Hi all just wondering if any feel like me I am 5 years post diagnosis I just feel so lost and doomed this year . Maybe it’s because I didn’t think I would get this far I had bad diagnosis oncologist even said it might come back can’t ever shake those words . Every ache pain is secondaries I’m terrified going to doctors I love life and have really tried to enjoy life what with holidays and fundraising for breast cancer care . . It would be nice to know one way or another instead of this waiting game . I am sorry for venting but don’t know how to shake this xx
Sorry I can’t help but Thank you for posting. I’m three years on and feel exactly the same. I had an aggressive Grade three cancer in nodes and also live with massive recurrence fears. It’s a balancing act between gratitude of my current good health and sadness at what I’ve gone through and the possibility of letting my guard down too much. I think as I was so happy before the big C I just grieve my old life I try to be positive and happy but some days i just feel broken inside .I had a chest X-Ray and a nuclear bone scan recently for rib pain thankfully all clear but may be it’s triggered my trauma again I’m sorry I can’t offer more but you definitely aren’t alone here x
All I can say is you aren’t lost when you have the courage to post on here. You will no doubt, inspire replies which I truly hope will help you to keep going. OMG, it is so hard. All of it. Diagnosis. Treatment. Aftermath.
Wonky X
Here’s the article. I found it when one of the nurses here posted the link : workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
I read it every day. I’m still waiting to get my first ‘all clear’ letter and my husband is a wreck. It doesn’t matter that it’s now been two weeks since the mono-mammogram so the news will be good. My heart lurched when I read your post. I really feel for you. This first experience has been hard enough (I was numbed out/in denial from diagnosis through chemo to end of radiotherapy) but to live with it all the time sounds unbearable. I doubt the article will make a difference but maybe a regular reminder might be a distraction (better than a jigsaw).
Take good care of yourself and don’t give up xx
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Hi Rockstar. I’m just over 4 years post diagnosis. Mine was Her2+ And grade 3 also. The side effects I’ve had from treatment are continuing. Herceptin was stopped early because of heart damage, which still exists. I have non healing rib fractures and unrelenting joint pain to name a few. I’ve tried to keep the what if thoughts of it returning at bay but last month had my mammogram and was called back to “clarify” something. Had another mammo and ultrasound and was told I’d be having a biopsy. When They didn’t call me to schedule the biopsy I called them and was told they had instead rescheduled another ultrasound in 6 months. At first I was angry. Don’t they realize the anguish we go through with worrying thoughts. Then I decided to look at it as a 6 month reprieve. However I’ve fallen into a deep depression that I don’t know how to escape. I cry all the time.