Unfortunately, the biopsy has shown I have a recurrence of Lobular breast cancer and therefore need to under go a mastectomy.
I am unable to have radiotherapy again, they don’t do it in the same area twice. So I await to find out what treatment I will have apart from the Mastectomy ofcourse.
My next step is to find out if it’s spread so I have a CT scan tomorrow. My results will not be until the 6th January, so it’s another long wait.
I’m not feeling to bad at the moment but have my ups and downs. Some days I am positive and strong, other days I find myself worrying about seeing family members grow up, especially the little ones. I know it’s silly to think like that but we are only human I guess.
So now my focus has to be on having a Mastectomy, which is incredibly emotional, I ofcourse want one but I wish I wasn’t in this position.
I’m also focusing on my lovely supportive family, whom I am so grateful for, as well as my lovely friends
I want to thank you all for your support, especially the ones that took the time to send me PM’s. I wish you all well. xxx
Thank you for updating us. So sorry you got the news you didnt want. It’s such a sh*t time and for you to have dealt with this previously is very unfair
On my hard days I try to remember that finding things still remains our biggest weapon. We cant change the facts but finding as much information as possible gives us the best chance. And we can do as much as we can behind the scenes to help. Eat well, move lots and go for walks and just grab every positive you can find. Friends, family, pets, uplifting music, good movies.
Let the doctors do their bit and dont forget to do yours. Everything counts towards recovery. You did it before, you can do it again
@al1kat thank you for your lovely message. Not the news you want at anytime is it but I’ve been here before and as long as it’s not spread I will be fine.
@foxgem that has brought tears to my eyes . Thank you.
I am so lucky to have a close family and some really good friends for their support. I don’t know why it all seems harder this time around, even before I found out it might have spread, I never cried last time apart from when I had to tell my family, this time I’m crying over the silliest of things, even the story lone on EastEnders lol. I know I will get through this and again it will make me even stronger but the waiting game is so tough at the moment.
Anyway, I hope you are well and thank you for your support x
I’m so sorry to hear you are finding it harder this time round. The waiting is horrible isn’t it? I’ve now been told that mine is lobular and er/te+ HER2-, but got to wait until 18 January for the MRI and then been told results will be discussed at the MDT meeting on 27 January, so realistically can’t expect any more certainty before then. I have just started Letrozole so hopefully that will keep things under control while I wait. In the meantime people seem to be mentioning cancer everywhere I turn!
I am finding this site and all you wonderful people by far the best support. None of us want to be here, but I think we’re doing a very good job of supporting each other and not letting this define us!
@al1kat Wow that is such along wait for you, I’ll stop moaning about mine! I really feel for you.
It’s just awful for all of us and we all having different paths but we support each other the best we can, it helps me so much.
I’m the same as you, everywhere you look you see cancer adverts etc, even EastEnders has someone on there who may have breast cancer, it’s like you say you can’t get away from it.
I really wish you luck going forward. Keep us updated. I have had a lumpectomy, radiotherapy, reconstruction operations, so if you find yourself needing any advice on them please give me a shout.
That is so kind of you! At the moment I’m at the point where I just want some certainty so that I can get my head round it and start planning. Though I was in a mega panic last night about something completely unrelated- we have three cats now because we’ve taken on my mother’s now that she’s in a nursing home. Hers are used to going in and out but have settled as indoor cats in our flat ahead of our move at the end of January when they can go out again. Our own has never been out. Last night she was missing for two and a half hours. I pretty much dismantled the flat looking under the beds and in every possible place I could think of (and several that were clearly impossible….) I had checked outside in our garden and our immediate neighbours but with no sign because I knew that the door had been open while I talked to the surgeon briefly. I was terrified about what could have happened but with the help of a torch we eventually found her cowering behind our neighbours bins three doors down. It was such a relief !
Hi Sue, I’m really sorry you’re having to go through this again. The waiting and uncertainty can be one of the hardest parts, especially when you’ve already been through so much before.
I’ve not been in exactly the same situation, but from what I’ve seen and experienced, results can sometimes be chased a bit quicker when the team feels they already have a strong indication, especially if they are planning next steps like scans or treatment options. The waiting still feels endless though, no matter how short it actually is.
The CT scan is often used to get a clearer picture and make sure nothing has spread elsewhere, particularly when there has been a previous diagnosis. It doesn’t necessarily mean anything worse, more that they want as much information as possible before deciding on the best plan.
On a personal note, after my own surgery journey, I found that speaking to reconstructive specialists helped me feel more prepared and less powerless, even early on. I had some guidance from a plastic surgeon called Dr Soma during my recovery, which helped me understand options and timing better, but everyone’s path is different.
You sound incredibly strong, even though I know it probably doesn’t feel that way right now. Take things one step at a time and lean on this community as much as you need. Sending you strength and hoping you get clarity very soon.
I’ve just read a letter from my surgeon to my GP that says I have stage 2, ER 8 out of 8. I don’t understand why my 6mm tumor is stage 2, as far as I know it’s not spread so I was expecting stage 1, I know this can change once they have operated and tested it but for now it’s confused me. Any thoughts?
I hope you are all doing well and having a lovely Christmas eve
so I have a CT scan tomorrow. My results will not be until the 6th January, so it’s another long wait.
