Well my Hb is better than last time so not sure why i feel so rough. I think I’ve got the same stomach bug that OH and daughter had earlier in the week. Off to mum’s for easter so hope you all have a good easter.
Kate
Hi all
Kate make sure you have a good weekend with plenty of rest, cant believe you haven’t had echo date through yet or brain scan results, cant you ring and chase the bleeders, even my mishap hospital get me scans quicker than yours, especially echo’s. Let OH take kids out all weekend and you be waited on, lunch rotas sounds good, you have a good bunch of mates and at least they take the strain out of using your mum.
Me and mate took our daughters to see the sugar babes on Monday, it was Fab, think we did more dancing than the girls, seats were fantastic, our Easter weekend is more football than anything, son playing tournament in Oxford Good Friday and OKH playing in fundraising match Easter Monday, he is the veteran team at 41 ha,ha, will have to start calling him OG (old git) he also finishes work tomorrow and will come home with big redundancy chq, his new boss called him today inviting him out on their work do tomorrow night to get to know all his new colleagues so he is getting quite excited about new job but at same time quite nostalgic with old crew.
Must go am knackered, did start this reply hours ago but dinner and all else distracted me and lost it so this is more half message.
Hope you all have good weekend, is Trace of to remote Scottish Isle now or next week?? as always love you all and I am always up for get together
Debs XXXXXXX
Hey girls…am still here just been off line as unable to get to mums this week as si’s van broke down!!!
Had a nice weekend in tunbridge wells last week staying with the mother in law - she is doing the moonwalk for the third time this year, wont be able to meet her at finish line tho as will be at a conference in Birmingham!!!
Off to wales for 5 days tomo (south) to stay with aunt and cousins, then to barra on 19th april…
Just got dexa scan results this morning and are all normal. Have the bones of a 30 year old and am 32 so must be doing something right despite the zoladex, must just be accident prone then! damn…
I read somewhere that if you are heavier than what you should be bones will be denser to carry the weight so maybe thats the answer - at least i now have a reason for being bigger than i should!!! Ha ha…
Happy easter gobby gang and love to you all. xxxxxx
Trace am pleased about your results, Kate wish you lived round the corner i would be there with my shepards pie.
Well am being interviewed by the sunday mirror tomorrow, breakthrough breast cancer have asked me to do an interview- I am one of there spokespeople for triple neg breast cancer. Hope I dont say anything out of turn, have asked the press officer to check the piece before it goes out cos there has been enough inaccurate stuff about bc in the press like kylie being given the all clear after her treatment had just finished. Have given them some cute pics of h kept back the worst ones of me!!
Have a great easter girls and dont eat too much chocolate 
know i will be
xxsam
Here at my mum’s and finally after about 2 or more weeks of being continually sleeping now feel better. Started to feel better when started to consume fortisips so think some of the problem is a lack of calories or could just be that my blood counts have now risen as due next chemo this thursday.
Have done nothing over Easter apart from eat as either mum, hubby or brother in law been cooking and running around.
When are we meeting up again/
Hope you all had a brill Easter.
Love Kate
Sammy thanks for ur updates u r a star. Definately ate too much choc egg, and when mine ran out even paid si a fiver for half of one of his eggs!!! Greedy fat pig!!!
How did the interview go??? Hope it wasnt too upsetting and they didnt ask too many s**t questions. When does it go in paper??
Hello to rest of u girlies hope ur all ok and had good easter, kate have texted.
Had a lovely weekend in wales with lots of sunshine!!! not a speck of snow in sight!!!
The only downside was falling in a pile of chicken poo whilst playing rugby with the kids (which obviously i should be doing with a broken foot!!!) ha ha serves me right, and simons face was a picture, anyone would think he landed in it…Met with a friend yest who i havent seen for a few weeks only to find out her mum now has this s**t too, still waiting for her results to see if has lymph spread… Can u believe it, i never used to no anyone who had cancer, now frigging everyone has it…
Have a good weekend, am off to see the enemy tomorrow night so prob spend the weekend recovering and nursing a poor bent toe!!!
