Caron, my heart really goes out to you and your family. /this situation with Marc is dreadful and effects the entire family. I can only imagine what it must be like as My nephew Finn, although he has his troubles, is at the moment doing quite well, but he’s only 2 so it’s still early days really to see what the cerebal pausey will bring later on dowm the road.
Have found that with the TAX, have been getting really quite depressed and so therefore have not been logging on quite so much. as i tend to start reading other threads and sometimes come across things i really wish I hadn’t. it’s strange how people keep telling me that with only 2 more chemo’s to go that the end is in sight. it’s only really now that it’s nearly over, you realise that no actually this is only the beginning! I’m not so worried about the rads, I don’t think, but I’m terrified now about the long term effects of taking tamoxifin. read last night, that your hair can fall out with is so does this mean then, that because i have to take it straight after chemo that my hair will never grow back???
Had to see ONC on Monday as a follow up after being in hospital. saw a different lady and she was very direct! so much so she made me cry as I told her about horrific bleeding i’ve had this last week and she said that if i was complaining about heavy periods then she would give me injections, zelodex i think, to shut down ovaries and bring on menopause. explained that side effects would be very harsh but it depends how badly i don’t want heavy bleeding again! For Goodness sake, are we not going thru enough bloody side effects with chemo and the emotional side of having cancer, and loosing a breast or in my case, a part of it, and the fact the when I was diagnosed my life was heading in a completely different direction as I was pregnant, now she wants to make me an old lady over night and absolutely no bedside manner about it. I went into that room terrified that cancer has spread to the ovaries or cevix and that’s whats caused the bleeding but she says she doesn’t know whats caused so lets switch ovaries off anyway, maybe should even consider having them removed! wow great!! because my cancer is oestrogen positive she thinks it would be for the best. How come no one has mentioned this before. And now to top it all my husband thinks that’s probably best option as well!!! He can’t quite understand the issue of me not only not wanting anymore surgery but the fact that I feel at 37 years old there are major issues about me not wanting to loose my ovaries as well as my nipple and of course my hair. why don’t dr’s and men see it that way??? Maybe you all think I’m mad and they’re right, but this is all really depressing I know that much!
Sorry about that rant and rave, but i feel a bit better now. Feeling so tired can’t believe I’ve gotta have next chemo on Mon, it’s come round really quickly this time, which is good i spose, well it would be if i didn’t feel so rubbish. Just hoping I don’t get the horrible allergic reaction with 2nd tax that Gail got, it’s my birthday on chemo day so don’t want to spend any longer at that place then is absolutely ness!!!
Caron you must have your first TAX on Wed?
Bright glad your ultrasound showed nothing serious, it’s given me a kick to demand an ultrasound when I see ONC on Monday!!
Gail, not sure it is possible to get thru 4 year old party without booze, do you have to then? Party is before the surgery isn’t it?
Shell, think you’re scanis Tuesday isn’t it. Good luck for whenever it is! thinking of you!
Take care Ladies
Jo X
