Hi @hks
Welcome to our group, you’re never late, everyone joins if and when they are ready. So sorry to hear all you have been through.
I’ve been on Letrozole since mid January and had some horrible side effects. I wrote this for the forum hoping it would help others. I didn’t want to stop for fear of the bc coming back so I looked into things that would manage my symptoms. I will be updating it soon with how I am getting on.
I have had one Zoledronic acid/Zometa infusion in April and due very 6 months for 3 years. I had flu like symptoms for 3/4 days and took paracetamol 30 minutes before the infusion ( as I was advised I could get some aches and pains while having it). It took about 30 minutes. The worst thing for me was sitting in a chemo chair on a ward that had 3 beds and a chemo chair. I hadn’t expected to be sitting it one knowing that my appointment didn’t state the two wards for chemo. I went alone and I burst into tears. It was 4 months after chemo as I needed some work on my teeth and I waited just in case the work was invasive (root canal/extraction). You must keep on top of your dental hygiene, regularly see a dentist and advise your team if you have any dental problems. I believe there is a risk of fractures, I had the dog run into my shin at full force and went to minor injuries because it was so painful and bruised. I needed to advocate for myself because the nursing staff there were not necessarily cancer trained. Luckily for me I had a one bruise and not a fracture. I was informed it was the treatment to help prevent osteoporosis and studies have also shown that it can prevent cancer in the bones.
I wanted to have everything they advised as they are the experts and wanted to give myself the best possible outcome.