I sent my forms off this morning so we will have to wait and see how the claim goes. I think I meet the criteria but I don’t know what the dla people will think.
Mackers, I pm’d you.
blondie, I’m also delighted you got your dla.
scottishlass, I am seeing my GP on Friday but don’t have a good rapport with him. I find him very difficult to talk to and the thought of talking to him about such a difficult subject puts me off. I’ve got an appointment with my onc the following week so maybe I will discuss it then.
hi ladies, does anyone know how or if i can claim travelling expenses to get to hospital for my rads, the hospital is miles away from where i live, any suggestions would be gratefully received all the best liz xxx
Hi Ladies,
Just to let you know that I was rather surprised and taken aback as already my Mcmillian nurse has the DLA1500 form all ready and signed,withing 3 days of enquiring!!! Its me lagging behind filling out my bit, so fingers crossed I will get the award. I was totally against having someone sign something saying i had only 6 months to live but after reading up and helpful posts on this forum, you are all correct, no one knows really, with or without treatment, how long we have and to be honest the form is very daunting when faced with it, frightened to write in the wrong thing. I am at this minute trying to work out how far i can walk without severe discomfort, I can barely stand sometimes without hurting somewhere…
She has been a godsend, when she says she will do something, she has it done, she got me the blue badge on a fast track system withing 4 working days, I was impressed.
I hope you all hear soon and work out any appeals that are in the pipeline, fingers crossed my form is filled out correctly without having to jump through anymore hoops…
Clare x
Great news Belinda :). I do think it is awful the way this sort of thing puts us under unnecessary stress. This is the bad side of forums - we here of people being treated what appears to us to be unfairly and we are left wondering if we will be the next one.
I don’t know if any one else has completed their forms the way I did (I wish now I had kept a copy!). Where it asked questions like how far can you walk I was intentionally evasive. I said something like I didn’t know how far because I was afraid to put it to the test. I went all through my hospital notes picking out snippets from the bone/mri scan reports and quoting them to show how seriously my bone structure was damaged. I have a lot of really awful cramps that amongst other things can affect my feet. They last for about 20mins on a bad one and I am afraid with them coming on suddenly I will fall and with the state of my bones, cannot risk a fall.
I think what I am saying is if the style of the question doesn’t suit you - answer it in your own way. If you have gone the DS1500 route - and it is best to do that if you have 2ndaries then you don’t have to answer a lot of the questions.
LOL probably the next person that answers the way I did will get their form returned with a note that says “Answer the question please!”
Keeping fingers crossed for you Crawfo that you will get yours accepted without waiting too long. And for anyone else waiting under the stress of renewal.
Hi Blondie, Don’t worry about the name thing, I forgive you. Actually I answer to Sharon as well, though crawfo is fine too.
Elizabethtracey, I’m not sure about dss payments for travelling to hospital but Macmillan do a grant which can be used to cover hospital expenses. If you contact Macmillan they will fill out the forms for you and it is very easy to claim.
potmaid, I’m really pleased you got so much help from Macmillan. It’s good to know that when the service works properly, they are able to help people. For me, I would rate their service as less than useless.
Finally some good news (sort of). I got my letter from the ESA this morning and they have put me in the support group and have upped the money to the full amount. I didn’t have to go for a medical or anything. I say sort of because obviously I would be much happier to not be in this situation in the first place but at least I can relax now that I know we will have some, all be it a very small, income for the foreseeable future. Just have to wait and see about DLA now. One thing, does anyone know how much of the additional support money will be clawed back by a decrease in Council Tax Benefit?
Hi Belinda, just seen your news from a few days ago - what a relief Did you have to have anything re-signed/re-assessed or did they just re examine your original form?
Nicky xx
Hi Nicky, I just had a fairly non intrusive form to fill in. Was asked how often I see my Onc, my GP. What treatments am I on…how long have I been on them. No ‘how do you manage’ and ‘can you do this’ ‘how far can you walk’ sort of questioning. They then contacted my Onc to verify my answers and that was that…it just took a long time to come through.
x
I wrote you a pm about a week ago, not sure if u got it, it had all my contact details. Just wondering if you received it. As I do most of my posting from my phone and hve the fingers of a baby elephant if the had fingers!!! So wasn’t sure if I’d pressed right buttons etc!!
Xxx
Sorry I hvent gone into this yet as still getting sick pay. Does it matter how much your husband earns are u still eligble for ESA (sry if wrong name)? I have worked for the last 24 years so have made all contributions, but does husband earnings effect it?
Hi Mackers,
I’m no expert but I think if you’ve worked as long as you have you would probably get the contributions based ESA rather than the income one.Contribution based one should mean they don’t take your husbands income into account but they do if it is income based.
Good luck!
PS. Have you considered DLA as well? That is not means tested either.
Julie x
Sorry, I wasn’t ignoring you. I’ve been quite ill with recurring bouts of sickness and diarrhea so haven’t been on here for ages. I’m still not 100% and not up to doing anything about anything at the moment. I’ll pm you again when I’m feeling a bit better if that’s okay.
x