Hope your chemo goes ok this time @shannon27 . I know its so hard when each time you feel worse, but you are nearly there, keep going, there will be better days soon.
Penny
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Thank you penny, cant wait for the better days 
@arty1 I honestly believe that nothing stresses me as much as it used to after you’ve been through what we’ve been through. Sinkholey-schmoley! Sorry about the house purchase but maybe it’s a blessing in disguise right now.
@pennyp - You have the pullet too!! Maybe when we do a body painting calendar we will all have the same hairstyle. We can call it Painted Pullet Pin-Ups! That would make you Penny P of Painted Pullet Pin-Ups. 
@shannon27 You are getting there darling. Just two more. I think the steroid dip can make the mood low. We are cheering you on.
@kartoffel - I see the Cancer in Common event mentions glitter. You know how much I love glitter, right? I will be going for it so this is your advance warning.
I have got two free tickets to the cinema for this weekend so I suggested to my best friend that we go and see Bridget Jones. No, she wants to see the Stephen King about the murderous scary drumming monkey. Oh well…it’s a trip out.
Happy Friday all,
Salbert
x
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@salbert I would expect nothing less from you. I think I need to get some glitter so I don’t look all country mouse next to you! 
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Hy just got my pathology results today lymph nodes are clear but didnt get clear margins i need to have a second surgery and they are changing me from phesgo to kadcyla. Is anyone on kadcyla and what are the side effects. Can you still work whilst on kadcyla?
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@caz591 that’s very frustrating you need a second surgery … it’s not uncommon though so don’t panic x
I believe @kartoffel is on kadcyla
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Sorry to hear you need another surgery. I’m on Kadcyla 
have had 4 and getting 5th next week. On the first cycle I had a little nausea (managed by some left over tabs I had from chemo), insomnia and slight loss of appetite. I’ve had a small rash about 10 days in on my chest each time but I had very bad rashes on Docetaxel and think my skin is overly sensitive still - hydrocortisone cream sorts it and it’s not itchy so doesn’t bother me. I also have blurry vision due to dry eyes. Again, this was a problem I had during ECT and was almost better but Kadcyla has dried them out again. I’ve gotten better eyedrops/gel from my opticians and using heat pads and it’s improving steadily … that was my most annoying side effect tbh! Otherwise I’ve been really well and not had any the side effects from the first cycle since then. It genuinely comes to the next infusion and I can’t believe it’s time again as I’ve been living my life more normally now. I had exercised throughout my treatment last year and have been managing to up my weights again and do more intense spin classes/start running whilst on Kadcyla and feel much better than on my last chemo. I have been off work but am going back on my phased return next weekend as I’m feeling confident I can start getting back to work after trying out a few cycles of this!
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@belle thats good to hear i just want some normality back in my life. Second surgery doesnt worry me it was them changing me from phesgo to kadcyla and it will be 14 cycles . I just wish my surgeon had taken more out then i wouldve been starting radiotherapy in a few weeks.
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Hopefully you’ll be ok on it too I’ve been doing more and my neutrophil levels etc have been decent too (they were ridiculously low during last chemo) so I feel like I can go to some social things again and out for meals etc too without worrying
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x
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@caz591 I’ve had 7 out of 14 cycles Kadcyla and I’ve got a work trip to the US tomorrow which my consultant is happy for me to do in between cycles. I’m tired and occasionally I feel shitty, but I don’t know how much of that is due to the Kadcyla and how much is due to the fact that life is really freakin busy. I’m back to work like normal 1x or 2x a week in the office, running 3x a week, weights 3x a week, some HIIT classes in between and I’m back to doing the weights that I was before cancer. My HR gets a bit higher when I’m running, but not a huge amount. There’s loads of posts lately about Kadcyla and people’s experiences, most people seem to be able to just get on with life as usual. Hopefully you’ll be the same!
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That’s amazing the amount of activity you can do. I used to lift weights before my diagnosis but now struggle with cording and tightness around shoulder, chest and armpit. It may be my age, I’m 56 today. I will get back to it eventually I’m determined to get strong again!
We are all so individual, from the age we were diagnosed, our fitness levels and health issues before and after our diagnosis. But we will all get stronger together
@caz591 great news about lymph nodes, doory to hear margins not clear but you have a plan and two lovely ladies on Kadcyla have already replied to you.
Met the lovely @salbert today in person. We intended to meet for 30 minutes as I was travelling through Surrey but it was an hour. Couldn’t stop talking. We both agreed this HER2+ thread is needed for ongoing support and there are so many different treatment plans for us all.
Off to see my children and dog for birthday cake 
Happy weekend all.
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Happy birthday. Enjoy your cake
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Well I am literally buzzing, not just from the large Americano I have just drunk but from finally meeting up with the One and Only @naughty_boob. We did not come up for air. There was so much to chat about and we would have still been going if it weren’t for the fact that her poor husband was patiently waiting for us to finish. Pic attached for posterity!
Good luck with your American trip @kartoffel You are amazing! Yes, get glitter for July! 
@caz591 Great news that your lymph nodes were clear. I had to have further surgeries too and ended up with a mastectomy but here’s hoping they get clear margins next time. Glad some of the Kadcyla girls can give you the lowdown on their experience of it.
I’m off to the cinema now to see this Stephen King film. All that remains for me to say is HAPPY BIRTHDAY NAUGHTY BOOB!! 
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Do you have your 14 cycles of kadcyla first then radiotherapy or do you have radiotherapy then cycles of kadcyla? X
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Good heavens. You’re even colour coordinated. Sounds like a great meet up.
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@naughty_boob happy birthday and glad your meet up was good. Just so encouraging from you all getting on with things! Gives me hope while I still await results of 2nd go for clear margin. Meanwhile I’m on train home after Persian Afternoon Tea in Birmingham!
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@caz591 i had radiotherapy first (continuing phesgo till I started Kadcyla/during radio) then 2 week break after radio before starting Kadcyla. Everywhere seems to be different… There is a very small risk of lung issues with both radiotherapy and Kadcyla so my cancer centre prefer to do one at a time to reduce the risk of any issues. I do think it is a very small risk though, as plenty places seem happy to do both at the same time.
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Yay !! What a fab photo !! Two legends together !!
Im up to my eyes in it as have been quietly organising s huge network event for my industry and its tomorrow … 80 people expected ! All money raised is going to Breast Cancer Now … I’m exhausted already 
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Good luck and enjoy tomorrow!