Take care girlies. xxxxxxxx
Hi trace,
the interview went well- i can talk for england! asked me the usual stuff- did i think i was going to die when i was dx NO, did it affect my bond wiv h- NO really went the other way with him didnt I!!! I’m such a sentimental mum!
Just had a massive row with steve but that will give us something to talk about when we go to relate latter oh dear
I have said to kate that i will go and see her if she is still in hozzy at the weekend but hopefully they will let her out this afternoon. She is waiting for scan results so fingers crossed
Any one heard from the fit brit? I think we should email
Hopeing to get to see you soon- how is th anlke anddid work sort out somrthing alternative for you?
xxsam
Hi All
Hopefully Kate should be well clear now, not sure from text if she was going straight home.
Sammy when do we get to read the interview and did they take any photos, were you all glammed up. Me and OKH have big rows, I usually nag until we make it up over a take away and a bottle of wine (send him out for it).
Well I am feeling a little bit tender - went back to areobics this morning - not bad - 3 and a bit months post tram flap - really felt the missing tummy muscle though - had a chat with the instructor as really wanting to get back into it but quite limited due to FNC and TF but wanting to tone before hols and big 40 so will probably start step too, I so want to loose these tamoxifen hips, now that I have a super flat tummy they look worse. Daughter has tonsilitis so laying on sofa sleeping with big soft throw and son just on his way out for the evening so looks like Indian for me and OKH tonight. He is loving his new job, although got a soaking today, working on a huge huge huge manor house near cheltenham.
Tracey what are you like, rugby with a broken foot and chicken poo, you are insane, your picture will be in the national press, “look at this women playing rugby and gigging while off sick” when are you off to the scottish isle, I love the sound of that adventure.
When are we getting together again, need to do it soon, or we will be having hols getting in the way. I’m free every Sunday in April bar 20th.
will text fit brit
Love to you all, Debs
XXXXXXX
Back at mum’s and trying to decide if will go home tomorrow or sunday. Did a long reply on the other thread about me - will get big headed at this rate!! Here is an updated version -
I went into hospital late Easter Monday with suspected ear infection as so dizzy and sick and temp of 38. Mum had to call an ambulance out - the paramedic arrived in 5 mins and ambulance 5 mins after that. Much better than at home when we waited over 2 hours!!
Very odd experience as when admitted the cardiac team were on call and stayed under their care despite there being an oncology ward at the hospital!!! They firstly said I had an ear infection hence the dizziness and sickness and wanted to discharge me at 2am with a temp of 38!! I refused.
The next morning they decided that I could go home and then said no as my wbc low and needed mega antibiotics. 2 days later, the blood cultures from the hickman line grew staph aureus but then had to wait for sensitivity. Suddenly today they said it was ‘skin contamination’ and I could go home with no antibiotics. My temperature is still a little up but only 37.3 but my white blood cell count is dropping and creatinine rising so don’t feel this is right but glad to be out of medical ward where diarrhoea was literally dripping everywhere - resorted to having a commode in my room which I ended up having to clean before I could use it. Do you feel another letter of complaint coming on!!
My onc wants me back at his hospital but there are no beds so will contact him on monday or sooner if feel ill again as would like their opinion on whether they should be doing more blood cultures again from hickman line. I spoke to his lovely new reg last night - she rang me - I must be important!!!
Now talked to hubby and he thinks I should come home tomorrow and I think that is the safest option for me.
I had an MRI on my spine yesterday which seems to show only the existing bony mets and not new ones so they think my severe back pain is due to my leg shortening cos of the bony met in left hip and pelvis. However, it seems my hip is bad so will have to chase the full report whem I see my onc on thursday if not before.
Thank you once again for all your support and feel now in waiting game to see if I can have chemo next week as it was due yesterday and already can feel the tumour pushing on my oesophagus - very scary as wonder if he will see this as an opportunity to stop chemo again. Think I need to go with the heavy gang and scare him into submission!!
