Gene testing

Hi everyone

I had BC last Sept  and had a double mastectomy with immeadiate recon, didn’t need radio or chemotherapy, now on Tamoxifen.

Because of family history I was eventually tested for the BRCA gene which came back negative. They are now testing the TP53 gene to see if that is mutated, Has anyone heard or got this gene?? I’m a little worried and the results are taking forever to come back.

I am so glad I joined this site as I thought I was the only one feeling this way, it’s been a roller coaster of a ride and one I still don’t feel is over.

Thanks everyone

Erica x

Hi ditzy65

It sounds like you’re having a tough time.  Whilst you wait for the other users to reply you might find it helpful to talk things through with a member of staff on BCC helpline.  Here you can share your thoughts and concerns with someone who will offer you a listening ear as well as emotional support and practical information.  The number to call is 0808 800 6000 and lines are open weekdays 9 to 5pm and Saturday

10 to 2pm.

Best wishes Sam, BCC Facilitator