Hello Heather, I just wanted to say how sorry I am you are back in Secondaries.
I’d read a few of your postings to India and I’d hoped everything was okay with you.
Good Luck with Tamoxifen, I had a very good run with it, I hope you do too.
Belinda.x.x.x
Thanks Belinda - this website is realy keeping me going - I am reading the wonderful things that you all do with friends and children and know that I now have to live with this awful disease…and get on with life as best I can.
Thanks for the info on Tamoxifen as well. I was so not expecting this news that I hadn’t read anything up at all, just came home from hospital and took it.
Trying to keep up a brave face but brroke down at the school gate when a mum hugged me…which worried my children - I will chat with them over the weekend to explain that I am still ill - being only 6 and 8, it is so hard - but our lifes will resume to normal (at least for the time being).
Hope your treatment is going well Belinda - and again many thanks
Hi Heatherlou,
Just wanted to say children are very resiliant. Mine are 6 & 7 and while I haven’t told them the exact details of my disease, they do know that I had to wear a wig (and would tell their friends in VERY loud voices) and that I have to go to hospital alot to stop getting poorly. My daughter put her school cardi on the other day (which I made for her 2 years ago and it only fits now) and said ‘You didn’t think you would be alive to see me wear this did you?’ quite matter of factly. I think as long as I keep talking about in simple terms, they are still informed and kept in the frame. As they get older or I become more ill, we can explain in more detail. In the meantime, we live life as usual with the normal round of school clubs, football, ballet, beavers, and ensuing fundraising and committees. I did feel self-conscious at the school gate for a long time, but now feel part of the pack again. As you say, your lives will return to a kind of normal and I wish you all the best with this.
Jenny
x
Hi Heatherlou & Jenny
It can be difficult to know what to say to the children and in a way not to worry them. I will pray that your treatment will go well.
Jenny reading your post about your daughter’s comment brought tears to my eyes. I spend most of my time wondering am I going to be around for this and that. This time last year I did not think I was going to be around to see my son start school. Last week he started Year 1 so I pray that I will see many more school years. I try to live day by day and try to live a “normal” life.
xxx
I know I will come to terms with that. Today I have organised a great new year at Centreparcs and the children are giong to be mascots at our football club as birthday treats - both Christmas babies - so we have a good December to look after.
Flowres from work arrived this afternoon - I know I should be grateful, but the flowers and Get Well cards seem so inappropriate and just upset me.
Am having the children collected from school and will try to face the pack again on Monday.
I love the cardi comment as well…One of my friends lost her sister to this awful disease a few years ago and her child asked for her mobile phone in the hospice ‘cos she wouldn’t need it anymore’.
Hope the maxofen does its job for many years to come and I can support others as you are doing for me…
Lots of love
H
x