I am 45 diagnosed with secs. in bones and widespread in liver last May.did rads on bones and 17 cycles of Taxol to which the liver functions responded well to and tthe readings were looking good. Last Chemo Oct 28th and started Aramidix- had scan start of Ded. which indicated stable and then after a few weeks started going jaundice and onc. said going back to where we were in May to stop Aramidix and started chemo Vinorelbine. He said this is the last chance and they will not be trying anything else. Iam gutted as thought there was loads out there. HAS any one had a similar experience as I feel there is not much hope left and the docs are giving up on ME!!!
I am so sorry you feel so desperate, any change in the disease pushes us this way, it’s fear of the unknown again I guess.
I am sorry I cannot help you as don’t have liver or bones, but just wanted to send cyber {{{hugs}}} and say I am sure someone will be along soon who can give you some advice.
Nikki
hi
I am so sorry to read this but hope i can offer some help but im new to all this secondary diagnosis! i was diagnosed with grade 3 invasive ductal cancer HER2+ 2 lymph nodes involved, i had 8 chemo, 4x taxol/gemcitabine and 4 x epirbicin and cyclophosphamide, WLE, 20 radiotherapy and 18 hercepin , great results i was given NED , i started with a pain in my side and shoulder i had blood tests in dec 09 everything fine, the pain persisted and i was sent for a scan discovered 3 liver tumours what a shock! anyway my onc has started me on cepcitabine chemotherapy these are tablet form and he assures me they have been seeing great results, i went to sse him this morning as i was asking about other treatments if this doesnt work and he said there are lots of other treatments out there they can try, please dont give in , sorry if this is rambled as i said i am pretty new , thinking about you
galen xx
Hi habbi64
I am sorry to read you are having such a tough time. BCC have an online chat facility where you can join other women with a secondary diagnosis and speak in real time on-line. You may be able to talk with others about their different treatments. This service runs on a Tuesday evening 8.30pm to 9.30pm and a new session beginns on 13 January from 11.30am to 12.30pm. You may also find it helpful to talk things through with one of our trained members of staff on the BCC helpline. The number to call is 0808 800 6000 and the lines are open Monday to Friday 9am to 5pm and Saturday 9am to 2pm.
I hope this is helpful.
Kind regards
Sam (BCC Facilitator)
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Dear habiba,
I’m so sorry you are having to deal with this news,and am sure you will get some more advice. I am surprised that your onc has not indicated any other treatment options,which may include hormonals , other chemotherapies or trials. Has he/she explained his reasons for not thinking there are any other options? You are entitled to another opinion, and can ask your G.P to refer you. Christies in Manchester of the Marsden in London could be options.
Good luck, and please let us know how you get on.
Nicky
Hi Habibi
I can understand your worry I would want to know why they think there are no more options for you. Like Nicky I have been led to believe that there are all sorts of therapies and chemo that can be tried depending on the type and spread. I think your age and physical condition plays a part in deciding treatment options too. Keep asking till you get some answers
Julie x