Hello Ladies, this is my first post on here, so here goes. I was diagnosed with ILC in April 2010 and had Chemo,Rads and now on Tamoxifen.
I have my first mammogram tomorrow and very nervous, to say the least.Is it normal to feel so scared even though I know that I’ve received the best possible treatment? What are the odds of not hearing good news? I thought that we would be given the results straight away, but afer reading posts on here yesterday, find that I may have to wait for up to 4 weeks. How cruel is that!
I am also keen to hear from other ladies who have been diagnosed with invasive lobular carcinoma.
Hope you are all doing ok xx
I know how you feel hotmomma! I was due to go today for first mammogram after treatment and i cancelled it as it was too early! I wanted to wait till near 1 yr from dx which is next month so i’ve asked for another appointment. I think after a year we all feel much better physically - apart from the aches but emotionally we are still pretty raw - well i know i still get pretty anxious at times and i’m hoping this will gradually go away. I had DCIS - SNB, WLE and 5wks of radiotherapy, sorry i can’t help you with lobular carcinoma info.
You may be lucky and not have to wait 4 weeks, i waited 11 days from mammogram to dx and then another week after op for results. Maybe you could ask how long the waiting time will be?
Take care. x
Hi I was diagnosed 9/3/10…bi lateral WLE on both, node clearance on L and SNB on R 3/34 amd 0/3 respectively had 6 FEC 38 rads and now on Tamoxifen.
I had my anniversary mammogram today. It was quite uncomfortable due to sore boobs thanks to tissue damage from so many rads, nurse indicated that nothing worrying had appeared but would be looked at more closely and results to come in post.
Glad it’s over for today…hoping it’s over for ever (well except for check ups and 5 years of Tamoxifen . I was quite scared this morning before I went, was only called in last Friday by telephone so only had a couple of days to get nervous about it.
Hope you fare well with yours, this is a good part of the treatment plan…the bit where you get good news I hope good luck
Hugs to you Suze xxxx
That’s great news Suze.
Really glad you got through it ok.
An anxious time I know, but you did it. Well done!
I’m toasting you with my cup of tea.
Here’s to a very calm year ahead for you and your family.
Really hope Hotmomma got through hers successfully too.
Hi Hotmomma I was diagnosed with invasive lobular at the end of July and had mastectomy in August and Radiotherapy in November because it was very close to the chest wall, so when I go for the first mamogram it will be on the remaining breast I worry about the site of the mastectomy as nothing will be done there to tell if it as come back, hope all goes well for you,
I was diagnosed 18th June 2009, had immediate surgery toremove invasive carcinoma followed by 6 months of chemo and 4 weeks of radio, then a second op to remove lymph nodes and now a third op to remove blood clot built up behind scar from op. I started Arimidex in June 2010, and now get strange joint pains, hot flushes and odd moods. I had my first mammogram 3 weeks ago and still waiting for the result. Am really worried about the result but can’t help that. When will it all end. Help !! Jo
hi ladies, .i have my first post cancer mammogram booked for 9th june ,and im already a wreck worrying. cant sleep cant eat my stomach keeps turning over, i am so scared and that they will find something i keep trying to think possitive but im sitting here in tears. will they tell me if its clear there and then ? i dont have an appointment with my breast surgeon untill the week after the mammo and the thought of waiting 2 recieve a letter or phone call is un bareable any info would be most helpfull
had mastectomy in August and Radiotherapy in November because it was very close to the chest wall, so when I go for the first mamogram it will be on the remaining breast I worry about the site of the mastectomy as nothing will be done there to tell if it as come back
I worry about this too, Celia. But having had the radiotherapy, it’s a lot less likely to come back there so the next likeliest place is the other breast, they told me. It bothers me that they don’t do any systemic tracing, blood checks etc either after a simple primary, how would we know if there were trouble brewing elswehere in the body while it was still small?
Thanks for this thread I just realised i havent yet heard back from my 12month mammo. And i can’t ring them now till Tuesday…