Had MRI today for DCIS

Hi

I was diagnosed with low grade DCIS three weeks ago and had an MRI today to establish how much of the duct is infected, I get the results next week. I have been reading lots of the posts on the forum and wouldn’t even have realised that DCIS came in different grades if it wasn’t for the forum and a subsequent chat with my breast care nurse who checked my records. I haven’t read about anyone else having a MRI and was wondering if anyone else has? The MRI nurse said that I was having an MRI as I am young, I am 49 and didn’t think that was young. My consultant has advised me that the treatment will depend on my results and that it treatment will vary from WLE or a mastectomy.

Soozi

Hi Soozi

I was diagnosed with DCIS intermediate grade in my right breast.
I had a WLE 3 months ago. I am 67 ,I did not need Rads and the risks outweighed the benefits of taking Tamoxifen or Arimidex in my case.

All I have is regular checkups with the breast surgeon.

I must say I feel a bit uneasy about the conservative treatment,but I do trust my surgeon.
I have had numerous mammograms and ultrasound but never had an MRI,

Take care
Annalyn

Hi Soozi

Breast Cancer Care have written a factsheet about DCIS which may help you to understand more about it, you can read it by clicking on the following link:

breastcancercare.org.uk/docs/ductalcarcinomainsitudcisoct05_0.pdf

If you need more information or just want to talk things through in confidence at some point with one of our specialist nurses, please feel free to use the helpline, the number is 0808 800 6000 and it is open Mon-Fri 9am-5pm and Sat 9am-2pm.

Best wishes

Lucy
Moderator
Breast Cancer Care

Hi Annalyn

Thanx a lot for replying, the consultant has told me how lucky I am to have non invasive, non malignant cells but the final outcome of this “lucky diagnosis” can be a mastectomy. I am also slightly concerned about the fact that he wanted me to have the MRI when no one else seems to go down this route. After you had WLE how long was was the stay in hospital and how long was the recovery period? The breast cancer nurse has told me that I should have an operation within four weeks of my appointment next week. With Christmas and my 50th birthday fast approaching I was just wondering.

Thanx a lot
Love

Soozi x

Hi Soozi

An MRI will help the surgeon to see the extent of the area involved more clearly and check for involvement of other areas so I don’t think you should worry about having to have one - sounds like Silver Service to me!

I was diagnosed with High Grade DCIS after a routine mammogram and know exactly how it feels to be told that I’m lucky because it’s not cancer …as such. (Of course it is!!!) When I went for WLE the surgeon was expecting to take an area of around 3cms but during the op discovered it was really 5.5cms - he later stated that, had he known it was that big before he operated, I would have had a mastectomy!

I suppose I should be grateful for small mercies but I’m feeling a bit sorry for myself today as I had to return to hospital yesterday, two weeks after the intitial WLE, for a wider margin to be taken - results on October 25th - hopefully they succeeded in taking the required amount this time or it may be mastectomy after all.

I think the time you stay in hospital depends on where you live - I was only in as a day case (Leicester Glenfield) for both ops - no drains or lymph nodes involved. My cousin in Derby was in for three days!

I was very tired for at least a week after the op but I was driving my husbands car 6 days afterwards - no power steering on my car so it took two weeks to get back in my own - hopefully may not be so long this time as I’m less bruised, just painful under my arm - typing is great therapy!

You will need someone to carry shopping and other heavy loads and reach for things on high shelves - you definitely don’t want to pull your stitches - but if you don’t have someone to accompany you then you just have to smile nicely and ask someone for help - I’ve loaded my shopping into trolley bags and asked people to load them into my car with no problems - I’m 54 and not exactly looking or feeling my best at the moment but have still managed to get help!

There are lots of people on this site experiencing the same feelings and you don’t have to feel alone or scared - there is lots of support for you here.

Best wishes
Maddy

P.S. Painkillers may give you horrendous constipation - you have been warned!

Hi Maddy

Thank you for your reply, I have been worrying that maybe they may have been looking for something else as no one else seemed to mention it. I get my results next Tuesday and will find out what operation I will need. Hopefully the MRI will have identified exactly how much needs to be removed and nothing else. Poor you though having to go through the operation twice and they still are not 100% sure, hopefully this time though they have taken a bit extra to make sure. Did your consultant give you any choice regarding your operation or just give his recommendations?