No peace for me in hospital! - still ended up having to organise kids stuff from 140 miles away!! 3 phone calls from hospital outpatients appointments dept with appts for the children. 2 from the school asking me to bring in more movicol for little un and about the recorder concert which daughter was playing in and I missed last night. 1 from the hospice nurse and 1 from the district nurse wondering where I was!!
Fit Brit txted me so will forward her text to you - need to do a better deal with vodaphone I think!!
My niece updated my blog for me. She’s written it so well, I might have to use her as my PA or ghost writer - as in the autobiographer sense!!
Must go and thanks for your txts etc and especially poor Sammy who ended up trying to talk to me in a hysterical state last night.
Kate
Dear Kate,
good lord woman you were not hysterical!! I can do a better version of that anyday!! You cope amazingly well with all this cancer horror- after feeling a bit pucky for a few days I have more admiration for your fantastic mum abilities than ever- reduced me to lying on the sofa with ceebeebies and I’m not really ill at all.
I AM GOING OUT TONIGHt!!! s owes me big time and its been so long I’ve grown roots
xxsam
Kate I have been following your progress for ages and think you are wonderful - where can i read your blog please or can anyone else tell me where to find it.
Kate good to hear you are out, reckon you must be feeling better with a post that long and thinking of complaint letter, energy levels must be picking up.
Sammy have a good one tonight, make him pay for it.
Debs XXXXXXX
Hey all
Sorry me and the tinternet havent been hooking up lately …actually me and all forms of communication seem to be on a break. Kate glad to hear your out hun! Id been so crap i didnt know you were in hospital until i got a text!
Well im all cancered out i think talking about it reading about it thinking about but missing you lot 
hopefully can do a sunday meet for sure! Saying that im in brum next weekend and weekend after is day after 1st chemo bugger!
Got to got in on the 17th to Mount Vernon for my postacath fitting am worried but trying to be brave, was really weird with the oncologist the other day first time they’ve not been so cheery about my treatments and i was being very morbid…i could hear moira in me for sure! Need to stop with the dying word upsetting the family and i cant cope with them when they’re being fruitloops about the whole thing…they cant win hey!
Anyway my sweeties im back in work on afternoons now …seeing how it goes…im doing shed loads of throwing up which isnt fun…and going to take annual leave as much as possible of chemo period.
But just brought me a Reading Festival ticket to cheer myself up and give me something fun to look forward to.
Love to you all, if i get crap with posts again i will get my mate sarah to post for me.
Catch you all soon love lynn xx
Hey Good to see you posting Fit Brit
Lets arrange meet and talk proper then talk our normal wine crap, Lynn after Tax I was OK for 3 days then effects would kick in and this was normally just the aches to start with, any news on nuelesta injections, think you and Kate should name date (not 20th please) and the rest of us can work around.
Lynn dont work too hard, how is the new car and hope you get the vip area again at Reading…
Sammy did you have a night of lust?
Love you all Debs
XXXXXXX
hi
Good to see you posting. Don’t know what to say about the fitting of the portacath but I’m insanely jealous that you are getting one cos once it’s in, it needs little care. With my hickman line, i have to be careful what I wear or you can see the line and I have to have it flushed every week and of course I was in hospital all last week because of it!!
This time of year is a bit of a nightmare for meets as it is the twins and youngest’s birthdays within 3 weeks of each other.
I can manage 13th april and 27th april - not sure about 19th or 20th as may be going away.
Had more blood cu;tures done this monday so hope they are clear and blood taken just now for hopefully chemo tomorrow. I really need it. - my chest and breathing going downhill and so is my swallowing. Really scared he will see this as an opportunity to stop chemo now. Going with hubby so not sure he would be much help in pushing the onc with treatments.
Got friends coming over to clean and another one taking me out for lunch. Need time to myself to get things done. - all the crap things like costing funerals and finding suitable hymns and readings and trying to finish my life story etc
got to go now
Kate
Hey girlies
Lynn like others am glad to see u posting too. Porta cath sounds good and are dead easy to use, so much better than trying to stab veins that arent there. Glad to see u arent gonna miss out on the festivals either. Im not going to reading but do have a weekend pass to V again so will join with the muddy crowds…a few friends are coming this time that have never been before and are talking about going shopping for it…ha ha, have tried warning them but not interested - so muddy designer outfits all round it is!!!
