DLA seems to have become a lottery.When I applied I filled out the full,long form as I could not bring myself to apply via DS1500.It took me ages to fill it out,sent them a copy of every letter,diognosis,prescription,scan result I had and after many requests for further information I was granted DLA indefinately.I recently received a letter from them saying they would not review until April 2015 and if I am 65 by then that it will continue indefinately (I will be 65 in may 2015). It is so hard for us to deal with the damn disease without having to fight the system as well.
hope you all get things sorted and DLA granted.
L xx
thank u for posting been will be a great help …
ive looked around for support if i have to take time off work when i get my results …to have my treatment i havent found a lot … stressed and this makes things so much worse…
Some interesting points here. I’ve been in receipt of DLA - lower rate for help with care component - for some 15 years and it has been granted for life. This has been for a completely different condition, nothing to do with BC. When I enquired a while back, I was told that I could re-apply for a higher rate if my needs have changed irrespective of any new dx. However, despite the mets, I still need the same sort of care I had years ago, nothing has really changed, so I am not entitled to any more then I am getting at present. My oncologist thinks that my life expectancy is more than 6 months, so the DS5100 is not an option at the moment - good in some ways.
Hi
Has any ladies had any experience going from DLA to PIP?
Xx