Not sure where this post should go but I have been feeling a bit down on my latest cycle of navelbine. This should be my week off and I am by the seaside But I have felt so naff I have barely been out of the flat. I suffered naseua cos anti sicks weren’t very strong but that was ok because I would avoid constipation. Wrong! I am just shifting the dreaded constipation now and have spent the week with no appetite and a bloated tummy. I have bone mets and my onc told me spread was inevitable on last visit. I am starting to wonder if it’s worth putting myself through all this. I am fed up with feeling ill or tired. I was dx may 2010 and have had stuff done to me ever since. Reality has now set in that this is now my life. I had mx nov 2011 followed by rads which hit me harder than I expected. Can someone come along and tell me to sort myself out please. I just feel so fatalistic wondering how long I have left.
X Sarah
Sarah
I can’t tell you to sort yourself out as I’ve no idea what you are going through but I can send you a ((((HUG)))) until someone more wiser turns up.
Axx
sarah I can’t begin to understand what you are going through but you are entitled to feel fed up at times given your history. You have faced up to non stop treatment since May 2010 so no wonder you feel like you do. Also with secondaries its so unpredicatable but I don’t think your onc was very helpful to say its ‘inevitable’ that it will spread! I am no expert but I have picked up that everyone is different and responds differently to treatments and there are always new treatments coming out.
Constipation is horrible and to be honest its probably one of the worst se for me as it does impact on your life significantly and stops you eating/drinking and makes you feel so down and unwell. I am not going to tell you to ‘sort yourself out’ but be kind to yourself - get your constipation sorted I am sure you know what ‘works’ for you. If not go to your GP and get something to sort it. I think then you will get back to the old you and living your life to the full. take care and lots of hugs xxxx
The worst I’ve felt through this whole thing was constipation - so I can sympathise. Had follow up with Onc at the hospital this week. I went to the loo before my appointment. It all came flooding back (not)!
MOVICOL and drinking lots of water was the only thing that made me feel like I didn’t want to die…
Good luck.
Hey Sarah,
I’m so sorry to hear your not doing that well, I would like to back up what saffronseed has said about secondaries and spread there are plenty of ladies on here who have bone mets and have been living with it for years like dawnhc and scottishlass, I do really understand what your going through its been a long time fighting this disease and have myself had moments where I feel fed up and just want too stop all the drugs, as you know I have mets to my lungs, you were a great source of comfort and support in my hour of need back at xmas, please don’t give up yet, maybe tell your Onc or BCN how you feel and see whether they can change the navelbine to another? or maybe change your Onc by the sounds of it telling you it was inevitable that it would spread does not sound very positive NO ONE KNOWS whether your cancer will spread or not. You could try your GP for some anti-depressants if your depressed, I have tried them for hot flushes but was worse on them so stopped taking them, now on clonidine for hot flushes and migraines so far feel fine and as a bonus not so anxious.
Constipation is something i suffer with as well and like Mrs.Tee have been using senna switched to Movicol, and germinoids which have been a great help, also eating apricots and prunes always helps.
Don’t beat yourself up, you’ve come so far and are such an inspiration. Thinking of you.xx
Love and light
sarahlousie xx
Hi Sarah, I don’t really have much that is helpful to say. I don’t know and can’t imagine what it would be like to have treatment for as long as you have and you have had such harsh treatments too. Loads of Tax, plus your bone juice on top of mx and rads and now your new treatment. Any part of that would knock anyone for six and you have been amazing through treatment.
So far as I know any secondary bc technically is being treated on the assumption that they MIGHT spread but that doesn’t mean that they WILL. To me there is a big difference and the onc is wrong to put it to you that way. Mind you I am not sure that bedside manner and good cheer go hand in hand with being an onc. Don’t know if it is the same onc I saw but he scared me to death and I came out feeling terrible just from that alone.
You have come such a long way. Your primary has finally gone and has been zapped. People live with bone mets for years and they are getting on top of any remaining nasties with this current chemo. Doesn’t sound as though it is an easy ride by any stretch of the imagination but at least it is bringing tumour markers down which is what it is meant to do.
Sorry you don’t feel good, hope your second opinion shows you a better way forward and that they have something useful to suggest on treatments which you may tolerate better. Sending you hugs - and offers of coffee and a catch up sometime when you feel better? MG xx
Hi Sarah
Constipation and nausea - doesn’t get much worse than that! You have all the other stuff as well. I agree with the other posters that your Onc needs to improve his bedside manner.
You inspired me to try knitting again- never was any good at it but managed to make a scarf with tassels for my grand-daughter. With the undiscerning of a two year old she was delighted with it.
Just wish I could wave a magic wand over you- sending a big hug and lots of love- hope you start to feel better soon -Diana x
Thanks guys.
My onc is actually brilliant and has been treating me aggressively. It was almost as if he had researched a speech and had to say it despite the fact that tms had come down. I will see what has happened on this cycle. I have a lot to tell him. Feeling more upbeat now though thanks to you all. Am stealing an extra day by the sea so that I can get out and about a bit
X Sarah
Hope you are feeling brighter and that you get to enjoy your extra day by the sea, it is beautiful here (even if I have spent the day taking stuff to the tip!!) Sending hugs <<<>>>xx
Hi Sarah,
Just popped by to send you some loving thoughts and wishes. Enjoy yu extra day at the beach.
xxx