I see praying it goes fast for us all! I’ve had my oncology app moved forewarn to the 5th so I will know exactly what treatment I will have x
Hi ana thankyou for your reply that brings me some comfort they have told me no longer are involved I just have a 6cm with calcifications around it in total size 9cm not entirely sure what that means but they’ve said based on size will be mastectomy so I’m advocating for a double with recon if option is available xx
Hi Shannon
Sorry to hear of your diagnosis it’s so hard being young with kids the whole world comes to a halt well it did for me… I meet my oncology team on Thursday …how long after you saw them did you start treatment xx
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Hello @chantelle29 i started treatment 3 weeks after my meeting with my oncology team. Im 6 cycles of tchp 1 cycle every 3 weeks .it is so hard with kids cause you just expect you are going to feel so ill, i have coped this first week but she has been at school and ive just taking advantage and rested whike i can 🩷 just take wach day as if comes we will get there xx
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Hi - such great news, so pleased. Best wishes with the surgery & your journey. I had a single mastectomy & decided to “go flat”. It’s working for me 
. Love the freedom & the asymmetry goes unnoticed. The surgery has proved to be the easiest part of the treatment. The community is always here. xx
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Thankyou and same to you! Think I’m still in the denial stage because I just keep tellin myself I’m fine and just having a boob job 
think reality will set in once I start treatment x
That seems like ages I’m hoping it will be the week after for me but who knows. And yeah I’m trying to grasp being useless once my chemo starts I’m so eager to just get on with it now it’s been a month since diagnosis on Thursday been the longest but quickest month of my life!
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Yeah i get you i got my results on the 28th october, then appointment with oncologist 6th Nov so 3 weeks from then. I just kept budy walking and doing bits and bons and tbh first treatment was here before i knew it. Yeah once you have your plan and start date it will go quickly 🩷
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Ah I see I had a standard app on October 29th then my results came back 7th November where they dropped the bombshell the next day I went back for a mammogram and ultrasound and second biopsy then had a ct last Friday to rule out any spread next so is with oncology start chemo as I’m having neo adjuvant with it being her2 and estrogen + x
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Yes its all so much at the beginning. I had been referred for a mammogram i never had a lump had changes tonmy nipple and a ropey feeling. I had been going to the doctors for about a year and a half about it at first. So when i went on the 10th Oct for my first appointment i never thought i was going to be going through all this. When i went down on the 10th they done a mammogram then straight in for ultrasound and biopsies. Then had to wait til the 28th for my results, i had been told it looked like dcis but then when i got my results there was an invasive area so then i was looking at chemotherapy. I was still waiting on an mri results to check the size of the area so that was a week of more anxiety, and then got a ct scan just to make sure it hadnt spread.
So got all tbe results back and they were happy to go with the plan of neo adjuvant chemotherapy to shrink it then surgery.
Aw hopefully then you will get your start date soon 🩷 it will all happen quickly x
Yes im triple positive +++ ,
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Bless you that’s a lot! Well wishing you the best xxx
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Wishing you best as well, will keep in touch throughout this journey we have x
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Hi - I just wanted to say how reassuring I’ve found your post. I’m lobular with a 64mm lump and I’ve felt really worried by the size of it. I’m in chemo first to try and shrink it - I’m over half way and it doesn’t feel like it’s shrunk at all but I was warned that lobular doesn’t always respond as well to chemo….
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Hi spudsma, the early stages of diagnosis & treatment were the worst for me. My neo adjuvant chemo was brutal (with hindsight ), but successful in shrinking my tumour (plus node presence). Pre-op my surgeon was super happy & est a reduction of some 30%. Yet pre-op US showed no presence of disease (?). It’s only when I saw the radiologist report (pre radiotherapy) that I realised just how large my original tumour was (80% of breast tissue). Shrunk to spotty micro tumours spread over base of 12cm pre-op. Lobular is so hard to identify both manually & in scans (other than MRI) -ultimately it was the pathology results on mastectomy tissue that gave definitive results. Historical data is for breast cancer, with 75% representing ductal. There is now a big push for seeking funding for specific lobular research (we represent ~ 12/13% of breast cancers). Good news is we do appear to be within those high survival rates to date. They are getting it right & improving all the time. 
& much love. Ana xx
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Thanks for this Ana - it has really reassured me. I’m currently definitely finding the chemo brutal so really hope I get some shrinkage from it!
I didn’t know that about lobular survival rates either - thank you!!!
Hi lovely,
What is your chemo routine and are you having hormone treatment along side it?
I have my oncology app tomorrow so will start treatment soon I guess x
Hi
Just started my chemo yesterday having 4 cycles of docetaxel.was very apprehensive before going but it wasnt too bad got talking wirh some lovely ladies.tried the scalp cooling cap.took a bit to get used to but if you can stand freezing cold on your head its well worth a go.i would say take some painkillers beforehand they did help.was there around 3 hours.the docetaxel only takes 1 hour but they had to give me anti sickness and steriods.i did make sure i was well hydrated before,during and after my chemo as it helps flush out the drugs. I would say though they gave me steroids but unfortunately i did not sleep a wink and was awake all night!.not good.they gave me some steroids to go home with to take for another three days as they help with the side effects of the drug but a very small dose so.il see how i get on going forward.we shall see if I get any other side effects apparently you can have different side effects up to a week.!.will update people on any bad side effects i may get.fingers crossed!!
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Hi mich
I’m having EC for first 4 cycles then 4 of T + phesgo
After that I have surgery and then continue with phesgo until if had 18 rounds of it!
I’ve opted to just cut my hair off myself I hate being cold and hair will grow back so that will also be one less thing I need to worry about I hate doing my hair as is so I guess there’s a silver lining 
Let me know how you get on I’m feeling nervous but ready , they sent me my anti sickness meds to take 1 hour before on the day x
Hi chantelle
Thanks for your message.
Just had my first chemo cycle on tuesday having docetaxel for 4 cycles.used the scalp cooling cap was freezing cold but managed to stomach it took some painkillers before i went seemed to help.they gave me some anti sickness tablets and some steriods before the chemo drug.but unfortunately was not able to sleep a wink all night! That was not good.having to take 4 steriod tablets 3 days after my treatment and some injections to help with my immune system.
Got really achy bones, muscles and joints today.maybe get something else tomorrow!
Let me know how you get on! Bye for now x