I am taking Filgrism injection (name maybe wrong lol) 7days every chemo
Thank you at @belle1 I didnāt finish my chemo and had cancer left at surgery so maybe thatās why. Are you back at work as I was planning to go back to work. X
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Yes thatāll be whyā¦ I went back to work early March on a phased return. I work in the emergency services and do shifts so doing days and back shifts but not nightshifts yet. Actually found that it was easier than I thought to build it back up whilst on Kadcyla so have done more hours than originally anticipated at this point (and weāre always very busy so itās pretty full on). Iām also building up my fitness like some of the other guys here on Kadcyla tooā¦ I honestly almost forget Iām getting chemo some weeks! Iāve got a port but I had bother at the start of my original chemo and had a Hickman Line before and the port is way better and doesnāt stop me from doing things
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Yep that injection was the one I had, it will boost your neutrophils. Sure your team / the chemo nurses will keep an eye on your bloods and if they were at all concerned theyād flag it.
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Hi HER2 ladies
Has anyone suffered with nasal/smell issues whilst having Phesgo or Kadcyla?
I had terrible nasal drip with Phesgo and have always had sinus issues but since starting Kadcyla I get this weird incense/perfume/air fresher smell. Itās more frequent the week of treatment.
Iāve always chalked it up to being another weird and wonderful side effect but today, today Iām having an anxious day and worried itās a sign of if a brain tumourā¦
I keep telling myself thatās a huge leap, especially as I donāt have any other issues like headaches, eyesight issues or anything else other than a smell that isnāt there!
I had stage 2a, 18mm tumour, 2 nodes which were both PCR at surgery and a clear CT scan for the rest of my torso.
It would really put my mind at ease if anyone else has experienced this! Thanks
Hi @tgsiv83 Iām Herceptin only so not quite the same but its definitely gone for the membranes in my nose! Its mixture of drippy nose, low grade nosebleeds and very limited smell. Hopefully youāll get more info from Kadcycla and Phesgo ladies shortly.
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I had 3 phesgo and will have 18 in total, I experienced nose bleed first cycle but after my oncologist reduced my doce of docetaxel itās stopped so maybe mine was related to it.
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Hello ladies, this morning I needed to talk to someone just to say what I am going through physically and mentally.
So I called the nurses here and they ask me to report my physical to hot chemo line and then I decide to call breast care nurse and she was nice lady and I burst my eyes out crying and talking about what I am going through.
She put me in talking therapy and said she will talk to my oncologist too.
What I find hard while chemo is the fact that you became a vulnerable weak and isolated and not your old self, what good to know itās just temporary ladies and we will go back to our stronger selves
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Happy Monday to one and all
Well done @sn25 and @jobieejo on ticking off those first infusions, braving the cold cap and navigating ejector seats disguised as chemo chairs! I hope you are both still feeling ok. Making friends for weekly walking and caking is one of the best ways of keeping your spirits up. I should know for I did the very same throughout last spring and summer and it was one of my mainstays.
@cruising 
I hope the chemo nurse didnāt take you at your word and worm and flea you at the same time!
@hasnae87 I want to give you the biggest hug. I had friends round to sit in the garden with me or come for walks with me which always involved cake afterwards as just mentioned the paragraph before last. I couldnāt have gone without seeing people as Iām rather a social creature and I canāt survive without human interaction. It gets me down. As some of the others have said, itās important to look after your mental health and that little bit of normal helps so very much. This disease throws everything upside down and home life can become stressful for everyone which is why you must try to get out in the open air and meet some friends for some time out. I didnāt let my friends hug or kiss me and none of them objected! 
I am so glad you are going to start talking therapy. You have just done the best thing you could do for yourself. I found it invaluable. You express your feelings beautifully here so I think that you will also find you can do this in therapy and learn some valuable coping tools. You will feel strong again but in the meantime, keep talking. I firmly believe it is the right thing to do.
@sez Leg shoes is currently in first place in the chemo brain stakes. 
@gromit12 You are amazing. You are a machine! I am running out of adjectives for you so once more I am going to use good old āinspirationalā. All those preconceived ideas of how someone who is going through chemo looks and behaves are smashed and obliterated with each post where one of us finishes a marathon, a park run, an iron woman wotsit, goes down another cave. I just love it. It made me laugh that @kartoffel would have just nipped down and done a marathon with you. You guys are in a whole different league to me!
