x
Hello ladies,
weeburd- so glad you having line next week keep
strong.
jude51- thanks for hydration advice. You are so lucky you’ve not had fatigue
miss green - hope you feeling well
kitty75 - I’m joining you on rattling with pills
macneech- hope you feel a little better soon x
moijan - I’ve asked for reiki waiting for gp to allow it been told not to have any other therapies during chemo .
Jujube - have you managed to get on with your wigs yet ?
cuddles79- hope you coping with hair loss
if I’ve forgotten anyone I hope you are coping well.
so yesterday I finally had my 2nd Fec after being neutropenic . They have prescribed ondansterone and cyclizine this time and finally Gcsf for 3 days ( I was told before that I couldn’t have it) . Yesterday I felt like chemo coma was in bed at 5pm TIL 8 this morning !,but I’ve had no sickness and touch wood nausea unlike the last time. I’m just tired and a little reflux and rattling with all the medication. Fingers crossed x
Good luck to everyone xx
Evening all. Well was a bit daft today, had 2nd treatment yesterday, got up this morning and felt a bit tired but ok so decided to go to work, struggled with tiredness all day so may have a couple of days off, will wait and see tomorrow but not going to push myself, not worth it, dont win any medals.
Wee Burd, good news about the line, I know the delay is a pain but it will be fine after next week. I love Scotland, the Isle of Mull is my favourite place, its so peaceful and relaxing, cant wait to be able to go and again when all this is over with. Dont think I could drive all that was at the minute,
Chrissy68. tried my wigs on, they dont look right, I had a blonde one which i wore all the time last time, and a darker one, ive lost 3 stone since my last chemo and i think with the way my face has changed shape, its a lot thinner now, I am going to have to get a new one that suits me, disappointed as could do with out the expense but will try and be sensible and get one near the £90 voucher amount and not a dear one. just need to get round to making an appointnent now to go and get one.
Hope everyone else is well and coping OK.
Take care all xx
Evening everyone - I’m just sending everyone hugs as we all seem to be having a few niggkes and things to sort.
I’m due to have round 3 of my FEC on Thursday - have been away overnight visiting family - felt great but think I overdid it again today. Went for a longish walk by the sea - live so far from it that I was longing to feel the sea breeze - was a gorgeous day and really enjoyed it. Then went to an exhibition, but think I went to long without food or had just done too much as I felt really faint - almost hypo - and had to sit down and eat and drink. Took ages to shake it off - scared myself a bit - so tomorrow after giving my blood before chemo I intend to do nothing to make sure I can do round 3.
Im not looking forward to that feeling of nausea and having to be horizontal for a few days - now I know what’s coming it’s horrible.
Sorry this sounds like a moan - have been feeling quite upbeat but am really tired.
Stay well everyone and look after yourselves.
Good luck with the bloods and the next round Bibi. I know exactly what you mean about sea air - it feels so good and is a real pick-me-up. Rest up and gather your strength and fingers crossed that the side effects are kept to the minimum.
Chrissy and Macneech hope the nausea and exhaustion is wearing off now and you’re beginning to get back on the upswing.
Good luck everyone with the next stage.
