Hello every one. I cam across this thread when searching for triple negative metastatic breast cancer appearing in lungs and liver.
Can some one please suggest what yteatments they had on the clinic for the same problem. Its the same dilemma in uk. Oncologists running the trials not letting you go on one and if you ask want yo get private then they say its not the right treatment for you.
It would be really helpful if some one here can poi t me in the right direction please.
Best wishes
Atia
Hi posh poodle, I was diagnosed with tnbc in 2012, I had fect x 3, docetaxil x 3, left side mx, full lymph gland clearance left side and 25 radiotherapy sessions and all was well until I was diagnosed with metastatic on 28th December last year. I have/had mets in right side lymph glands (armpit) collar bone glands, chest wall and lungs. I happily fit the criteria for a trial of immunotherapy, atezolizumab (blind trial ) to run along side chemo, nab paclitaxel. Early signs are very promising showing at least 50% reduction in all mets with 1 in the lungs disappearing altogether. I just keep praying that I am receiving the immunotherapy drug rather than the placebo. If anyone is interested in looking up the trial it’s called 'the impassion study
Kind regards
Tracy xxx
I’d just like to reiterate what’s been said by others who have been treated at the Hallwang. I would be on the next flight to Stuttgart Airport if I could afford to go back to have all the treatments they recommended. They give hope, when all feels lost, and they’re very caring and professional. I very much enjoyed the secure feeling of being there and that glimmer of hope that things could improve. Unfortunately, I needed treatment for at least four different problems, which meant the cost was far greater than my means. I just had as much treatment as I could afford. I was never promised a cure but they thought they could offer me targeted treatments that would give me better quality of life and the potential to gain years, rather than months which was the most likely outcome if I’d just had to have chemotherapy here. Since my treatment there, my skin mets have cleared up and not returned, which is a huge relief, and I have certainly had a good quality of life for longer than I would have if I hadn’t gone there. My situation has deteriorated since Christmas and I’m now on a clinical trial here but things have gone rather badly. I just need to win the lottery and get back to the Black Forest. If you have plenty of funds, I don’t think the cost is excessive for what they can offer. The big disappointment is having to pay 19% VAT. Without that I could have had more treatments.
Hi there,
I just wondered if anyone had been to Hallwang for treatment when they had brain mets?
My mother has mets from TNBC in her brain, liver, lungs, and most recently found in on place in her bone. We’ve obviously exhausted all NHS options and possible UK private treatments, and looking at Hallwang but we are relying on the treatments to cross the brain blood barrier (it should be damaged from the WBRT she had in Jan 2016).
I’m concerned about the time we have left to sort anything out that may help, but at the same time it’s such a huge commitment money wise, and more so the time in hospital as my Mum hates any hospital (understandably). Lots of thinking to do and no time to do it.
Sam x
Hello everyone,
My wife has secondary estrogen positive breast cancer(metastatic ) which is now in liver , lungs and bones…
Can hallwang help her kind of breast cancer?
I have just spent a week at Hallwang and it’s truly a very caring and professional clinic. I have er+pr+HER2- lobular cancer with bone mets. I received all the detox infusions as well as my last booster of THX vaccine. I’ve been offered polyclonal vaccine treatment but didn’t have it as it’s very new and isn’t even in trial yet., has anyone else been offered this vaccine and could tell me more about it.
i live in Australia and would like to try the vaccine but am worried about side effects.
Hello Kate
I hope giedre is reading this and can offer you some good information. I’m in daily contact with her in oz …but she’s not too well at the moment and might not be online to reply.
Xx
Hello Kate
Yes got dx October 2015 …with bone mets and am a letrozole girl too …but I’m getting worried that with extra pain. .it’s not working and my scan is coming up so all will be revealed !!
Looking back letrozole has been a doddle really but cancer doesn’t really care !!
Keep in touch …the bone mets thread is the daily meeting place really! !!
Hugs xxx
Hello,
Could someone give me advice about hallwang,
we are thinking treating our father there.
But we are afraid with all the controversy found on internet.
And No doctors I’ve been in touched knows this clinic and look skeptical?
You can pm me srs75017@gmail.com
Thanks a lot
Hi all it eoyld seem that most who have gone to hallwang have tnbc has anyone gone who is triple positive?
I found this article:
respectfulinsolence.com/2016/11/08/the-deadly-false-hope-of-german-cancer-clinics/