@jayveebee Thank you for bringing the conversation round to my favourite topic! Eurovision was indeed a fabulous night. I was a big, multicoloured Eurovision butterfly this year. Pics attached. My party was very well-attended, riotous, raucous and rather drunken but by the end of it I had a new batch of Eurovision converts. Job done! Yesterday was a very subdued day where not much other than a whole day of clearing up was achieved and I still donāt have my voice back entirely but it was all worth it. Austria was the worthy winner. I feel a sense of urgency to party and see old friends and go to all the places on my bucket list now that Iāve finished my treatment. I donāt just assume that I will have years and the good health to do it anymore. Now I want to do it all while I have my good health again. I always used to put everything off with a belief that I would do it āone dayā but now I want to do it all NOW! My next do is my drama school reunion. The last one was 2012 and I canāt believe 13 years have passed. A year ago when I was in the midst of chemo, I put a Facebook post up setting the date for 14th June 2025 so that it would be a date to look forward to. Also New York will be my reward at the end of it all. Time is so precious so I intend to fill it with happy times and wonderful memories.
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@arty1 Great news on your ejection fraction. Iām hoping mine goes in that direction too.
@carrie5 That cave looks other worldly and if Iām honest, a bit scary. You are another awesome woman giving us all hope and positive energy. @hoggie I quite agree. Cancer doesnāt stand a chance!!
Hi @debly123, good to hear from you. Itās hard when you are offered a line of treatment rather than told that you will be having it. I was offered radiotherapy but didnāt have to have it. I opted to take it because I am greedy and want everything. However, joking aside, more chemo is not something any of us would be chomping at the bit to receive. Many women on here have had Kadcyla and found it a lot easier than EC and a taxol. In fact, just a few posts previously you will see that our incredible @gromit12 had a Kadcyla on Friday then did a walking marathon on Saturday having driven from Somerset to Oxfordshire straight from chemo. @belle1 Your info is always brilliant, by the way.
@tgsiv83 Yes, Iāve had nasal issues. Nasal drip to begin with, which has become constant stuffiness (thank the Lord for Otrivine) and for the last few months, scabby nostrils. I spoke to my oncologist who said that he has heard this enough times to be sure that it is a side effect of the Phesgo.
And now, itās time for me to start cooking dinner which is the first of a week of rustling up barbecue leftovers meals. I have a fridge full of baked potatoes to attack. Bet youāre jealous @kartoffel 
Salbert
xx
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Hi all, well my nose and centre face have gone quite acne looking! I now feel i maybe starting a cold sore of sorts! Any suggestions to sooth? I assume this is chemo related? X
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Yep i had acne and cold sores and a range of low level infections. The spots always came out just as i felt well enough to go to work!
Been resting up all afternoon to get to Scissor Sisters this evening. Lots of cactus hair gel @salbert!
And we actually have matching blue eyeshadow, its not just the lights. I got free sympathy tickets! Gotta milk it!
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Did anything help? X
Nope, just drink lots for your skin. And rest and dont push yourself. Iāve been told of by oncologist afain this week for not resting enough. Borrrrring.
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Guys what to do for cold sore on lower lip ? I am afraid itās herpes on lips ? The mouth wash for cold sore will not treat it !!!
Wow @salbert you look fabulous. Be thinking of you on Friday. How are you feeling about it?
@arty1 great news about your ejection fraction, I remember months ago and we discussed heart issues. 69 is a perfect score!
@tgsiv83 I suffered with nasal drip after chemo and took some time to get better, probably after Herceptin finished. I had a steroid nasal spray that helps with hayfever etc and it helped somewhat with the drip.
@debly123 Iām sorry youve had such a hard time. There are so many lovely people on here on Kadcyla for residual cancer. As suggested give your breast nurse a call to talk it through.
@sassy acne rash can be quite common during some chemo regimes. If it was me I would talk to my team and see if there is anything they can prescribe to help. I suffer badly with cold sores and had a terrible breakout during chemo while I had an infection and was hospitalised. I was prescribed oral aciclovir which greatly increased my liver bloods.i was switched to aciclovir cream and eventually my liver bloods recovered. I had been a 4 different antibiotics and the. Anti virals tipped the liver into panic mode. It took a few months for my liver to recover. I would also discuss this with your team as medication can interact and you need to be sure itās ok for you.
@hasnae87 Iām so pleased you were able to talk to your nurse and now getting talking therapy. You are strong, you can do this. We are still here for you to vent when you need. You are not alone.
@gromit12 and @carrie5 you are amazing. Iām 15 months post chemo and not sure I could do what you are both doing, I tried to do the Cancer Research 100 skips a day in May challenge but my bones and joints didnāt like all that bouncing up and down. Iām not great at skipping anyway but thought it would make me better and help with bone density but it wasnāt meant to be. 
I will just make a donation to the charity but I will try to skip a bit every day but not anywhere near 100!
Thinking of you all.
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@naughty_boob - I think whether its marathons or multicolour butterflies weāre finding our ways to be ourselves and not defined by our cancer experience!
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Morning all! Off to hospital today for scout implant and ultrasound/ possible biopsies on 2 further areas of concern, hopefully all can be done at same appointment! Love to all of you x
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Best of luck
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