I had been a wimp about my scan results and notes, only wanting to know the absolute minimum, but after my most recent bone scan I did go away with a copy of my report, which mentioned “slight improvement as evidenced by reduction in osteoblastic activity at some of the disease sites described above”.
Thanks Belinda, I hadn’t known about that AdvancedBC site, I’m off to have a look.
Lynni,
I requested copies of my notes - had to fill in a form I got from PALS and you have to pay something - I think max of £50. Mine was a very big file 
18 years of it so I came of best there I think. I didnt have copies of scans etc only written results - but my onc was always happy to show me them when I asked.
Dawn
Thanks for that
Lynni x
Lynni - there has been a thread on here in recent times about how to get copies of your notes and difficulties people have had with that. You may want to ‘search’ for this thread.
Lesley - most of us get years between bc and being diagnosed with secondaries, and we still find it impossible to come to terms with it. You have not had that time. You are not paranoid, you may be in shock, and goodness knows it would be only natural if you were, and very strange if you weren’t. After all there are not that many bigger shocks than this.
When they discovered my recurrence, they were about to perform a mastectomy, until the CT result came in and they discovered I had bone mets to the spine. This seemed stable, so they started me on chemo, and pamidronate, after some radio for pain, and only when my spine became unstable did I have to have an op, after which I recommenced chemo. I have never felt that my bones are about to break tho.
It seems we all have different treatment, I guess that is predicted by lab results. If you want to know more that may be your first step. Understanding your lab report. I think there may be some information on here, but if not i have a book i can lend you. The only thing I would say, is be sure and go at your own speed, not anybody else’s, and don’t ask questions if you are not sure you can handle the answer. I needed to know everything when first diagnosed, the ironic thing is that since I’ve had chemo I’ve forgotton half of it anyway!
Thanks Celeste will do.