Reading the posts I still find it unbelievable that there are so many young women in the same situation… being on here makes me feel more ‘normal’… because I do feel like a rarity… when I go in for radio at the moment… there are a group of older people who will start a conversation and talk to anyone/everyone but me and when I walk in I get looked at… I swear they’re talking about me somethings… but that might be the paranoia, lol! Although the time my mum came and I was in, they all starting talking to her!
How is everyone else? Charlotte sorry you had to join this but its the best place to get advice… i think we all know how it feels to have support from friends and family but that they can’t understand it!
Hi everyone, just wanted to say that I have just finished an 8 week BC telephone support group, and found it well worth taking part. Its a bit strange at first as you dont know who is speaking etc so you have to say your name before talking, but after a couple of weeks you recognise everyones voices. There were only 4 of us, plus nurse and moderator. I think that myself and the other 3 girls will keep in contact now as we have shared 8 hours of dialogue together and have gotten to know each other.
Ness.
hi all, im 35 but feel about 55 at mo but in a much more positive place at mo. was widowed a few years ago, then got b cancer on 35th birthday and like Angie, live in lake district. Had masectomy, chemo and rads and then potential family history but no-one as young as me, opted to have ovaries out, and now on arimidex and bone strengtheners. Just found out bone scan okay as had pain and was really scared had spread so of to enjoy works party tomorrow - hoepfully 2009 a better year for all of us
xx
hi girls I am 31 - well my mind always feel like a 12 years old. I was dx before my 31st birthday and now undergoing kimo. My tumour was triple negative and no known family history. It was so wired to find out that i had BC… Now 4 months after dx i still could not believe it sometimes.
I also jioned the telephone support group and find it useful too.
I guess the most annoying thing is you donot know what is going to happen in the future. If I am in my 70s and had BC i might be more relaxed…
Having said that life is full of uncertainties anyway. If it is like a TV programme guide and you know what to happen next it will be so boring…
Hope you all take care and have a lovely holiday!!
Thought I would join if its ok… Im 34 and was diagnosed in june. I went ot the drs with a lump and was sent to the hospital. I had a biopsy in May, It came back clear, so i was sent for another biopsy which also came back clear. My lump was 4cm x 2cm so the surgeon decided to remove it anyway. When the results of the lumpectomy came back they discovered that there was cancer in the core of the lump that the needle could not penetrate. I have invasive grade 3 ductal cancer , tripple neg. So I was back in for a mastectomy and lymph node clearence exactly 3 weeks after the first operation. There was cancer in the lymph nodes too, although it was only 2/20. I went to get eggs frozen as I have no children and I do want them, so that held off my chemo for a bit over a month. I started chemo and went onto the tact 2 trial. I am now about to start no 8 so i have an end in sight and I have 4 weeks of rads to start probably at the begining of feb.
I started a new job just 8 weeks before I was diagnosed, talk about bad timing especially since I had healthcare at the old job hehe, just my luck.
I agree with the feelings about being looked at with pity inthe OC department, I havent met anyone under 50. The hospital I go to has a support group, but again its all older women. This sight is great, It makes you realise your not the only one going through this.
I dont know about anyone else, but I have found that you really find out who your friends are… I have one friend that Im supposed to be a bridesmaid for, who didnt phone me for 3 months after finding out about the cancer… Some freind eh! I just think that there are so many people who just cant deal with the whole cancer thing.
I hope 2009 is a better year, I have heared so many bad things this year (not just my cancer diagnosis),
I hope veryone in here will have a fantastic year next year, Happy new year, it can only get better!!
Hope everyone is well… Had a really busy xmas and was lucky enough to be whisked off to New York for a week which was amazing!
Angela - firstly you didn’t kill the thread! you know what its like when no one posts for a couple of days and it slips down… I cannot believe they couldn’t detect it from the biopsy… at least they still removed it. I wanted to get my eggs frozen but because I’m triple positive I wasn’t allowed plus I’m on Tamoxifen now for 5 years and have had my periods stopped so I won’t even know if I can have kids until I’m nearly 30! Have you finished your chemo now?
I’m starting to get my energy back now… feel like I haven’t been myself for a really long time… although, please let me know if anyone does this too, but my friends will come over and after about an hour or so I’m really tired and literally don’t talk… just go quiet and can’t really think of anything to say, which is very unlike me! My friends have been trying to shut me up for years so they must be loving it!
I hope everyone had a great xmas and new year and roll on 2009!
Im 25 and newly diagnosed with early breast cancer.
