Congratulations @gromit12 !!!
Also good luck. Glamoing set up looks great!
Xxx
Congrats @gromit12 for finishing kadcyla.
Sorry @caz591 for your SIL news, the medicine is getting more developed now and they will try many treatment and hopefully will kick it ass again.
So in brutal conditions at Leeds Endure - 24 hour endurance race running 5 mile loops- I completed 6 laps= 30 miles 3 days after completing Kadcyla. Iām immensely proud of myself
Wow amazing! Congratulations thats such an achievement and after treatment! xx
@gromit12 you go girl amazing
x
Amazing @gromit12 !!! Well done. You really are a super hero.
Inspiring for all of us ladies behind you on this journey, although I am 100% sure I couldnāt do what you did. Maybe a 5k when I am up to it!!!
Xxx
Oh my goodness @gromit12 you are amazing doing all those miles in this heat straight after Kadcyla! I have just shifted on my office chair and distinctly heard my thighs slap together and these two things combined have just prompted me to write āMUST EXERCISE TONIGHT!ā at the top of my To Do list.
@sez Good to see the positives if one can! My tattooist comes highly recommended so I will let you know how mine goes. Here is the link to their website so you can check them out - https://paradisetattoostudios.com
They specialise in areola-nipple tattoos and are an all women setup which I like the sound of.
@kartoffel I am delighted to know that you are unremarkable. I guess we are all on that rollercoaster for the rest of our lives. I am telling myself that I wonāt stress about my first scans in August but just thinking about it gives one the sensation of butterflies in the stomach which, on top of the IBS, are unwelcome. I do so hope to be told I am as unremarkable as you. ![]()
@caz591 Iām so sorry to hear about your sister in law. Bloody bc. @hasnae87 is right that the treatment is getting better all the time. I hope and pray that it zaps the stuff for her again. Congrats on the Ruby Wedding and I hope you had a lovely family meal. Precious times.
@carrie5 - I had one big toenail that came off completely and is growing back really nicely. Looks like a perfect new normal toenail. The other toenail resolutely and stubbornly hung on and now refuses to grow, budge or do anything but look thoroughly unsightly. Itās such a dark shade of browny-grey that even a thick goat of orange gel nail polish is having a fight with it at present and the toenail is winning. This is a convoluted way of attempting to present the positives of toenail loss.
Lovely to have Wales to look forward to. I have booked out a few camper van weekends in the diary so letās hope this sunshine lasts.
Two thingsā¦
Firstly, itās the Cancer in Common event this Saturday in London for anyone thinking of attending. Iām SO looking forward to meeting those who are coming.
Secondly, did anyone see Rod Stewart at Glastonbury yesterday? We watched him on the TV and we thought he was amazing. Heās 80 and was booting footballs into the crowd, singing as well as ever in the searing heat! Which brings me neatly round to the start of this post - MUST EXERCISE TONIGHT!
I always enjoy reading your thread and always making me laugh, thank you for that.
I wish I can attend the events but unfortunately I canāt as my husband teaching privately on Saturday morning and afternoon and I have to look after my son.
Sorry for you nail that refusing to grow, one day you will be surprised how fast will grow soon.
@salbert
Happy Monday everyone - we got through another week !, Iām finding time is flying at the mo and in three weeks it will be a year since initial diagnosis day which I canāt believe ā¦
my daughter is really low and suffering with her miscarriage⦠itās her birthday tomorrow ⦠what a birthday present ⦠At 3.5 hours away I canāt even go and give her a cuddle .
Sheās recently had a cat scan due to some symptoms which they wanted to rule out lymphoma ⦠it was clear for that but had shown she has a severely enlarged liver ⦠sheās been refered urgently to hepatology but sheās very anxious about it ⦠sheās slim and hikes up mountains and doesnāt drink . Itās a bit of a worry ā¦
@salbert - we completed a week ago
we offered on it in March but I didnāt want to tempt fate ⦠so itās all ours and all being well we can move there when the time is right .
Glad to hear the boobs are healing nicely ⦠there are some fantastic tattoo artists around ⦠I have a friend who specialises in post reconstruction nipple tattoos ⦠they look incredible .
@gromit12 - Iām blown away you did that run especially in the heat ! You are incredible !
@mrsjelly - how is recovery coming on ?
@caz591 - Iām so sorry to hear about your SIL diagnosis ⦠itās not what you want to hear a few years down the line ⦠however ⦠Treatments for secondary breast cancer these days are incredible ⦠I have a friend with secondary breast cancer and sheās still living well and enjoying life x ā¦
@hasnae87 Iām in the same boat with being unable to make the CIC event ⦠Except itās me working ![]()
@kartoffel - itās one time you want to hear you are unremarkable!! Great news !
