HER2+ and need some buddies

Congratulations @gromit12 !!!

Also good luck. Glamoing set up looks great!

Xxx

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Congrats @gromit12 for finishing kadcyla.
Sorry @caz591 for your SIL news, the medicine is getting more developed now and they will try many treatment and hopefully will kick it ass again.

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So in brutal conditions at Leeds Endure - 24 hour endurance race running 5 mile loops- I completed 6 laps= 30 miles 3 days after completing Kadcyla. I’m immensely proud of myself

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Wow amazing! Congratulations thats such an achievement and after treatment! xx

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@gromit12 you go girl amazing :clap: :star_struck: x

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Amazing @gromit12 !!! Well done. You really are a super hero.

Inspiring for all of us ladies behind you on this journey, although I am 100% sure I couldn’t do what you did. Maybe a 5k when I am up to it!!!

Xxx

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Oh my goodness @gromit12 you are amazing doing all those miles in this heat straight after Kadcyla! I have just shifted on my office chair and distinctly heard my thighs slap together and these two things combined have just prompted me to write ā€˜MUST EXERCISE TONIGHT!’ at the top of my To Do list.

@sez Good to see the positives if one can! My tattooist comes highly recommended so I will let you know how mine goes. Here is the link to their website so you can check them out - https://paradisetattoostudios.com
They specialise in areola-nipple tattoos and are an all women setup which I like the sound of.

@kartoffel I am delighted to know that you are unremarkable. I guess we are all on that rollercoaster for the rest of our lives. I am telling myself that I won’t stress about my first scans in August but just thinking about it gives one the sensation of butterflies in the stomach which, on top of the IBS, are unwelcome. I do so hope to be told I am as unremarkable as you. :smile:

@caz591 I’m so sorry to hear about your sister in law. Bloody bc. @hasnae87 is right that the treatment is getting better all the time. I hope and pray that it zaps the stuff for her again. Congrats on the Ruby Wedding and I hope you had a lovely family meal. Precious times.

@carrie5 - I had one big toenail that came off completely and is growing back really nicely. Looks like a perfect new normal toenail. The other toenail resolutely and stubbornly hung on and now refuses to grow, budge or do anything but look thoroughly unsightly. It’s such a dark shade of browny-grey that even a thick goat of orange gel nail polish is having a fight with it at present and the toenail is winning. This is a convoluted way of attempting to present the positives of toenail loss. :grimacing: Lovely to have Wales to look forward to. I have booked out a few camper van weekends in the diary so let’s hope this sunshine lasts.

Two things…

Firstly, it’s the Cancer in Common event this Saturday in London for anyone thinking of attending. I’m SO looking forward to meeting those who are coming.

Secondly, did anyone see Rod Stewart at Glastonbury yesterday? We watched him on the TV and we thought he was amazing. He’s 80 and was booting footballs into the crowd, singing as well as ever in the searing heat! Which brings me neatly round to the start of this post - MUST EXERCISE TONIGHT!

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I always enjoy reading your thread and always making me laugh, thank you for that.
I wish I can attend the events but unfortunately I can’t as my husband teaching privately on Saturday morning and afternoon and I have to look after my son.
Sorry for you nail that refusing to grow, one day you will be surprised how fast will grow soon.
@salbert

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Happy Monday everyone - we got through another week !, I’m finding time is flying at the mo and in three weeks it will be a year since initial diagnosis day which I can’t believe …
my daughter is really low and suffering with her miscarriage… it’s her birthday tomorrow … what a birthday present … At 3.5 hours away I can’t even go and give her a cuddle .
She’s recently had a cat scan due to some symptoms which they wanted to rule out lymphoma … it was clear for that but had shown she has a severely enlarged liver … she’s been refered urgently to hepatology but she’s very anxious about it … she’s slim and hikes up mountains and doesn’t drink . It’s a bit of a worry …

@salbert - we completed a week ago :see_no_evil: we offered on it in March but I didn’t want to tempt fate … so it’s all ours and all being well we can move there when the time is right .
Glad to hear the boobs are healing nicely … there are some fantastic tattoo artists around … I have a friend who specialises in post reconstruction nipple tattoos … they look incredible .

@gromit12 - I’m blown away you did that run especially in the heat ! You are incredible !

@mrsjelly - how is recovery coming on ?

@caz591 - I’m so sorry to hear about your SIL diagnosis … it’s not what you want to hear a few years down the line … however … Treatments for secondary breast cancer these days are incredible … I have a friend with secondary breast cancer and she’s still living well and enjoying life x …

@hasnae87 I’m in the same boat with being unable to make the CIC event … Except it’s me working :see_no_evil:

@kartoffel - it’s one time you want to hear you are unremarkable!! Great news !

