Hello everyone, I’m new. I found a lump about six months ago, took me about six weeks to pluck up the courage to go to the doctor, then had to wait four months for a hospital appt. The appt was two days ago, I suppose I thought i’d be ok. I had a mamogram, ultrascan and biopsy which seemed to go on and on. I began to think this wasn’t good.
The lady who did the ultrascan said she could see something, well this gave me the shakes. Then the constultant said they were pretty sure it’s cancer.
I have two boys, they both have aspergers syndrome, a mild form of autism. They are very needy. So far i’ve only told my husband and my friend who was with me at the hospital.
I have to wait two weeks for the results of the biopsy. I know i’m not alone to experience this sort of nightmare, but I feel alone at the moment, like no one else could feel the way I do at the moment, so I thought i’d join this forum. I’m suspecting it’s invasive, i’ve been reading about the treatments and it’s just making me feel worse.
I’m interested in alternative therapies and suppliments too so will try anything.
Any help or support or advice would be very welcome, and thanks for reading this long post xxx
Hi there
Just saw your post sitting all on it’s own and I wanted to give you a cyber hug and to give you some support. Lots of the ladies will be along soon to do the same.
I am so sorry you find yourself in this awful position, the waiting really is the worst bit. I hope the doctors are wrong and your ok, but if there not we will all support you the best we can.
The helpline is also fantastic, maybe give them a call too.
I was in your position seven months ago and it does get easier.
Tons of hugs x x x
Thanks so much stargazerlilly, your supportive words mean a lot. I’m so miserable at the moment. I must cheer myself up before my boys get home from school, my youngest always knows if I look upset about anything.
Do you have children? xxxx
Hi Eyebright, sorry u find yourself here, the waiting really is the worst part, your mind starts imagining all sorts & will go into overdrive. Two weeks is such a long time to wait, i only had to wait a day for my results but unfortunately its not the same in all hospitals. As SGL says maybe give the helpline a ring & if u need to post on here pls do, u’ll get loads of support & advice. And a lot of lumps are benign, hopefully their suspicions are wrong but if its not the news your hoping for the treatments now are fantastic & we’ll all be here to help u. Take care x
Hello Eyebright,
Just to affirm what the other two have said… this is a place where we know about the waiting and wondering and where there is loads of support, advice and laughter inspite, despite or to spite the worry, fear, etc.
Hopefully you will be one of the many who return to tell us it was a ‘false alarm’ but if not, please be assured that treatment is amazing these days - very sophisticated - and that hospitals will get moving quickly if they need to.
I am starting to call by here less now as I am four months past the end of treatment, but whatever lies ahead you will find people to share with, and as I can ‘testify’ it is all doable.
Many people on here are mums of young children who will empathise with your situation. I’m sure your love for your children will help them cope with whatever life sends your way.
Gentle cyber hug.
Aww, well I was rushing out the door late for an appointment but I had to stop and reply because my heart broke for you and your lovely family.
I have two children but there grown up, the youngest left for uni on sat and we took him down to Canterbury and I did shed a tear.
Please add me as a contact and I will do all I can to support you, as I know only too well what a dark place you are in now.
Big hugs x x x
Thanks so much stargazerlilly,
I live in Ireland, where I think the health system is much worse than England (i used to live in England).
I have to travel a long distance to get to the nearest hospital that deals with breast cancer. It makes it all so much harder.
I hope your son gets on well at Canterbury, so hard to let your children go, I miss my two even when they’re at school!I’m not sure how to add you as a contact, I’m not very good at computer stuff, but I will when I’ve worked it out!It’s probably obvious.
Thanks also Revcat and hjv123. I can’t even think that the doctors might be wrong, they seemed so certain. If they were wrong it would be too good to be true, I does that happen, that the doctors think and say it is cancer and then find out it isn’t? I don’t think that will happen to me xxxxxand hugs
Hi eyebright
I can only repeat what everyone else on here is saying. The waiting is definitely the worse time ever. Will hope and pray that your lump is benign. I went through similar in June of this year, but strange as it may seem once I knew what it was and I got my programme for treatment, I got my head round it and accepted. I am now nearly half way through treatment and it is all doable. Please keep posting as all the lovely ladies on here are so fantastic, I would have found it much harder without their support. Please PM me if it is any help.
Love and hugs to you and OH and your 2 lovely boys. xx
Dear eyebright,
Welcome to the forum. It’s good to see you have already had some support. As stargazerlily mentioned you could also give the helpline a call for information and support. If you are in the Republic of Ireland, the number is +44 2076 200 077. They are open from 9-5 on weekdays and 9-2 on Saturdays.
Take care
Very best wishes
Janet
BCC Facilitator
Hi Eyebright,
I’m a mum on here, and I’m on the autism spectrum and have breast cancer (and work as an adviser on autism nationally).
Welcome from me too.
Sad that you’ve found yourself here, but there are so many lovely people and so much good advice to be found on here.
Whatever they find, the treatment these days is very good and 8 and out of 10 people have a very good result. I won’t pretend the treatments are fun, because they’re not, but they’re doable for most of us and mostly they work really well.
