HER2+ and need some buddies

@kartoffel Congratulations on finishing Kadcyla :clap: you’ve done great. I cant wait till my last one in January X

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@sez I think I would love your godson!

@caz591 I still have one bizarrely stubborn big toenail that has not dropped off or grown in a year now. It just remains looking a horrible shade of browny-grey which requires a good few coats of BIAB gel to cover it.

@kartoffel - I am truly happy for you, my friend. It’s been a very long journey indeed and February 2024 Chemo Starters seems a long time ago now. Huuuuuge congratulations!! I think you deserve a jacket spud with chips and potato salad with a side helping of rosti.

@Linda_Corinne I have booked New York for October and flights for Iceland next March and Switzerland next July for the exact same reasons as you say. I never knew when I went to Berlin in April 2023 that it would be two and a half years until I boarded a plane again. It is good for your mental health to have things to look forward to. Not long until you can book again.

And now here is something that I want to share as I think it is relevant. I am usually level-headed and optimistic but due to total over-tiredness (4 evenings on the trot of elderly parent duties after work every day), I had a headache I couldn’t shift yesterday and I felt a bit spaced and dizzy. This naturally led to me googling ā€˜How do I know if I have brain metastases?’ by last night. I had to give myself a stern talking to and go and watch telly for an hour. I slept like a log last night and feel right as rain again. We may think we are together and moving on just fine but apparently those fears can creep up on you. I have my 7th August first annual scans approaching so I think this may be playing a part. What I’m trying to say is that these fears are normal and we all have them from time to time.

And now we are off back down to Rye in the camper van. Gotta take these opportunities when you can, right?

Have a good weekend, my buddies

Salbert
xx

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We had a nice lunch yesterday at a restaurant that we’d been wanting to try for ages and my husband has arranged some surprise celebration for tomorrow :smiling_face:

This one seems to have hit me harder than normal though strangely enough… I was queasy this morning and had to take the day off because I felt so terrible. I’ve napped the whole day, so I’m starting to feel better though so that’s good :+1:

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@kartoffel congratulations on finishing Kadcyla well done. Hope you will be pleased with your husband surprise.
@salbert hope you feeling bit better now, scan anxiety is tough and we humain being and it’s not easy to stay positive all time.

It’s being a while I couldn’t write in here, I was in pain for 10 days post op no pain killer was working, my drain stopped working for 24h and I wasn’t aware of it, had to change it and my incision start leaking too and I am still on antibiotics for 15days, finally the drain was out yesterday and had proper sleep.
My sister went back to Canada and my husband confess that he is talking to another Moroccan woman that he want to move with her maybe next year as he will search for job there and I have to live with his Mum in here.
I tried to go for a walk to vent out but was soo smashed.
Hope the next days will be better as I am waiting for my pathology post op result.

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Just done park run at Chasewater, at a walk! Much nicer than the first one I did. @gromit12 toe socks seem to have done the job.
@hasnae87 I’ve just read your post, I don’t have words, or not any I can put here. Im so sorry you are getting such rubbish when you need all the support you can get. I really hope there are nicer times for you and your little boy in the future.

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@carrie5 I can’t believe the difference these socks make!! Trying barefoot shoes today! Supposed to help neuropathy :pray:

@kartoffel just be warned you could be hit with overwhelming fatigue, it’s surprised me somewhat. I expected to be recovering by now-4 weeks post Kadcyla but absolutely whacked. May not be aided by 2 ultras mind you!! :rofl::rofl::rofl::open_mouth:

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I so wish I lived near you. I’d bring some food round and try and help so you can have some time with your little boy (and also get some rest).
So sorry your recovery hasn’t been easy going.
You really are such an inspiration, so strong, your little boy has an amazing role model in you.
I want nothing but good things for you both after all this stuff, you both deserve so much better.
Sending healing virtual hugs.

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Was this about wearing thick socks or are there some wonder socks (apologies, tried reading back but my brain mush isn’t figuring it out)?
Right now I hate wearing socks (weird cos I was a freak who wore them in bed all year round :laughing:) but if there’s something that helps neuropathy I NEED it!! :laughing:

@sez compression socks are best for neuropathy - but need to be 20-30mmHg. I’m trying barefoot shoes now

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I’m finding with the neuropathy that’s its definitely improved since I finished Paclitaxel, but also it goes if I’m active, that might just be distraction, but it doesn’t come back quickly when I stop. The toe socks are helping stop my toenails, several at weird angles, from digging in to the neighbouring toe! Ive got sock less shoes (make my feet look like they belong to a bear!) but they were squishing my nails so they are set aside for now! Good luck with the experiments on solutions.

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Thank you.
I hated compression socks after surgery. Maybe I need to give them another go?:thinking:

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@sez I still wear them overnight, don’t like them either but like neuropathy even less!!

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