Hi lovely people
Has anyone had hand-foot syndrome and if so how did you manage it - did you have to stop treatment, if you carried on did it get worse?
Had desquamation/ skin peeing after first dose of docetaxal (and perjeta/herceptin). Resolved and started on weekly paclitaxel and a bit of skin peeling has started again though not as bad as last time.
was told grade 3 reaction and I’m not sure now whether I will have to stop chemo early which is NOT what I want. Any tips/ experience ?
thanks so much
Hi @glasshalffullbutleaky - I’m not sure of the name of what I suffered from, but it sounds the same. I had dreadful sore peeling skin on my feet, but not my hands. I kept going with chemo but I bought some of those socks that look like gloves, with individual toe sections that kept the toes apart (does that make sense?!) Those helped stop the toes rubbing against each other. My oncologist was very interested when he saw them! Also lots of moisturiser I’d recommend.
I think mine was worse with docetaxal, and eased when I moved onto FEC. I really hope yours starts to heal and that you don’t have to stop chemo. Do speak to your team as they may be able to safely reduce your dose, mine was slightly reduced.
Very best wishes to you, Evie xx