I found out this week that i have breast cancer i think i’m dealing with it quite well i have been seriously ill in the past with another illness so i am kind of used to hospials, surgery and stuff. My one major fear though is a full mastectomy. i came on here to see what other people have gone through but i have only scared myself more because it seems like everyone has had to have a mastectomy. Honestly i think i can manager any treatment if it meant i didn’t lose my breast. Does anyone feel like this and has anyone on here not had to have a mastectomy. i think people probably think im living in denial but i’m only 25 and single and i don’t know if i’m strong enough to live the rest of my life with a deformed breast.
Well i guess i will find out on wednesday what my treatment and surgery will be.
Please also call our freephone helpline on 0808 800 6000 which is open Monday to Friday 9am-5pm and Saturday 9am-2pm, here you can speak to one of our team who are either specialist breast care nurses or have had an experience of breast cancer themselves and are here to support you and help you through this difficult time.
I had a lumpectomy so managed to keep my breast… and with clothes on you can’t tell but breast is a little flat on the side where they removed the lump so its not always a mastectomy but just prepare yourself that you will look different no matter what but I can cope with mine… I do feel really lucky. I did say to my best friend that I think the mastectomy would have pushed me to my limits but she said that I would have dealt with it, just like i did everything else because I had to!
You sound like you’ve been through a lot already so you know that you have the strength of character to get through it and I know it’ll never be the same but there are men out there, decent men, who will still want to be with you… it might not be as easier as before but I’m sure it’ll be fine!
I hope your feeling as well as you can and I’ve got everything crossed for you! Let me know how you get on
Hi guys, I think I might be able to just sneek in this group, but not for too much longer - 39!
It is rare at our age, but we’re all checking and all catching it early so we will survive and become stronger people as a result!
My experience of BC has not been too bad really. I’m one of the lucky ones, but thats why I joined this forum - to spread the more positive word.
When I was first diagnosed a few months ago, I dared to check the web in general for info. It depressed me, so many really sad stories, so I instantly stopped looking. There are success stories, but unfortunately they tend to be swamped by the sadder ones.
In short, I found a lump, got it and a node whipped out and had radiotherapy - end of story! So you see, there is a lesser extreme. If I’d’ve taken on board all the stories, I’d’ve had myself written off!
It isn’t all doom and gloom, so if you’re newly diagnosed don’t assume the worst. Concentrate on the positive stories - I did and I’m ok now!
Hi everyone. Great take on the old BC susie, sad stories always overtake the good positive outcomes.
Im now nearing the end of treatment am having my 3rd Herceptin this Friday, just feel tired on it, no other noticeable side effects yet. My treatment plan has consisted of Chemo, Mast, rads, ovary removal and Femara daily for the next 5 years…
Are any of you guys going to the younger womens forum in Sheffield next month??? Im going so see you there if you are.
Here’s to a better 2009 then 2008, onwards and all that.
Hello all,
I think I have joined this thread a little late, but never mind I’m another 20 something… I am 27 and had my primary dx at 22. There seems to be quite a few of us young uns on here!
Love to all
Sarah x
I am 34 and was dx 22 sept 08, have had 4 FEC, 2 Tax and 2 Herceptin so far, see oncologist again tomorrow hope to find out what next. ie surgery!! I’m so going to miss my breast, but suppose the brand new one will las longer.
I’m also finding it all a bit hard sometimes as I am on my own, I did want kids but prob won’t be able to try until I’m 40!!!
I don’t really think about it but will a guy want to touch me again?? I’ll cross that bridge when i come to it, if he doesn’t then he’s not worth it. Right girls?
I’ve still got long road ahead but we can jsut take little steps at the moment take each day at a time
I thought I would share my little bit of good news, I have seen my doctor today and they have told me I can have a lumpectomy rather than a mastectomy I still have to have chemo and radiation treatment but I can do that I have been seriously ill in the past so I know I can get through that. I said I felt so vein wanting to keep my breast but like others on here I am single and I know we all say a bloke isn’t worth having if he cant get past my breast but still I just couldn’t bare the thought of having to deal with that I’m only 25 and the thought of having to worry about that every time I started dating someone freaks me out maybe its because I’m young I don’t know. I am just so grateful after being seriously ill in the past I was just praying for good news and finally I got some. Strange a few weeks ago I would never have thought minor surgery and chemo would class as good news but today it is.
I hope that more of you get a little luck like I have, if you don’t than please stay strong and turn to this forum I’m very new to this illness but this place to come and vent has already felt like a haven to me, so thank you.