@carrie5 i can understand your frustration I would be the same. I agree with writing everything down, I did, I went through 4/5 note books including a daily check in with myself. I found it essential especially when they said something different to what had been agreed. I was able to call them out and give the date, time and person I spoke to. I think working in a bank for 15 years paid off, when you were always told to record details of calls with date and times, it was before the time of recording the conversation.
@pennyp so pleased the Moving Forward was a positive experience for you. So good if you can meet up with others locally to chat.
@lilyanne so good you now have your plan. I had Paclitaxel only but I’m sure there are others on here that had the same regime as yours. Chemo is not great but it’s doable. My advice is to plan ahead with meal prep/ ready meals for freezer and ask, yes ask for help before your treatment starts. So many people will say let me know what you need but then during treatment we don’t have to energy to say and don’t get the help we need.
@leelee1 i cold capped for 12 weekly Paclitaxel successfully, kept most of my hair with two small patches above my ears, probably from pushin my glasses on under the cap rather than over. Paxman’s website has a way of putting in your regime and the % of hair that could be kept. Mine was 70% of keeping 50% of my hair and I was better than that but I do have a lot of hair so the thinning was not so obvious.
Here is a thread of another positive experience
@marymop sorry to hear you are feeling low. We are hear to listen to you. Please phone your team with your symptoms if they persist, they may be able to change your medication. The BCN nurses are available to chat if you need from 9-4 today 0808 800 6000.
Thinking of you all
