Had lumpectomy Monday and felt fine and pain not too bad. Today I feel low and back in the black hole I was in when I was diagnosed. Can’t get out of mind I have a grade 3 cancer and am now waiting for the biosopy results. What if I don’t have clear margins will there be traces in my sentinel nodes. My lymph node biopsy pre surgery was clear but I am now thinking if it’s grade 3 it could have spread in those 2 weeks since biopsy. Surgeon hasn’t mentioned grading I only found our when I got a copy of a letter he sent to GP. On a positive note my period arrived as normal today so I am thinking this is a good thing and the rest of my body is working normally. Lou x
Hi Lou, mine was grade 3, had clear margins, from sentinel node biopsy, 2/3 had traces so then had ANC, they removed 21. All 21 clear ? And now I have chemo and radio to go but my consultant and nurse are telling me they’ve got it all and I will be fine, this will not shorten my life. Try not to focus on the grade too much, there’s lots of other positives. Hugs to you xx
Hi Lou. I am the same. I had a lymph node biopsy come back with cancer cells in and at my appointment yesterday the breast cancer nurse said after my node clearance I have to look after my arm forever (let’s hope I have a forever) she then said no neck or back massages on that side as massages stimulate the lymph and there are no nodes there to drain it. Came home and had a terrible half hour thinking I’ve been really really massaging that side of my neck as it’s been really tight with stress. What if I’ve stimulated the lymphatic system and it’s helped the cancer cells to spread. What if they’ve spread anyway?
All of these worries are completely normal. It’s hard to think of a time now when I didn’t worry about cancer yet it’s only been a week. The mind does horrible things to us. Thinking of you big hugs xx
Thank you Sarah and Suzy that has helped me. Bootyboo I know how you are feeling it is a scary place and emotions all over the place. My friend from work has just dropped of an amazing hamper from my work colleagues including Spectre DVD so that has put a smile on my face I love Daniel Craig. X
Aww me too. I saw it was out on dvd a night with him will cheer you up xx
Lou you wouldn’t be normal if you didn’t have low periods…it’s so normal. Makes for a sht day mind but it will pass. It’s a cliche but fresh day tomorrow. Dust yourself down and push on…be kind to yourself. Allow the emotions to flow. I think bottling things up and anxiety is a big reason we all find ourselves here. I’m a year down the line and I’m starting to niece I ain’t dying just yet! Lol. Sending love to you all. Lorna x
Hi LMB-BottyBoo- Sarah seakers and all other ladies
Blimey can we get whatsapp on this forum? we could create a group chat, be easier to keep up with everyone, ha not that I no bugger all about technology, I don’t even do facebook, this is my facebook, but I do have a group whatsapp so if I need to speak to my girls one message does all, think they have one too but Im not allowed on it where they moan about me.!!!
LMB - Sending hugs and hot chocolate, having a bad day and feeling low is the pitts,its like you cant cope don’t no what way to turn , I felt I was locked in my own hell, I was so bad last week I didn’t no how to pull myself outta it, our minds are powerful things, when the gremlins come hammering on them no amount of reasoning and whatever reasurrance weve been given helps us to shut em up, we are all the same, we all think the worse, is it just me being super sensitive or is Cancer just everywhere at the moment? Come on if yours has spread in two weeks, well I must be 6 foot under, Ive, been diagnosed 3 bloody months!!! Yeh Im worried too about my lymph node results we all are Lou. Stupid ejit if your period arrived today, youve got PMT, not black hole syndrome
BottyBoo - Well Ive had MASSIVE disscussions with my Breast Surgeon about lymph node clear out, my breast cancer is in my left breast, Im left handed, I like you scared of the lifelong limitations of clearout. My breast surgeon said yes their is following a lymphnode clearout a lifelong limitation in the arm, no blood tests no blood pressure checks, watch for lymphodema more risk, BUT there are lymph nodes higher up going into your collar bone that they cant get, due to being above some major artery, unless she is feeding me a pile of dog poo!!! and these lymph nodes eventually take over the function of the ones removed, whislt we are still more at risk and should carry antiseptic at all times in case we get a cut or scratch on that arm, as for massage, well I had a deep tissue massage just before I found out Id got flipping Cancer, my daughter works as a reservation clerk for a well known spa chain and I had a poxy two hour one, 8 weeks later, guess what Iv’e got?. But whislt they wouldn’t do it now its a precaution, I no they don’t want to stimulate the Lymph node system, but rubbing and massaging your neck aint gonna flood your system, we get so scared we just think about everything, what about excersise (please tell me like me you dont do it cos Id rather boil my head in cooking oil!! Well I walk the dogs 2 miles a day, but I WALK) excersise increases blood flow, and raises heartbeat, increased blood flow is what massage does and that goes through lymph node system, but excersise is GOOD for ya, give me a massage any day of the week rather than a 5 km run, well actually dunno if I could run 5 yds!!!
Sarahseakers - my breast surgeon says, christ Im gonna look like a twit if she is naff, anyway she says, that our lymph nodes are our pond filter system, their job is to filter out and stop bad stuff getting into our system, be that infection a virus or fecking Cancer, SO SHE SAZ, that finding cancer cells in lymph nodes is what she would expect,(Remind me of that next week ladies when Im freaking out cos theve found em in me please), because it means theve done their job and they have filtered out and are filtering out the cells to stop them getting into our system, My breast surgeon only works as a breast cancer specialist, she has worked within this field since 1994 she lectures teaches and has many acheviements and acolades and recognitions so surely she must know what she is on about!!! She also rolls her eyes eveytime she has seen me!!!
Well I will post tomorrow then a full day of two hospitals and cancer tumor marking and the lymph node radioactive nucular science and ultrasound mylarky friday, so will probably not be posting for couple of days, cant see me in recovery on me phone inbetween throwing up.
So saying toodle pip and SOD the gremlins
Love and hugs
Bloss XXX
Thanks ladies I feel better today. X
Bloss you make me laugh! I can’t imagine me running. My exercise consists of walking to the car and back. Mine is a leftie too but I’m right handed. X
Hi Lou. Glad you’re feeling better today xx
Thanks Kerry I am ok today. Feel strange doing nothing as I normally work full time. Haven’t had an appointment date yet but hoping to get a letter early next week. Can’t go back to work till I have seen Consultant. Went for a walk today was nice to get fresh air . Will be taking my youngest to school next week and picking her up so should enjoy the exercise. X