Hard when you’ve got youngster on the autism spectrum…but we work well on what I’d call hard facts, and knowing what will help and what won’t. Happy to help with that if needs be…
Ann x
Hello again.
I am really sorry that the health service is not very good over there, I think its terrible that you had to wait so long for the initial appointment, thats totally unaceptable.
I really hope if you are diagnosed (and I am keeping my fingers crossed that its all a mistake and you WONT have cancer) but if you do, I do hope you get some treatment quickly, as the waiting around it the worst part in all this.
I will add you as a contact, and I mean it, if there is any thing I can do to support you, please just ask.
I am off having chemo tomorrow, so wont be on here much tomorrow, but will look out for you at the weekend.
Big hugs xxx
Hi Eyebright,
Nice to ‘meet you’ but sorry you are here. As everyone has said waiting is the worst part and you’ve clearly been waiting and preparing yourself for months already.
It is a hard, dark time I know. I hope you get some answers soon. Hang in there. We are all here if you need to chat!
Hey Eyebright, such a shame you’re here, but I can’t begin to reassure you enough that you have joined the most fabulous site, I have found nothing but fantastic advice, guidance and support from ladies who truly know how you feel. Such a confusing time but the best thing here is you can ask anything you like and there will always be somebody here to make sure that 1 you don’t feel silly asking and 2 you don’t feel so alone. Best wishes and hope you don’t have to wait too long for your results, Simone xxx
Hello everyone,
I was so surprised to click on here this morning and see so much support for me, it really makes a difference and makes me feel less alone. Thank you so much.
I have another appt for 4th October, it’s just a follow up after the biopsy, but no guarantee they will have my results.
Well, my husband is taking me out for the day so I will get back to you all later.
Stargazerlilly, I think I accepted you as a contact, I hope I did! Bit dim with computers, but I’m getting better.
Lots of love and hugs to you all xxxxxxxx
Enjoy your day Eyebright!
I have a son with Asperges, and although he’s now 25 and married, he too has needed to be told what’s helpful and what’s not! He and his wife came down to stay the weekend before my mastectomy (on the Monday morning) and he texted to ask if he could invite friends over for dinner on the Saturday. As my OH was on crutches at the time, with a broken ankle, and i was about to go into hospital… what??? No. Can’t cope with that right now… OK, that’s why I asked… says he… during treatment I’ve learned that he doesn’t know I’d appreciate it if he phoned more often, so i now say “I’ll speak to you at the weekend” or whatever… and he phones! Your boys will take what you say as fact… and will appreciate being clear about what will help etc… but when my lad was a lad, he resented it if I was not up to par, because he could be quite self-centred… It just adds to the things to think about doesn’t it? do you have breast care nurses under your system? They are a god-send here… and might just be able to chase your results up for you if you do have access… God bless… Jane
Hi
Sorry to find you here but as everyone else says this is a fantastic site for anyone worried about bc. Hopefully your results will be favourable. Wishing you all the best luck. Hugs to you and your family. M
Just wanted to add my welcome to your list. The support and love you will get from this site is amazing, ask anything rant or feel sorry for yourself we have all been there and can understand. The waiting is the hardest part.
Take care and look after yourself.
Fi XX
Thanks everyone for your support, it really does make a huge difference. Just reading all your posts seems to lift some of the weight thats on my shoulders at the moment.
I had a lovely day out today with my husband but when we got home there was a letter for me, an appointment for a full body scan, for next Thursday. The letter had Nuclear Medicine printed on it in huge black capital letters, and told me within minutes of getting into the clinic i’d be injected with a low dose of radium which will act as a tracer.
It just looked so frightening and I’ve been in a panic ever since.
Also it seems a bit unfair that I have to have this before my results have come through.
Thanks for the number Janet, I think I’ll phone up about the scan, I’m so worried about it they might say something that would reassure me.
Thanks again everyone for all your support, I’m so glad I found this forum, lots of love and hugs to you all
Eyebright xxx
Hi Eyebright,
the scans do sound incredibly scary don’t they.
The bone scan (which this sounds like) is utterly painless, but a bit time consuming as you have to wait for a few hours after they inject the radio-isoptope beofre they can do the scan. I was warned by a friend who has regular bone scans (for a rheumatoid condition) that the plate passes very close to your head (feels like about 2 cm away!) and body, so I closed my eyes at that point. They also did a second oblique scan near my tumour which left my mind in free-fall - what had they seen? Nothing!
They will probably also do a CT scan to check your organs, again a lot of hanging around is possible and you have to drink loads of water beforehand. This one was quite quick (thoguh a 3 hours wait to get in due to emergencies!) and not so claustaphobic.
The machines vary a bit from place to place, so my experience may not match yours exactly. It is a very scary time - for me it was the worst - but you’ll soon be through it and have a plan for what’s ahead.
Try to have a good w/e.
Thanks RevCat,
Just knowing a bit more of what to expect helps.
But I’m so scared they’ll find a whole lot more things wrong with me. I’m telling myself time passes so quickly, it’ll soon be next month…soon be Christmas and I will have moved on from this point.
But at the moment it’s just horrible.
I hope you have a good weekend too
Love Eyebright xx