Thanks . I was with spire via BUPA , unfortunately hospital didn’t have a BCN , so I was contacted directly by the surgeon or onco .
They’ve probably got the ODX back but waiting for MDT .
There is a medical oncologist on MDT but I don’t know who mine is . I’ve just seen the radio oncologist.
Post op, the surgeon gave me my results and said the onco woujd be in touch the following week, which he was
I am so very sorry you have to go through this with little ones. Mine are grown, so I can just take care of myself. Call in all support to give you a break. Any one that says what can I do-pull out a planner and say “what day can you take the kids for a bit?” People seem to offer early on. There is nothing like a few hours to yourself when things are tough. Please take care of yourself as much as possible. And talk about it! I didn’t and everyone asked why I didn’t talk about it. Everyone here has been through it-nobody else truly understands. I wish I were in person. I would take that planner and be all over it.
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Hi there,
There is understandably some frustration/anger around your initial consultant visit. Could you ask for a review with your BCN about it, ask what difference it would have made to your treatment and even if it would have been there a year ago. If you know it will be easier to work through.
There is so much to process when you are first diagnosed, you are pushed on this steep learning curve, there is all the fear, anger, the why did this happened to me(which it isn’t fair especially at 34).
I was all over the place at diagnosis, I had just breastfeed my 2 year old for 2 years. My head went to some dark places, she was my third and I was in my early 40s. I wondered if I should have had her, I thought I’d ruined my kids lives by having cancer, and unlike you, I didn’t go to the gp until my lump was larger. In reality the older kids main concern was not going abroad this year and my 2 year has been my strength.
Active treatment brings with it, I have found a calmer period, you know you are being treated, you’ve been told it won’t spread. It is the straight bit on this shitty rollercoaster at least for me. That’s why people say the diagnosis and the waiting is the worst bit.
I’m half way through chemo AC-T and I am lucky enough to not have had major symptoms, my husband takes 2 days off work and it’s lovely. I had chemo yesterday and I just feel a bit hot and hungry!
Good luck with your ‘journey’. There will be as my BCNurse said, a lot of bumps and different roads that you go down that you won’t expect, but it is doable. We are all here for you if you near an ear.
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I’m sorry you’ve had to go through this. I was diagnosed with grade 3 cancer which had spread to all my lymph nodes. I had a previous lump about 10 years ago which was biopsies and said it was benign. Now fast forward to today, it’s now cancer. Even when I was diagnosed I only ever felt the same lump I had before. What prompted me to go to the Gp was that the breast was red an inflamed. I do sometimes wish I went back sooner but then I had no indication that anything was wrong. I can understand your feelings of anger. I have a nearly 3 year old and pregnant. It’s a hard journey but we are all here. Being on this forum does help to get support from others. I’ve been referred for counselling which may be something that could help. X
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Hi tsoph,
I have just put a long post up in newly diagnosed about my current situation and then saw your post. … Just wanted to say I hope you’re doing okay? Ive been diagnosed with invasive dc. Two pieces largest 39mm. Feel like ive missed the boat by not finding it sooner. One node involved on ultrasound.
Waiting for MRI results are killing me. So scared. Kids dont know yet as i cant say whats what.
Anyway…you are not alone. Thinking of you x
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Hi from my own experience tumour size and grade play a part as well as if nodes are positive.
I had a 2mm grade 1 and a 10mm grade 1 and 2 mixed side by side and had a lumpectomy 5 day’s radiotherapy and letrezole. If after surgery they were bigger or higher grade then chemo was mentioned.
Good luck with everything.
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