On the 18th February, I was referred to a different local hospital, having been diagnosed with high grade DCIS, because of issues I had with misdiagnosis and other elements of my care. In those 9 weeks, all I’ve had is an MRI. I still have no treatment plan and no upcoming appointments booked and I’m feeling really stressed - probably more so because I know I’ve had cancer in my body for at least 18 months now (thanks to it being missed).
The cancer grew from about 2cm to 8cm in 5 months and, in the 2 months since my referral, I’ve felt another large increase in size too. Two surgeons have said they think there’s potentially invasive cancer too because I have a very palpable lump, so I’m scared all this time passing just means a lower chance of survival. No-one seems to be prioritising treating me and I feel like there’s no point. My self worth is in the pits and I feel like giving up. When the guidance is that early intervention saves lives, it doesn’t seem like any medical professional is really helping that be the case for me.
My MRI was two weeks ago today and I was told this was how long it could take for results to get back to my consultant. However, I know they’ll then wait for an MDT to discuss it before booking an appointment for me that will be weeks away. I’m tired of waiting.
Hi
Did they allocate you a BCN? I would definitely give them a call and chase or ring the breast care department or your consultants secretary. Do not sit there worrying yourself silly.
Let us know how it goes xx
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The letter for my MRI said it would be two weeks before results were sent to the consultant and this would then need to be discussed in an MDT before I had an appointment scheduled, so there’s not much point in chasing them when they will only have got the results around about today. It’s just stressing me out how long there is between each appointment and seeming to be no further on in terms of getting treatment.
I just thought if you spoke to somebody you could find out if results were back and when the mdt meetings were held, as this is sometimes one day a week. I used to be given my future appointments by the BCN at the appointment I was attending.
X
MDTs are Fridays. The other hospital used to give me appointments when I attended, but this one just sends out letters because the nurse/consultant apparently aren’t the ones who schedule them. On one occasion they were hoping to see me the following week, but it turned out I couldn’t be fitted in for three weeks - and then, at that appointment, all they did was tell me they would book an MRI, which was another theee weeks later!
Fingers crossed you may hear from them on Friday
Xx
@anon50128939
Hi sounds like your going through a rough time ,I know the waiting is frustrating but hopefully once all results are in and mdt meeting has been done 
you will get some clarity on what’s going to happen next x
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Hi there
I am in sort of the same situation. My first mammogram was on the 18th of March. Had to chase results where I found out they found micro calcifications. That was in a Tuesday 3 weeks after mammogram. Had a call the Friday to come in for US which then turned in to a 3 hour appointment. They preformed a biopsy through US on said calcifications and one under the arm. Got a call a little of over a week later to say all came back benign but had to come back for a stereotactic biopsy which is guided through mammogram. Because they biopsied the wrong place. Had to chase that appointment for about 5 weeks. Had that done and doctor doing that said to me on leaving to my trained eye it does not look like a concern. You should have a call in 2 weeks dismissing you from the clinic. Fast forward 3 weeks later a call from the consultants secretary I was under to come in a week later for results to be told I have dcis and it if I have to have cancer this is the one I want. Lumpectomy and radiation discussed as a treatment plan but first had to come back a week later for mri. Had the results of MRI a little over 2 weeks later on my birthday July 23rs to say basically found other areas of concern in both breasts. The term the bc nurse used was you have very busy breasts. I am now still to receive an appointment for more ultrasounds and biopsies guided through MRI to find out what these new findings are. I am so stressed and completely on edge. It’s been nearly 5 months and I am hanging on by a thread. I am emotionally exhausted and don’t think I can do this anymore.