Giving up on hormone therapy

Good morning Loki. Ah so sorry to hear about all your side effects, but also seems like you are seeing some improvements which is great! Take your winnings where you can! :slight_smile: do you think you will continue sticking with the meds?

I know it’s scary to not be on the full strength meds, but you are still taking them, all be it at a lower dosage. At the end of the day, if you look at predict scores the biggest chunks come from the operation and chemo, the rest of the meds give you much smaller percentages of prevention. So ultimately, you ar still getting an excellent treatment, and you must balance that with some quality of life. Feeling just that bit better in your body makes such a difference doesn’t it? But the scanxiety is real, especially given you have/had a later stage cancer. How are you coping with that? Do you have anyone to talk to?

So sorry about your hair. It’s so hard to go through everything and to then have your hair thin out. Is the state bad? Could some short haircut help with that? My hair is growing back very well atm, but I’m trying not to get too attached to it.

And yeah, join the - lather yourself in the moisturiser club lol. I feel that moisturiser should be on a free prescription for cancer patients. Have you found anything that works for you? I’ve tried a bunch with mixed results, but I find for my skin, almond oil mixed with castor oil and some essential oils is the best (i mix it myself). The downside is that its quite messy, and I can’t go dressing up right after moisturising. Also I like ‘helping hands’ hand cream from lush and it’s helping my nails too, although again its got a bit of an oily texture.

Myself, I’m just about coping with everything. I was feeling so bad, that we had to discontinue letrazole and so I couldn’t start ribociclib either. Atm I’m only on Zoladex for inducing menopause. My current symptoms are headaches, sweats (that feel more like tropical showers tbh), lack of mood and motivation (your comment about not being able to joke made me chuckle cause I feel the same way) and stiffness and joint aches everywhere as if I’m 90y old… ah and ultimately I think I’m starting to forget what sex is.. Apparently it all is considered good… I find myself flipplopping between being grateful that I’m not on all the meds yet, wanting to stop even Zoladex, and being scared that I’m not on all the meds yet. On a positive side my scans have just come back clear, although that has been twisted a bit by my mind thinking that maybe they missed smth…

Mentally it’s a wild rollercoaster and i’m not sure I’m fully starpped in but I try not to think about it too much.

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