Before being diagnosed with DCIS I had never even heard of it, both of my friends who have had bc both had tumours, one had a lumpectomy and radiotherapy and the other had a mastectomy and reconstruction from her tummy but no chemo or rad. I do feel lucky compared to them as it was really devastating for both of them when they first found out and I don’t feel devastated at the moment as the prognosis is supposedly so good. Plus my Well Woman policy will not pay out as it’s non invasive bc even though the final result can be a mastectomy!

I already have my shopping delivered from my local superstore so this is obviously going to be a big help.

Thanx for the warning about the painkillers, I will take note. Whatever the outcome on Tuesday I just want the operation done and this “cancer” taken away.

Thanx for replying it’s nice to be in contact with someone with the same problem who you can ask those worrying little niggles to.

Best Wishes

Soozi x

Hi Soozi

Just to say I am thinking of you. Must be worrying why he wants to do the MRI but as Maddi says it sounds like silver service. I had LCIS and quite aggressive and a mastectomy with reconstruction from my back muscle. I opted for that because of the look afterwards but still suffering a lot of discomfot 4 months later but I know in time it will get better. I had mammogram on 19th March as routine because I am 52 and it was picked up then. I didn’t get appt til 3rd May and diagnosis on10th May. Such a long time. I actually phoned up the screening unit 4 weeks after mammogram but was told they were short of consultants to read the scans !! so from mammogram to op it was 12 and half weeks !!

Best wishes.

Brenda xxx

Hi Soozi,
The op went well - back on the ward by 10 and back home by 2.30 ! Have quite a bit of pain under my arm but it feels like a pulled muscle. Taking the dreaded painkillers but have upped my fruit intake and am trying to keep active - exercise helps alleviate constipation or so I’m told.

Just steeled myself to remove the dressing - was a bit worried last night because the wound had leaked onto my bra and shirt - it didn’t leak at all last time - They’ve obviously removed more ‘tissue’ (FLESH!!! - I’m fed up with euphemisms! ) - it’s not as bad as I was expecting, but it’s not as pretty as after the first op - hopefully it will improve when the swelling goes down.

Have to return for results on October 25th. hope you soon have news of your treatment plan

Best wishes
Maddy x x x x

hi sorry to b a bore but what is dcis and lcis. i was told i had invasive duct cancer is it any of this thanks

DCIS means the ‘cancer’ is within the ducts which carry milk from the lobes - generally thought of as non-invasive
LCIS means it is within the lobes which create the milk

Unfortunately invasive DCIS means the ‘cancer’ has spread beyond the ducts -probably just into the lymph nodes but it can spread further into the body

As I’ve not had the pathology from my lst op I’m still not sure if there’s been any spread but I’ve been started on Tamoxifen and am waiting for appointment for radiotherapy - recovering well from both previous ops if that helps!!

Try to access the information part of this site - you can get loads of free information leaflets and a folder which are a great help

Best wishes
Maddy xxx

Hi jal777

There is a post above from my colleague Lucy with a link to a Breast Cancer Care publication on DCIS/LCIS that you may find helpful.

Kind Regards
Katie
Moderator
Breast Cancer Care

Hi ,

Got the results from my MRI and nothing has spread, asked the consultant why I had the MRI and he said that it was because my calcium deposits were benign and the surrounding tissue was cancerous, he just wanted to make sure there wasn’t anything else. I am booked in for a WLE on the 14th November, should only be a day in hospital and no follow up treatment. I have been very,very lucky to have a diagnosis like this. So anyone out there reading this you can be as lucky as the consultant tries to tell you on diagnosis.

Love
Soozi

Hi Soozi,
Good Luck for the 14th - don’t forget - there are lots of us out here who’ve had the same op and are here to support you.
Best wishes
Maddy xxx

hi soozi
best of luck for the 14th. I am a man who had a mastectomy 3 weeks ago for dcis. They too told me I was lucky. I am still getting over it but each day it gets a little easier. You will be fine just make sure you do any excercises they tell you so you dont stiffen up. i am 37 and sporty so I didnt mind doing them as i want to get back on the badminton court as soon as possible. excercise that shoulder and arm every day!!!

Take care

Love from Mark