Hi
I looked at spike thread call laser treatment or what every it said there was some very interesting reading about the basingstoke pelican cancer foundation. They spoke about doing surgery on liver mets and there was another sit about injecting chemo drugs straight into the liver and not in a vein so it does not go around your body.Will have to investigate some more
luv
mel
Hi
am going to see my onc today to find out what treatment they are going to give me.Not looking forward to that at all.I have this real issue about losing my hair as I did manage to keep it with the first lot of chemo that I had.Get this feeling that I might not be so lucky this time.Of all the other things going on in my life and I am letting this worry me!! Still have got my list off questions that I need answers to so lets hope they can answer them.
Mel
xxxx
Good luck today.
Mal
Hope the appointment with the onc went as well as could be expected.
Been crossing my fingers for you. (Means “good luck” i my language, hope it means the same in English!)
Ca-va
Hi Mel,
I am so sorry to hear that it is now in your liver. I was diagnosed with primary BC and liver mets within a few weeks in March/April last year.
I was wondering how you got on yesterday. I hope you were able to take a friend with you, and that the staff took things slowly and made sure you understood everything. It’s such a b***er having to think about more chemo so soon after the last. You just wonder where on earth you will be able to get the strength. But you will. Whatever it takes to treat this, you will find the energy to bear it somehow each day. A friend of mine says ‘you only need enough for today’.
Big hug coming at you. Let us know how you are
love Jacquie x
Hi
went armed with my list of questions to th onc and things started of well I asked them and he answered.then I lost the plot and didnt write anything down.Once we got to I could lose my hair I went into a daze.I know with everything else going on that is the least of my worrys but it is just this thing that I have about being bald!!!
they mentioned 2 lots of chemo CMF and FEC I think that is what they were talking about giving me.But as I lost it will ring the bc nurse up again today to check.What did everyone else have?
I feel in a bit of a daze at the moment,that this is just one big dream and I will wake up soon
Mel
Hi Mel,
it is all a bit of a fog isnt it? I have not had the CMF but I did have 6x FEC the E being epirubicin and that was the one that made my hair fall out. It is a rotten shock and I cant say anything that will make it any better sorry.
It did grow back thicker and curly and I never once complained about it! This last time I took control and had it cut really short it was not as devastating but still not a pleasant experience.
Good luck with your treatment.
Love Debsxxx
HI Mel
It does all get terribly confusing doesn’t it? I find the onc often gives me so much info and I’m left thinking about one thing whilst he is still giving me yet more info. It sometimes is just impossible to take everything in.
Like Debs, I’ve had 6 x FEC but not CMF. They are both cocktails of 3 drugs. FEC stands for fluorouracil, epirubicin and cyclophosphamide and CMF for cyclophosphamide, methotrexate and fluorouracil. So 2 of the drugs are the same and it is whether they use epirubicin or methotrexate. Your hair definitely does fall out with FEC though you could see if you could use a cold cap which might reduce the hair loss. I used them initially but actually hated them - gave me bad headaches etc - so in the end decided I just preferred going bald! But they might be something to try.
Really like Jacquie’s friend’s ‘you only need enough for today’ (about energy to bear things etc). So often what we do is think about the unknown future and feel we just won’t be able to cope.
Hope all goes well with the treatment - let us know how you are doing.
Kay xx
Hi
Am a bit fed up and feeling low.have been in some pain for the last day or so and am worried as it is just below my rib cage were my liver is!! have had to take some morphine which I am feeling is not a good sign.
Kay maybe I misunderstood about the cocktail of drug as what is the point of giving me 2 that are the same.so will ring my BC nurse up today one to ask about this pain (lets hope it is just bad wind or something as not bee eating much) and 2 to check on the drugs I am going to be given.Sometime I don’t hear what they are saying to me and I get it all wrong ( well more to the point I switch off)
Mel
xxx
Hi Mel
sorry to hear you are in pain try not to panic(easier said than done) I have never had pain in my liver even when it was at its worst in Jan this year it was just very big, a bit like later stage of pregnancy.
Please Mel make notes they wont mind ask them to go slowly when they are explaining things to you remember it is o.k. for us to take charge.
Love Debsxxx
Hi Mel,
I had the E and the F parts and opted for the cold cap. I did have quite a lot of thinning but manged to keep a decent covering. Those who didn’t know me would just think I had thin hair. Yes it is uncomfortable but take a couple of painkillers half an hour or so before they start. If you have long hair get it cut short beforehand - the cold can is more efficient that way. Make sure your hair is wetted before it is applied, and that you can’t feel any air pockets. The crown and top are most vulnerable this way.
Dawn
xxx
Just read your post, so sorry for what you are facing. I had BC just over two and half years ago, had a mastectomy and the usual chemo and radiotherapy. I am fine just now but what your going through is my worst nightmare. Just wanted to wish you all the luck in the world and I hope the doctors are able to keep your cancer at bay.