I had my scan/biopsy last Wednesday 18 June. Told there and then it was cancer. I’ve been given two outpatient appointments one for 2nd July and the other for 9th July. I spoke to the secretary this morning as confused why I had two, she couldn’t really explain it, and said they were discussing me at MDT this Wednesday, as to whether I’d need an MRI and she’d ring me later this week.
My emotions are all over the place, I’m so anxious all the time, Ive lost my appetite and lost 6lbs since being told. Every twinge I’m worried it’s cancer spread to other places and my mind goes to dark places.
My manager has told me not to go to work (even though I work from home) and now I have nothing to distract me.
Hi _jm
I am sorry to hear of your diagnosis, I have been recently diagnosed with DCIs and I am due to have dye injection tomorrow and mastectomy on Wednesday.
During the time between the biopsy and the results I was like you, I lost a stone weight and over thought every little twitch ~ Google was and still is the worst thing but unfortunately I can’t seem to stay away.
I too was signed off work even though I work from home, but after the first few days I asked to go back to keep my mind active.
The thing that has helped me most is meditation, I hadn’t meditated before but I have found a few guided meditations on YouTube for anxiety and stress that I find really help me.
I hope you get some answers this week xx
Oh gosh, that’s a lot of weight to loose through worrying.
I am speaking with my manager on Wednesday and going to ask if I can come back and work flexibly. I need to do something!
I hope everything goes well for your operation on Wednesday.
People say it gets a little better when they know what they’re dealing with and have a treatment plan. I hope that’s been true for you xx
I’ll have a look for some mediation videos. I think I need my husband to do them too. We keep setting each other off as our positive mood and worry moods are out of sync. Or maybe it should be that way so we don’t spiral together. X
Sorry you find yourself here, do remember to call the nurses on here too if you want to also the someone like me option might be one to explore too once your team have decided your treatment plan, you will probably find things happen fact. Ask away on here when you have your treatment plan everyone will reach out and help you by sharing tips and tricks I found taking a notebook to meetings and writing my questions down before meetings so I could write their answers down. That might help but I know others didn’t want to ask their team anything do everything your way in your own time, there’s no right or wrongs and we do all understand and are here as much or as little as you need us you are still fabulous you sending Shi xx
Hi sorry that you’re in this position. At the moment everything is out of your control. Once you get a plan in place you’ll feel like you’ve got some control back and have something to focus on. When I was waiting I decided to get my body as strong as I could to deal with whatever was coming my way. I walked every day took a good look at my diet and like Hope10 I mediated. If you look on YouTube there are some really good meditations. Some only a few minutes if that’s what you’d prefer and some that are specifically for cancer. Hope everything goes ok for you and keep looking at the forum for support
Thank you Good idea re the note book. There’s apart of me that doesn’t want to know anything, but then the other part of me feels like I need to know everything, but it’s just terrifying!
I’ve had an update from the secretary today, the 2nd July appointment has been cancelled, so now I have to wait until 9 July to find out. My husband and I have agreed we’ll tell people after 9th July. I keep having thoughts going round in my head about how I’m going to tell my parents, sister, MIL and SILs, friends etc, even my nail tech and hairdresser! Family live all over the country, so it will have to be by phone. I just want to keep it to myself so I don’t have to have difficult and awkward conversations, but know that I can’t do that. I do know that I’ll downplay it massively to my boys, as I don’t want to worry them. luckily I’ve had lots of operations before so they shouldn’t be overly concerned about me going in for another.
I’m massively waffling now. Think I need to look up some mediation videos! X
That’s a good idea to focus on keeping well and preparing. I do Pilates, so will go back to that now my biopsy site is feeling less tender. I need to get back out walking too, I usually take my dogs but it’s been too warm lately x
I love to potter in my garden and do DIY projects round the house but lost all my motivation, my energy has been consumed with worry. Hopefully I’ll get that back!
I’m also seeing my manager tomorrow, and will tell her I want to come to work. She told me to stay off, but it’s been no good for my mental health!
I had my appointment today at the breast clinic and had 3 biopsies but been told there and then too that it’s cancer. I’ve got a 7cm lump and a 2cm lump and my lymph node is swollen. I’m so scared this means it’s a high stage already. I’m only 31 and I have a 21 month old and I’m so terrified. Been told I’ve got to wait 2-3 weeks for the results then make a treatment plan
I’m sorry, you must be feeling shocked. I’m a month on from you and have had MRI results, once you get to this point in a few weeks, you will feel better because you and your consultant and nurse will know more about your type of cancer. The good news is it’s treatable and the treatments are effective. None of us want to be in this situation and it’s very hard to wait. I found the waiting the hardest, along with having no control. Please be kind to yourself and speak with a good friend who can support you, it’s an emotional time, remember what’s important and look after yourself. This forum and the nurses are great for support and advice. Big hugs x
Oh @marthar93 I’m so sorry to hear this, so young with a little one as well. Honestly my heart goes out to you xx I hope you only have 2 weeks and not 3 weeks to wait. It feels like an eternity waiting for these results. I hope you have family and friends around to talk too xx I’ve also found this forum supportive, a place so I can put my worries and receive words of support. Xxx
Thank you. It’s definitely the unknown that’s making it worse and making me think the worst. Does everyone have an MRI? Is that to check if it’s spread?
Thank you. I’m so terrified. I just keep thinking that my little girl is going to grow up without her mummy and she is too young to have memories of me
Thank you. Many people have said it gets easier at that stage so I’m holding out for it.
I’ve only told one friend, but no one else (except for husband and work) friends are making plans with me and I’m going along with it for now, as I don’t know what will happen and when, I don’t feel ready to tell people yet.
Do you have a treatment plan in place now you’ve had your mri? Xx
My mind does this too, going to worst case scenario. So I’ve stopped googling, I’ve stopped reading about different types and looking in other sections of this forum, as I found it was making me spiral. So I stick with this first section, and found that has helped. I still have these waves of sheer panic, and I don’t know how to stop it, but will try meditation like others have suggested. Be kind to yourself, take time for you, and take each day as it comes. Xx
Try and plan some nice days or evenings out. Honestly you need to distract yourself, give yourself treats. I’ve just booked a Japanese head spa, no idea if I’ll like it, but going to try! Take care x
Yes now I have the MRI results, I know it’s one lump so surgery is planned for 24 July. I had already been started on letrozole as the biopsy showed my cancer is oestrogen positive, that’s called hormone therapy. I don’t know the treatment plan after the surgery. It could be radiotherapy, it seems that’s decided once tumour is removed and pathology review. You will be assigned a breast cancer nurse, they really help answer any questions or concerns. Try and breathe, I know it’s difficult and I stlll feel angry this is happening, it’s all normal reactions. Stay positive x
No, your consultant will advise. My breasts are dense so they wanted a more accurate view. I had 2 tumours found in the ultrasound. The biopsies showed one was benign, the other is invasive ductal carcinoma (IDC) ie breast cancer. Don’t be worried about chasing your results. Mine took 13 days, but sometimes they don’t have all the results, so it can take longer and it seems they prefer to do face to face. All the best x
once your team have decided your treatment plan, you will probably find things happen fact. Ask away on here when you have your treatment plan everyone will reach out and help you by sharing tips and tricks 
Good idea re the note book. There’s apart of me that doesn’t want to know anything, but then the other part of me feels like I need to know everything, but it’s just terrifying!