There is now progression of the cancer area on my left illium (pelvis) and now there is soft tissue involvement along the illium wing. Pissed off. Have to wait a couple of weeks for them to decide treatment/surgery options. Phone is switched off. Not really in chatty mode.
It’s not the bone thing that scares me, I already knew it was there… it’s the soft tissue part that worries me…
:O(
Hi Poannie,
I just saw your post by chance and know it is usually really quiet on here at this time. Didn’t want you to have to wait too long for a post back. What b c…p news to get. Had a lot of c…p news this week myself about friends with BC.
Sending you a big hug and if I could I would come round and finish off a few bottles with you to get through tonight. Hang in there and see what the onc has planned.
love
Lily x
Like Lily really sorry bowt your results, keep that fone off havea good bawl and then deal with what tomorrow brings and hopefully the options will be more positive than you anticipate, im not sure what it means when its in soft tissue, but if you are like me mind goes into overdrive no matter what people say.
hope you get some positive news from Onc xx
Hi Poannie
So sorry the scan results were crap, something we all dread when we’ve got secondaries. I don’t suppose you will feel any better about it today so I don’t really know what to say other than ‘beat the uggers’. I hope you get more info when you next see your onc and the treatment plan is sorted and this helps.
Hugs
Nicky xx
I was thinking about cupcakes and you and then I saw your post. Its the news we all we know we are going to get but its so hard…
Hope you got some sleep, sending you love.
See you on Monday
Sue
Hi J. hun
So sorry to hear about progression, & horrible that you have to wait so long for a “new plan”. Do hope you’ll feel able to come to the BCC session on Monday – we’ll all need to give you plenty of hugs.
Marilyn x
Thank you for your comments… they do help.
I think Lea was going to arrange to meet up with Carrie on Sunday evening when she gets here, will email everyone and see what’s happening.
Is it 9am again at the MacDonald?
J x
Hi,
really sorry to hear your scan results are s…t. It is always the news we dread after a scan.
Love Debsxxx
Hi J
I am so so sorry to hear of your news- it just isn’t fair ever, but for you girl especially, it makes me really angry.
After my dodgy scan result last week, i too have been having to calm myself down a bit. Started treatment yesterday and that always helps me feel that something is happening, so I hope the onc doesn’t take too long in coming up with a plan for you. Try and get some rest and keep in touch.
Anne xx
Hi
So sorry to read your results are not good. Think we all dread getting bad news after scans. Thinking of you and sending lots of hugs.
Dawn
xxx
Really sorry poannie…know what you mean about keeping the phone off.
Do you know what the next treatment plan might be?
Hard time for you.
best wishes
Jane
Oh man - I’m so sorry. It seems a long time to wait for your treatment plan - I assume that they are going to discuss your case at a multi-disciplinary team meeting. Hang on in there, lets hope they ome up with something positive.
Take good care sport
Hi again J.
BCC session on Monday starts at 10.00 with “welcome & refreshments”, with first item on at 10.15. See you v. soon.
Marilyn x
Damn and drat to put it mildly. As if going for the scans and waiting for the results isn’t bad enough. I really really feel sad to hear your news - can’t wait to see you monday and give you a big but gentle hug.
Love Lea.
Hi Poannie, sorry about the crappy news, I hope there is a plan in place now and you have had a few of the promised hugs to help you deal with it all.
Thinking of you
Nikki
So sorry for your bad news.
Love
Jane x
Only just seen this. Sorry you’ve had cr*p results. Thinking of you x
Thank you all for your comments - thank you for your support.
My MDT meeting is this Thursday morning. My oncologist’s secretary said ‘I’ll type up the results for you on Friday morning, so you should get your letter on Monday’ I replied with ‘I’ll be rinigng you on Thursday afternoon thank you very much’
I think that they will probably biopsy the soft tissue cells, to see if I have a primary there (with my genetic position this can occur) and I reckon I’ll be having radiotherapy on my illium too.
Fingers crossed there’s no more bad news eh?
xxx
Will have fingers firmly crossed for the rest of the week
Fiona
I am so upset. Apparently they didn’t have time to discuss my case at this week’s MDT meeting, so I’m going to be talked about next week. I have another week of stressing.
I had my scan on 20 May and they had my results the week after. So almost a month of knowing that I have progression of my cancer, they seem to have no urgency about sorting a treatment plan out. I feel like it’s ‘well, you’re terminal anyway so there’s no rush’
Has anyone else experienced something similar?