In response to request for pic. Poppy and I on our Pets As Therapy visit today-some things just have to go on!
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Congrats to Jessy Bessy and Galdious! Agree with Salbert so important to share the positives!!
I still feel like I’m recovering from sixth chemo which was two weeks ago. The main thing is the stiff leg joints which apart from the bone/joint pain I have had each cycle in the first week, I haven’t had it going on this long.
I’ve got my mx coming up three weeks today. My surgeon has been really lovely and supportive so I am so glad she is operating on me.
Ps lovely to see the pic of Salbert and Naughty Boob. Completely agree this thread is a must have xxx
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Great news for @jessybessy and @galdiolus , congratulations. You can breathe now. Its good to hear the good news stories as well as struggles, encouraging for the newbies on this thread.
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Congratulations to getting pcr 
Ive got my chemotherapy on the 14th march:crossed_fingers:
i cant wait to recover from that and start to feel better 
xx
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Congrats to you and @galdiolus on the pcr! I remember when they told me i got pcr and i just cried. It can’t go any better than that!
I wanted to ask on here if anyone as ever talked about reccurrence after pcr… and if it is low chance of it? Its one of those topics if i dare ask or not 
i did a little digging on internet.
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Thank you! And yes a community champion thats what it was! I am going to at some point… i still feel a bit in the thick of it all atm. But would love to join in the future 
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Well it’s time for me to read through and catch up again ! So much fabulous news too !
I’ve been quite poorly this week , to be expected hosting an event for 80 people and being in my feet for ten hours three weeks after chemo 
however we raised a fantastic £510 for Breast Cancer Now !
I too was asked to be a community champion and I’m not at all surprised that @salbert and @jeml have been asked too xx
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Hi all. To be truthful, I’m not sure I’ve managed to post on here yet (that darn chemo meno brain) but I read regularly. What a fab group. My history is I’m 53 and found a lump beg June 24. Diagnosed June 25th. Started Chemo July 22nd (so i was in July starters group for a while but cant find it back!) I was supposed to have 6 chemo inc phesgo sessions every 3 weeks. I had such awful stomach problems and reflux that oncologist stopped it after session 4 at end of September. It was explained as chemo attacks all our fast dividing cells. Our digestion, from mouth to botty is one long tract of fast dividing cells. Recovered by end Nov ready for December 12th lumpectomy, missed works xmas do I ORGANISED! Christmas off treatment with a neat white buzz cut whoop whoop. Now get a bit of reflux with usual suspects of alcohol, loads of chocolate. I did lots to help heal my gut. Bed is raised at head end. I do the 30 diff fruit n veg a week, decaf tea and coffee. Eat kefir yogurt and omega capsules (oncologist said take Omega) I was already gluten free as that gave me all sorts of symptoms including reflux and bloating. For everyone with a trashed micrbiome from chemo the biggest game changer for me was Dr Vegan detox and debloat capsules. They have other gut ones too and are a v clean brand. No fillers. So 7th Jan told was cancer free but all i could hear was they had cut out 6mm of cancer cells that was keft after chemo. Got over that until end Jan oncologist tells me i can choose now or never to have Kadcyla. Melt down ever since about treatment length until October between being glad of this amazing drug. Finished 9 radiotherapy sessions 17th Feb. Now have weirdest fatigue. Just trying to get head round Kadcyla starting tomorrow 27th when i get a call today at 3pm to say the echocardiogram from 30th Jan was heart function of 47 and phesgo limit is 50. So lovely ladies thats a small essay about me and where my body and brain are tonight and a tip for dodgy digestion. X j p.s. Have a wavy salt n bit of pepper pullet! And they tried to give me zoledronic acid with 1st Kadcyla but luckily when i queried it they said i needed dentist check n forms first.
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@salbert long overdue you being a community champion ! Your advice is invaluable and you are such a great support to everyone x
@jessybessy and That’s amazing news , fantastic ! Good news spurs us all on
@galdiolus
I’ve been asked to consider the trial too , it’s based on the Persephone trial where they feel the outcome either nine injections is as good as 18. I really don’t seem to bc tolerating Herceptin very well so I’m considering it tbh , have you decided to go ahead ?
@jayveebee - yes they do like your ejection fraction to be higher than 50 , are they going to give you ace inhibitors ?
@purple_rain I’m still trying to recover from my last chemo which was 4 weeks ago … I had an echo back in Jan but tbh I feel like my heart has packed up I’m that out of puff … I guess we just have to give it time
@naughty_boob and @mrsjelly - I agree too the thread deserves its own title , It was such a relief to be directed to this thread , I’d have been lost without you all
@jeml you never stop ! I love your craft pieces , is the second one decoupage?
Alongside my face and body art business hubby and I were running a furniture restyling business but had to put it on the back burner 
I’ve been making wreaths for the last few weeks and sold them at the jam
@carrie5 … I feel so exhausted and depleted though … wondering if I’ll ever have my energy back , love the pic of you with your doggy 
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@arty1 i am so confused what to do. The idea of only one more injection seems appealing but then equally I think I have come this far maybe for my sanity I should stay in the train for the full 18.
The research lead from my trust is calling me tomorrow to chat about it. What are you thinking?
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Hi @arty1 and @galdiolus can you explain the PCR please. I’m not following but it sounds positive. Love your work @galdiolus. Hope that beautiful wreath is cheering you on your own door. Life is a balance between doing enough of what makes your heart sing but not killing yourself doing it. I’m finding this even harder now! I was visiting my daughter at uni in Cirencester Sunday, are you near?
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Btw guys - any recommendations on breast cancer charities or research projects I can donate to?
@galdiolus like you I’m not really sure what to do , my oncologist seemed to think that I was a good candidate for nine injections and said the trial was positive but was honest enough to say it still doesn’t have years of results as it’s quite new from a scientific research point .
@jayveebee PCR means pathologic complete response meaning no cancer is detected after cancer treatment
@jessybessy well you could always donate to Breast Cancer Now who run this forum , I just had a networking event on Sunday and raised £510 for them x
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Breast cancer now fund lots of research as well as cancer research uk.
I remember you are in Qatar but all research helps world wide.
https://breastcancernow.org/get-involved/donate/
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Thanks for clarification @galdiolus. Is the the trial for phesgo or Kadcyla? I’m at a university hospital so wondering if it would help me seeing as the phesgo has knocked my function after 7 injections and I’d been offered another 11 before they saw my echocardiogram results.
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Thanks lovely x
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@jayveebee its for herceptin or phesgo - A few ladies have found it’s altered heart function but have seen their ejection fraction improve with heart meds … it might be worth chatting to them about the Persephone trial x
@jessybessy I forget you aren’t in the UK 
BCN - are constantly funding important worldwide research in Breast Cancer x
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