Hello all
Got my results today. I’ve been told that the lump in the breast was Grade 3, 32 lymph nodes removed with 24 of them infected!!! Feel absolutely shattered by the news.
I have to have a bone scan and MRI
Been told I have to have chemo, radio, herceptin and tamoxifen
Haven’t stopped crying all afternoon.
HI Jan
Been thinking of you today.
Firstly the bone scan and Mri are routine at my hospital - so should think these tests are just being done as a matter of course - unless they told you different?
Do you know what chemo you are having?
As my consultant said to me if we removed 32 nodes and 24 were infected it means 8 had nothing wrong with them at all.When are you having scans?I think I had all mine within about 7 - 10 days.Mine was grade 3 with nodes but my scans showed clear so I hope yours do too.Easy to say but try not to worry too much.
best wishesXX
janraw i dont even know you but i feel your pain. which do you think is worse being told you have cancer or gettings results. my op is tomorrow and then the wait for results. i jus take each day at a time but talkin 2 other people on here is great cos i know there are people who are feeling just as scared and worried as i am. i will be thinking of you and i hope you find the strength you need.
Sending you lots of love - I remember this as the worst bit, I was distraught. Do call the helpline - I found it really helpful. I hope you feel better once the scans are over.
I hope you have someone with you
take carexxx
Hi Binkie & ardmhuire,
Thank you for your comments.
Should have the bone scan within 2 weeks, not sure about MRI yet. Was told I should start chemo within 2-4 weeks. Binkie, how many of your nodes were involved?
ardmhuire, i don’t know which was worse, being told I had cancer or getting the results today. I told myself ‘once my breast was off that would be it’ but don’t know why I thought that. Sitting in the doctors office today, i had so many questions to ask but couldn’t speak. My husband also went into shock, so I am going to take my sister with me next time as she is very straight-to-the-point as I am just bubbling wreck at the moment.
Thanks lovelypen, I will try to call the helpline when I feel up to it.
It’s nice to be able to talk to people that are in the same position as I am and hope we can continue doing so.
Love Jan xx
Janraw, if my shoulder was where you are, it’s yours as long as you need to soak it.
Remember, one step at a time. The lymph node involvement doesn’t mean anything right now more than you are going to go through it big time on treatment. Which is good!!! I’m also Grade 3. I’m on 6-7 months chemo (E-CMF - starting next Tuesday), 6 weeks rad, then tamoxifen, and I’m still waiting to see if I need HER2 treatment. We all know what you’re feeling right now, nobody knows better, don’t feel alone. You are absolutely not.
Hi Jan
Just want you to know I am thinking about you and my heart goes out. Its awful when you cant stop crying, I was at that stage a while back and got a little something to help from my gp. I’ve also read that some complementary therapies can be very good for relaxation.And I think you can get some on the nhs. Your bc nurse should be able to point you in the right direction.
Keep posting. Theres always someone here to listen and I have found the help line brill.
take care (((((((((((((((((((big hug)))))))))))))))))))))
Hi Ardmhuire
Just like to wish you the very best for tomorrow . Can i answer your question being told you have cancer and waiting for the results - both are as bad as each other!
However I found the op the easy bit. I was terrified just like you are now - I had a phobia of hospitals- but it wasn’t as bad as I imagined and on the bright side it cured my phobia!I will be thinking of you tomorrow let us know how you get on.
best wishes to you xx
{{hugs}} for you Jan. I know it’s not the news you wanted to hear. I truly hope and pray your scans bring happier news for you - there’s still a strong chance that they will. xx
To Ardmhuire
Had my op on the 7th, yes very scared and nervous, but was home on the 8th. As binkie said, the op wasn’t as bad as I let my imagination said it would be.
Wishing you well for tomorrow.
love Jan x
thanks for all your good wishes my friends. had op on thursday home friday and now jus takin it easy and lettin everyone look after me.
i know people are jus being kind but i am so tired of havin to repeat “my story” over and over again to different people. i know this may sound so ungrateful but i jus want to say i have cancer im dealing with it now lets talk about something else. im not trying to hide from my disease its jus that i am jus one person of millions who are dealing with this and i dont want mine and everyone else around me lives to revolve around me and my cancer. ok got that off my chest, forgive me.
so how are you all today. i hope you have smiled at least once today. laughter is the best medicine.
Hi ardmhuire,
Glad to hear you have had your operation, and your back home. I know what you mean about everyone being so kind, and the telephone was going about every 15 minutes to see how I was. You rest up now and keep up with your exercises, and let everyone look after you.
Will talk soon
Take Care love Jan xx
jan my name is martina jus so we are introduced properly. ardmhuire is actually the name of our house. thanks for takin to me jan
take care
Hello Martina
Hope you are not feeling too uncomfortable and that your taking things easy.
I am now coming up to 3 weeks, this wednesday, since having my breast removed. Still feeling sore but managing my exercises ok, which you MUST do. Will have to go up to have some more fluid drained this week, but that isn’t too bad.
Hope we can continue to chat on here.
Much love
Jan xxx
ah yes the exercises - oh wot fun. are you still sore jan, i thought by now the soreness would be nearly gone. im only three days post op. so have a ways to go but no matter i will get there.
so you dont have a drain in your arm like i do. i have to call up to the hosp once daily to get it emptied but you jus go and have it drained once a week, ah well we all have our own journeys to travel. i really love being able to talk to people on here, we are great solace for one and other.
take care jan
martinaxxxx
Hi, Just drop in to say how sorry I am to hear about your result. It’s been a tough one for you. No doubt we all share what you are going through. Wishing you a speedy recovery.
Love xx
misspiggy
Hi, Thankyou for message and good wishes. Just had a bone scan, and next week I’m having a CT scan, it’s the awful wait for the results that is pulling me down, I want to know, and I don’t ,if you know what I mean .But we all have to go through it.
love Jan xxxxxxx
Hi Jan
Just read your post…do you know how long you will have to wait for the results??
Sam x
Hi Sam,
No I don’t know how long I will have to wait for the results of scans, the waiting is just awful. I have my CT scan next Wednesday, so it could be a couple of weeks
How’s things with you Sam ?
Talk soon
love Jan xx
Hi…sorry to jump in on your thread. Just wanted to give you one tip re: your CT scan.
You will be asked to drink a jug of liquid before your scan and it is truly vile. Take along with you a small amount of ribena or something similar which you can add to the liquid to make it palatable. I’m not a whinger but this stuff is truly disgusting. I describe it as a cross between aniseed and industrial disinfectant!
I also had the tests you mention and a few more, luckily all were clear, but I know how scary it is going through all this. I wish you all the luck in the world…