I was watching all the old rockets at Glastonbury and feeling ashamed that I canāt even get off the sofa without wincing ⦠apparently Rod Stewart had a home gym and works out regularly ā¦
Also ⦠I have come to a decision ⦠I canāt live with just one boob ⦠I just canāt ā¦
I sat and bawled to my husband last night saying Iād have rather lost both ⦠I mean ⦠if I had neat 36 c boobs I could live with one . But I had pendulous 42 E boobs before surgery and Iām now left with one that resembles a huge slightly deflated and sad balloon after a party ⦠itās heading to my waist faster than you can say saggy boobs ⦠I used to wear push up underwires bras and had an eyeing cleavage that you could have lost a small village in ⦠Iām not afraid to say that in a beautiful bra . They looked pretty good ā¦
In still wearing the free mastectomy bra I got and the prosthetic has turned into a sweaty pile of mush ⦠I hate it . I hate how I look ⦠But ⦠my hospital donāt do diep flap and my surgeon said she didnāt want me on the operating table for hours due to my heart ⦠Iāve had no expanders but I wondering if I can just have an implant and a therapeutic mammaplasty⦠would they agree to it ?
@gromit12 inspiring! @arty1 go and research whatās possible with boobs youād be happier with and get several opinions. Hope you can get to a better solution. You feel your kidsā pain no matter what age they are and its tough when you canāt make it right. @salbert thanks for toenail encouragement, Iām more a walking boots than open toe sandals girlā¦I asked my daughter who distance runs for ideas and she said to try silicone toe covers. Googled them, look weird but Iāll give anything a go to get walking again. Will report back.
@arty1 I had a lumpectomy on both sides so donāt know what it would be like flat, however mine arenāt that small so it definitely would be ānoticeableā if I only had one, so I get that you donāt want to live like that. I watched a BCN live with an oncologist Dr Andy Proctor from York today (posted 2 days ago) and he answered a question about surgery and said the NHS would fund surgery for symmetry, so as usual advice it would be a call to your team to let them know how you feel.
So sorry to hear about your daughter and itās so horrible not to be there for them. Mine children live 1 1/4 hours away ( on a good day) but itās not always easy to pop there to see them. Sometimes only Mum will do. ![]()
Croeso I Gymru (Welcome to Wales) if your North Wales Welsh is more widely spoken than here in the South.
@salbert you always make me chuckle ( slapping thighs!) while Iām sitting here feeling the heat and itās not as hot as near you. My body doesnāt like the heat anymore especially with hot flushes that seem to intensify ![]()
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@carrie5 I tried silicone toe caps, they made menswear badly underneath and I got blisters at the base. I have 3 very dubious looking toenails currently and yesterday I tried toe socks - game changer, they protect each individual toe and nail! And no blisters in 30 miles
Ooh @gromit12 thank you for that, they must be pretty good for your mileage in that heat! Any particular brand or type?
@carrie5 injinji toe socks. I canāt believe how good they are, and in brutal conditions ![]()
Thanks, if only I lived near Cheltenham (Iām near Manchester and Liverpool).
Has anyone had their first mammogram since surgery?
Iām having mine tomorrow and anxious cos my nork is still achy and certain pressures cause pain.
Iāve been telling everyone who is due theirs that itās nothing and just get it done cos it felt like a blood pressure reading but in their boob (which it truly felt like pre-surgery) but I think I may scream tomorrow if itās painful. Iām going to take some cocodamol beforehand just in case.
@carrie5 - Iām definitely going to look into it - I think now the dust has settled as such , In looking at myself in the mirror and not liking it ⦠I want to wear pretty bras too
@naughty_boob - Iām not sure how to go about it as I seem to have been discharged completely ⦠I was told Iād get a follow up with the breast nurses but Iāve enquired and been told no . I just contact them if any issues ⦠Iām wondering if Iād need to ask my gp to refer me which could mean waiting years
ā¦
@sez - I had my first mammogram earlier than expected on my remaining boob due to finding a lump
⦠all was fine but the scaniexty is very real and I think very normal x
Iāve been practicing at home (I treat every test like something I have to study for, makes me feel like I have some control, I was practicing my radiotherapy breathing since last year and I didnāt have it until a couple of months ago). ![]()
My āhand viceā is saying Iām going to be a screamer or a wincer. I wonder which (pre-surgery I was just disappointed everyone had told me it hurts and I didnāt have that, so it felt like a wind up)?
I had my first mammogram a few months back which felt much the same as my last mammogram before diagnosis, but they struggled to get me positioned in the right spot because I had the temporary expander in and they didnāt want to scan that boob. They were just pushing and positioning me around and I thought that was the perfect time to crack a joke which then meant we had to start all over again⦠![]()