Kate glad u home, sounds like things couldnt have got much worse at the hospital, hope they let u have the chemo.
Debs u make me feel really guilty, i really should get off my arse and do more exercise but when i get a chance to have some time to myself i really would rather just chill and have that time to me not jumping around!!!
Its 19th april that im off to barra, and cant wait…have sorted somewhere to stay its on a deserted beach on west coast, cant wait to do lots of walking and climbing and sunrise/sunset chasing…What date is Paris???
Sammy glad the interview went well, when can we see it??? Hope u had a good nite out, u really do deserve it…
Claire where r u hon??? Hope u ok and not working too hard…
The enemy gig was good but possibly the shortest iv ever been too they were only on for 50 mins!!! That didnt stop us staying out til 6 tho and getting absolutely wasted…Gonna have a weekend off this week!!! Have appointment with fracture clinic tomo and all being well back to work fri and sat then sun is mums bday so are going out (10 of us) for carvery and drinking - damn and i thought i had weekend off! Gonna get one of those big red noses soon that alcoholics get!!!
Right gonna go and finish some college work before tonite.
Keep well and lots of love. xxx
Well had another bad day - feel I’m reaching emotional breakdown point.
My sister in law is trying to sort out the £200 gas/electricity bill we received and other financial matters outstanding.
Then got my payslip to find they’d put me on half pay when they had told me they would not do this.
Had to take son after school to buy studded footie boots but at least got a bargain at £10 and a backpack for£3 and also met my consultant in John Lewis - he was very sweet but i realised I towered over him as I was wearing my heeled boots which gave me a sense of power!!! Still dreading tomorrow though.
Still trying to work out the best way to reorganise will - DIY kit or will writing service or solicitors. definately need financial help at present. When I went to CAB before, she told me what to do but now haven’t got energy or brain power to do it. the tramadol is making my brain woozy and I just do not want to face the finances.
I’m really scared about my femur going through my pelvis so hope mri report is with onc now and not so bad as SHO said in Kent.
If I could get the pain under control that might help me feel better but despite tramadol, voltarol and paracetamol still in pain. Have tried adding diazepam to mix as well. oromorph works for a while but needing bigger doses. didn’t want to go on MST yet but feel I might have to soon if pain does not improve.
Sorry - depressing post. struggling to pull myself out of hole at present.
Please give me a date to meet up - at least that is something else to look forward to.
Kate
Dear Kate
I am sorry to read that you are having a difficult time managing everything and just wanted to say that you are welcome to call the helpline for support and advice about how you might get help sorting things out. I am sure your Macmillan nurse would help out too if you can contact her, especially with the pain relief.
Helpline number 0808 800 6000 Mon-Fri 9am-5pm and Sat 9am-2pm.
Best wishes
Lucy
Hi Kate
I usually post on liver secondaries thread- sorry to hear you are having rough time. I have looked in here a little bit as I am a younger woman myself - I really hope you can get pain under control. I hope its ok for me to post here…i have been through the will thing myself recently with a solicitor, If I can help please feel free to PM me,
take care
Cathy
Oh Kate this sounds so awful, do you really need a will if married, just the thought of something so final and official makes me have goose pimples, cant you just write a little letter and copy it to a trusted couple of friends or relatives. and as for Onc wear higher heels tomorrow and refuse to sit or better still stand on soap box and sock it to him. Feel so bloody far away or otherwise would be round or offering more help, hope they get the pain sorted and goodluck tomorrow with tw@t.
Do you have wages in writing or can your manager sort for you, its usually HR (we are numbers to them) ,mine p*ssed me around too, although put me back on pay when I threatened legal action and national press, you could really do with their support at this time. Glad sister in law helping too and as I said before set any date other than 20th and I will be in for a get together, are you wanting us in southampton I dont mind the travel.
Rest as well as possible to be fighting fit for tomorrow, \
Love Debs XXXXXXX