x
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@caz591 Iāve had 7 out of 14 cycles Kadcyla and Iāve got a work trip to the US tomorrow which my consultant is happy for me to do in between cycles. Iām tired and occasionally I feel shitty, but I donāt know how much of that is due to the Kadcyla and how much is due to the fact that life is really freakin busy. Iām back to work like normal 1x or 2x a week in the office, running 3x a week, weights 3x a week, some HIIT classes in between and Iām back to doing the weights that I was before cancer. My HR gets a bit higher when Iām running, but not a huge amount. Thereās loads of posts lately about Kadcyla and peopleās experiences, most people seem to be able to just get on with life as usual. Hopefully youāll be the same!
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Thatās amazing the amount of activity you can do. I used to lift weights before my diagnosis but now struggle with cording and tightness around shoulder, chest and armpit. It may be my age, Iām 56 today. I will get back to it eventually Iām determined to get strong again!
We are all so individual, from the age we were diagnosed, our fitness levels and health issues before and after our diagnosis. But we will all get stronger together
@caz591 great news about lymph nodes, doory to hear margins not clear but you have a plan and two lovely ladies on Kadcyla have already replied to you.
Met the lovely @salbert today in person. We intended to meet for 30 minutes as I was travelling through Surrey but it was an hour. Couldnāt stop talking. We both agreed this HER2+ thread is needed for ongoing support and there are so many different treatment plans for us all.
Off to see my children and dog for birthday cake 
Happy weekend all.
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Happy birthday. Enjoy your cake
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Well I am literally buzzing, not just from the large Americano I have just drunk but from finally meeting up with the One and Only @naughty_boob. We did not come up for air. There was so much to chat about and we would have still been going if it werenāt for the fact that her poor husband was patiently waiting for us to finish. Pic attached for posterity!
Good luck with your American trip @kartoffel You are amazing! Yes, get glitter for July! 
@caz591 Great news that your lymph nodes were clear. I had to have further surgeries too and ended up with a mastectomy but hereās hoping they get clear margins next time. Glad some of the Kadcyla girls can give you the lowdown on their experience of it.
Iām off to the cinema now to see this Stephen King film. All that remains for me to say is HAPPY BIRTHDAY NAUGHTY BOOB!! 
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Do you have your 14 cycles of kadcyla first then radiotherapy or do you have radiotherapy then cycles of kadcyla? X
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Good heavens. Youāre even colour coordinated. Sounds like a great meet up.
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@naughty_boob happy birthday and glad your meet up was good. Just so encouraging from you all getting on with things! Gives me hope while I still await results of 2nd go for clear margin. Meanwhile Iām on train home after Persian Afternoon Tea in Birmingham!
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@caz591 i had radiotherapy first (continuing phesgo till I started Kadcyla/during radio) then 2 week break after radio before starting Kadcyla. Everywhere seems to be differentā¦ There is a very small risk of lung issues with both radiotherapy and Kadcyla so my cancer centre prefer to do one at a time to reduce the risk of any issues. I do think it is a very small risk though, as plenty places seem happy to do both at the same time.
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Yay !! What a fab photo !! Two legends together !!
Im up to my eyes in it as have been quietly organising s huge network event for my industry and its tomorrow ā¦ 80 people expected ! All money raised is going to Breast Cancer Now ā¦ Iām exhausted already 
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Good luck and enjoy tomorrow!
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Great photo of @salbert and @naughty_boob , you could be sisters! @arty1 good luck for your event, you are doing a great job, i dont know how you keep it up.
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Sorry you are feeling so bad. I have no real advise as I am only 1/4 way through chemo but can empathise as I am bothered with Oesophagitis since my first treatment. The only thing that soothes is honey and lemon water (very cool) sipping throughout the day.
I hope you find some kind of comfort soon.
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I hear you @mrsjelly. This year was meant to be a huge year for my family and it all seems on hold. My husband turns 50 in April and I turn 50 in October. My youngest finishes school and starts uni and my eldest finishes uni! We had hoped for a big family holiday plus many celebratory days. Canāt even book husband a birthday meal until I know when my chemos will beš¤Ø
On the plus side, chemo will be finished before my daughters graduation, and we are hoping the operation is after it, but will figure that out too. Plus, we will have a joint 50th party after all my treatment is doneā¦.
We just have to be kind to ourselves and I truly believe my life is on hold this year so that I can have many more years.
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Lovely way to put it
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Lots of lovely messages to catch up on! Love the photo of @salbert and @naughty_boob 
I had my first docetaxel a few weeks ago and was feeling smug because I didnāt really have many side effects (I know itās the first dose and likely to get worseā¦!) but since then Iāve been wiped out by 2 consecutive nursery bugs 
just like bad colds, feel so annoyed I donāt want to/canāt really keep her off nursery for a few months while I have my treatment as I struggle looking after her when Iām not well and with all the appointments, but just canāt be bothered with her coming back with a different virus every week 
I ended up in a&e last Friday and was neutropenic. My consultant gave me 6 days of filgrastim injections and just had my blood results from Friday through on the app and now my white cells and neutrophils are really high so Iām worried Iām not going to get my treatment tomorrow anyone had high neutrophils that delayed treatment?
Sorry for the negative post after all your lovely ones!! In happier news I got a new wig this week (my nhs one) so just have to find some confidence to wear them out in public 
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@sooz1 you are doing amazing. Itās hard enough going through all this treatment when your children are grown but to have a little one, who just sometimes wants their mum is hard. You have to do what is right for you. Can you speak to the nursery about them opening windows and ventilating more to help improve the air quality? It will help to reduce bugs. Iām always baffled that things we learnt through Vovid are being ignored now.
Great news about your wig. I had a NHS wig and never wore it. Tried two charities to give to them and no response. Local Maggieās and Velindre donāt do a recycle wigs thing and they were the oneās who gave me the charity name. Itās a really good quality short pixie and I would love to give it to a good home. I did find a sponsor for the cancer in common event that had a lady who takes wigs, so will try them.
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@naughty_boob the wig salon I went to with my NHS voucher in Glasgow take back used wigs and sell them for their chosen charity for around Ā£50. The salon is called Parruche (need to check spelling). They were really good. Couldnāt recommend them enough
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Thanks will look into them.
I am only about to receive EC number 3 this week of a total 8 chemos, however I am already wondering about my operation which I believe is scheduled end June, start July. I am, although tired, still able to work blended between home and the office. This is my choice as I own the business and like to keep my brain busy. Can anyone advise how long you needed off after your operation. I know this is a piece of sting question but the thought of not working really bothers me. I am due to get bilateral operation and they werent expecting to have to carry out a total masectomy, but more than a lumpectomy with the plastic surgeon working on the otherside at the same time.
On another point, my next batch of chemo is Docetaxel 4 x 3 weekly but have just read another document in my folder about Trastuzumab and pertuzumab. Nothing was mentioned about it but I must be getting that too. Anyone got the same delightful cocktail of drugs from their onchology bar? When did you start getting the Trastuzumab and pertuzumab and for how long as the document suggests a year
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