I have been diagnosed 10 months with mets to the lungs and 5th rib. Only just getting to know all the terms, I saw my onc this week and gave him a long list of drugs I had heard of via this forum mainly and asked him to go through each one, he crossed out some of them as I am HER negative and some of the drugs only work if you are HER postive. I didn’t realise that Hercepti, Pertuzumah and the new I-dMI will not be used for me so I was abit disappointed as I have heard good reports on these drugs on this forum. How are people out there doing who are HER negative and how common is it that the cancer can switch?
Hello,gigli,yes,I know what you mean ,it’s like you suddenly become fluent in this foreign language called cancer. I’ve been diagnosed nearly 9 months with double whammy of primary and bone mets. I’m ER+ and there are lots of drugs for hormone BC. There are plenty of ladies on here who are doing fantastic on hormones. I’m on letrozole and zolodex(puts you into menopause) at the moment. The higher percentage of BCs tend to be hormone BC. I’m not sure about how common it is that they chance receptors,someone may know that answer.
If you don’t mind me asking what treatment are you on or have tried so far?
Huge hugs to you,Helen xxxxx
Is ER + the same as HER +? I have had 8 doses of doxetral (Taxol) I think it was and now I am on Tamoxifen. I am having a scan around April/May time. I feel really well in myself and run everynight and cycle to work everyday but I know that cancer doesn’t care if you are healthy. I am 46 years of age and I had my ovaries taken out 31.12.13 to bring on the menopause. The operation went really well and apart from the odd hot flush I have been fine. Also Tamoxifen has been good to me with no side effects.
Thank you for your replies. I understand it more now. I have a monthly injection for my bone mets which is Denosumab and not Zolodex. Maria X
HI desi-2 - yes I had 8 lots of IV chemo. My hair is just growing back now. I feel I did really well on it. Physically I was ok - I was more emotionaly effected as I was still coming to terms with my diagnoise. I don’t cry as much now but do on occasions look myself in the mirror when I’m alone and say the F…K word alot. My husband told me last night that he has been made redundant from his job - we just don’t get a break. I’m now the main bread winner and my health could go at any time. I have to stay strong and focused. X