Hi Cathy, Tracy, Beli and others,
You poor things - it’s all horrible. I really feel for you.
Sending great big hugs
Jacquie x
Hi Tracey and Cathy
Picking up on threads that I have missed being away, hoping you taxol goes ok, It is so difficult living in this parallel world between scans and treatment when everyone else’s life goes on , I am waiting for another scan , frightened that Xeloda not doing it’s job, I have been away for a family funeral and came back exhausted and v breathless. Took yesterday off work to recover but in today but not really able to concentrate.
Thinking of everyone struggling with this
Kathryn
well went for my taxol today and they decided no more zometa and back to pamidmomite as before . i couldnt do that zometa it was vile .
anyway seems my billrubium is down from 30 to 15 and one of my liver enzymes is down ( the one they look at the most ) but 2 are up but they said not to worry as sometimes they go up before they come down . this was after 3 weekly taxols so i am crossing my fingers its working .
i didnt cry today , only when the one of my neighbours said how are you i havant seen you in a while ! so doing well on that front .
i am so tired now my eyes are stinging , no appointments tomorrow , just physio thursday and hospice nurse friday .
bye for now
love Tracy xx
p.s . accepted re the sirt now , nothing i can do .
Hi tracy
we are on same taxol schedule tuesdays- had zometa, taxol, zoladex today…its Jane and Kate on Thursdays . I have had two now. Went totally solo for this one and then took the tube back…i am a little crazy
I didnt ask about my liver ezymes and such, its good bilirubi went down like that - its obviously doing something You are brave to ask, I simply could not face it, when the doctor came round I just didnt have the courage to ask anything at all!
My eyeys are stinging a bit…hope you are getting on with hospice people ok mine is very nice and i find it quite a reassurance knowing I can turn to them, they also invited me to a makeover next week with Trinny and Susanna.
Katie hope you are OK…
x
Cathy
Tracy Glad things went well for you. Hope you get on ok at the hospice.
Jacquie Thank you for the big hug it was definitely needed.
Cathy Sorry your eyes are stinging is this a side effect of the treatment. I hope you go to the makeover I think it will give you a lovely boost.
Love Beli x