I was watching all the old rockets at Glastonbury and feeling ashamed that I can’t even get off the sofa without wincing … apparently Rod Stewart had a home gym and works out regularly …

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Also … I have come to a decision … I can’t live with just one boob … I just can’t …
I sat and bawled to my husband last night saying I’d have rather lost both … I mean … if I had neat 36 c boobs I could live with one . But I had pendulous 42 E boobs before surgery and I’m now left with one that resembles a huge slightly deflated and sad balloon after a party … it’s heading to my waist faster than you can say saggy boobs … I used to wear push up underwires bras and had an eyeing cleavage that you could have lost a small village in … I’m not afraid to say that in a beautiful bra . They looked pretty good …
In still wearing the free mastectomy bra I got and the prosthetic has turned into a sweaty pile of mush … I hate it . I hate how I look … But … my hospital don’t do diep flap and my surgeon said she didn’t want me on the operating table for hours due to my heart … I’ve had no expanders but I wondering if I can just have an implant and a therapeutic mammaplasty… would they agree to it ?

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@gromit12 inspiring! @arty1 go and research what’s possible with boobs you’d be happier with and get several opinions. Hope you can get to a better solution. You feel your kids’ pain no matter what age they are and its tough when you can’t make it right. @salbert thanks for toenail encouragement, I’m more a walking boots than open toe sandals girl…I asked my daughter who distance runs for ideas and she said to try silicone toe covers. Googled them, look weird but I’ll give anything a go to get walking again. Will report back.

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@arty1 I had a lumpectomy on both sides so don’t know what it would be like flat, however mine aren’t that small so it definitely would be ā€˜noticeable’ if I only had one, so I get that you don’t want to live like that. I watched a BCN live with an oncologist Dr Andy Proctor from York today (posted 2 days ago) and he answered a question about surgery and said the NHS would fund surgery for symmetry, so as usual advice it would be a call to your team to let them know how you feel.

So sorry to hear about your daughter and it’s so horrible not to be there for them. Mine children live 1 1/4 hours away ( on a good day) but it’s not always easy to pop there to see them. Sometimes only Mum will do. :hugs:

Croeso I Gymru (Welcome to Wales) if your North Wales Welsh is more widely spoken than here in the South.

@salbert you always make me chuckle ( slapping thighs!) while I’m sitting here feeling the heat and it’s not as hot as near you. My body doesn’t like the heat anymore especially with hot flushes that seem to intensify :hot_face:

:smiling_face_with_three_hearts:

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@carrie5 I tried silicone toe caps, they made menswear badly underneath and I got blisters at the base. I have 3 very dubious looking toenails currently and yesterday I tried toe socks - game changer, they protect each individual toe and nail! And no blisters in 30 miles

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Ooh @gromit12 thank you for that, they must be pretty good for your mileage in that heat! Any particular brand or type?

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@carrie5 injinji toe socks. I can’t believe how good they are, and in brutal conditions :+1:

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Thanks, if only I lived near Cheltenham (I’m near Manchester and Liverpool).

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Has anyone had their first mammogram since surgery?
I’m having mine tomorrow and anxious cos my nork is still achy and certain pressures cause pain.
I’ve been telling everyone who is due theirs that it’s nothing and just get it done cos it felt like a blood pressure reading but in their boob (which it truly felt like pre-surgery) but I think I may scream tomorrow if it’s painful. I’m going to take some cocodamol beforehand just in case.

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@carrie5 - I’m definitely going to look into it - I think now the dust has settled as such , In looking at myself in the mirror and not liking it … I want to wear pretty bras too

@naughty_boob - I’m not sure how to go about it as I seem to have been discharged completely … I was told I’d get a follow up with the breast nurses but I’ve enquired and been told no . I just contact them if any issues … I’m wondering if I’d need to ask my gp to refer me which could mean waiting years :melting_face:…

@sez - I had my first mammogram earlier than expected on my remaining boob due to finding a lump
… all was fine but the scaniexty is very real and I think very normal x

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I’ve been practicing at home (I treat every test like something I have to study for, makes me feel like I have some control, I was practicing my radiotherapy breathing since last year and I didn’t have it until a couple of months ago). :laughing:
My ā€˜hand vice’ is saying I’m going to be a screamer or a wincer. I wonder which (pre-surgery I was just disappointed everyone had told me it hurts and I didn’t have that, so it felt like a wind up)?

I had my first mammogram a few months back which felt much the same as my last mammogram before diagnosis, but they struggled to get me positioned in the right spot because I had the temporary expander in and they didn’t want to scan that boob. They were just pushing and positioning me around and I thought that was the perfect time to crack a joke which then meant we had to start all over again… :joy:

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